Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I went to pick up my labs to take to my LLMD the
last of this month and find when Dr. did my Lyme
test over a year ago the lab plainly stated there
was one band positive.
This was when I got the FLU and did not get well.
I would like to bite #(%&#&
*!&^$*@ and (#*&^^$ it *&^%^%^& &&^ @#%%^.
He could have saved me all this grief by pursuing
this with me. Instead he was against me all the way.
I am angry the medical field has denied him the knowledge
and hurt he would not help me by finding out for himself to increase his knowledge. I am sorry.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
This is typical of the mainstream medical industry. One band is not a positive test result, so they just leave it at that. This is what they have been taught. It is sad but true.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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jt345
Unregistered
posted
I am so sorry You have fell victim too the mainstream doctors. I wish I could take it away ,but no one can.
You have every right too be angry. This has just got too stop. sutherngrl is right. Must Dcctors get about one maybe two days on tic born illnesses.
Please feel free too PM me or ( I know I can speak for most here)anyone here. We are too help in any way We can.
Know that You are in my prayers. appleseed
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posted
I wouldn't get angry at him if he was well meaning, GET ANGRY AT THE SYSTEM THAT PRODUCED HIM!
Posts: 743 | From New York | Registered: Apr 2009
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Throw him into the alligator pit!
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
The IDSA is responsible for teaching them the wrong stuff.
that's why it's so critical to teach every lyme/co patient here....get copies of every medical report, lab work, xrays, anything you've had done always.
sign those release of information forms to get them; PAY for them if you have too and it's very helpful for your SSDI, ss disability insurance, benefit claims to WIN your cases 1st time, 1st step!!
that's why it's so critical to teach every lyme/co patient here....get copies of every medical report, lab work, xrays, anything you've had done always.
sign those release of information forms to get them; PAY for them if you have too and it's very helpful for your SSDI, ss disability insurance, benefit claims to WIN your cases 1st time, 1st step!!
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i understand completely. i went to my primary with a large bulls eye rash on the inside of my left leg. clearly lyme....i looked it up on the internet.
i said look at this, i just got back from camping and walking through the weeds with my dog and all, and i think it's lyme.
he told me "look stay off the internet, you're not a doctor. it's a spider rash, allergic reaction. take doxy for 2 weeks and go home".
i went back after a month saying i had an extremely hot sore neck and headache, with ringing in my ears. he said stress from visiting my mother....
forward 3 months -- blurry vision, severe joint pain, you name it....diagnosis -- stress from job...
took me over 6 months to find a llmd doctor, unfortunately a nut, then another year to find a good one.
now i'm chronic. personally, i'd like to take a, uh, thing, and shoot them....
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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jt345
Unregistered
posted
Sue that Man Take Him and the clinic for everything they have. find Yourself a guttesy lawyer and own His ***.
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I thank you all. I am sorry for us all and our families.
If I had been wearing his shoes I would pray God
would give me the grace and wisdom to look
beyond, and find the what if.
He even went so far to say in one of his
citations,"She is convinced something is wrong with her."
Duh, did he not hear me.
I could have just as well have been a crooked picture on the wall.
What did he not understand?
When I said I could hardly walk does that sound
like I was asking for antidepressants?
I am sure this is why we have LLMD's in the first
place but this has to change.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
So sorry Pinelady!
Hmmmmm....Imagine if all of our Dr's were sued for misdiagnosing us.
I think we could certainly prove that harm was done.
You are not alone, Pinelady, not that that makes you feel any better.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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jt345
Unregistered
posted
Way before I was I had dia. of lyme . My feet hurt so bad I could hardly work ,and a Doc. in town here(should I say HIS NAME?),walked out of the office. I looked at my chart ,and He wrote"worries alot".
Instead of trying too find out what was wrong he passed me off to apodieitrist. They made Me a pair of inserts that,cost me $500.00 . Did'nt help abit.
That Jerk still has His private practise here in town.
I want so bad to say who He was ,so no one else would ever go too Him. But I better not. My luck,He'd sue Me.
posted
I know how you feel. I had a positive band in 2001, an equivocal test in 2006 and finally tested positive last year. Positive according to the CDC.
My doctor always told me my lyme test was negative. Never mentioned that I had any positive bands at all. And I didn't know to ask.
Posts: 581 | From CT | Registered: May 2008
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
I am so very sorry you were misguided. It seems the way of the world with Lyme.
This won't make you feel better, but you are in good company here with all of us. I bet each person on Lymenet has been dismissed or misdiagnosed at least once.
Did you mention you were going to an LLMD now?
Best of luck.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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posted
Dear Pinelady, Here is a little something I learned years ago: Doctors are idiots. Many refuse to believe anything but what they were told. Medical schools are funded by the drug companies, so alternative ideas are ignored. I was told for years I was just nervous or depressed, and that I had IBS. IBS is a label they give anything that has intestinal symptoms that they have no clue what is causing it.
IBS = I do not know, But I am a doctor, So I am making this up. I spit up formula as an infant, and likely was born with Celiac Disease. Lo and behold, removing gluten has helped. However, I am still experiencing issues with digestion as well as Fibromyalgia and other things. Lyme is a good possibility. I am waiting on my Western Blots, and fortunately, my current doctor knows negative Western Blots do not mean Lyme is not an issue.
I had a situation similar to this several years ago. An idiot PCP I had was obsessed with me being mental, and missed a gallstone I had. Nearly three years later, I went to get another test where the technician informed me the very first test I had run showed the gallstone! To this day, I cannot be sure I would not be able to stop myself from squeezing that moron's neck until her head popped off!
This woman nearly ruined my life. I was forced to go through a colonoscopy, intercolisis, gastric emptying study, bloodwork, and endoscopy, all for the entire team of idiots in labcoats to tell me they thought I was nuts. I got stuck on an anti-depressant and forced to go to psychotherapy. All of it was a waste of time, money, and effort. By the time my gallbladder was removed, it nearly ruptured. I also had been told to eat a bowl of bran every single day. Guess what is loaded with gluten? Be careful with doctors, because they are likely to kill you!
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