posted
I'm new to the network and to a deeper understanding of lyme even though I was diagnosed and treated for it 4 or 5 years ago(can't even remember date of the onset of this traumatic disease). At that time I presented with the classic bulls eye rash and symptoms, my regular doc tested (positive) me and put me on antibiotics. I got sicker, after three weeks I was sent to a cardiologist who said I had a normal EKG...but prescribed additional 2 or 3 more weeks of medicine. After that course even though I wasn't completely better my doc said we caught it in time and I no longer needed medicine. I never did regain my old self. Today I regret not seeking out a specialist, support, or going with my gut instinct. I allowed my doctor to treat my lyme like a common cold, today I suffer for it (lyme. CFS, FM, ????). On the bright side I no longer have that doctor and I am fighting back demanding to be listened to. I recently changed primary doc again because she continued to say I was just "depressed" and couldn't have lyme again because I didn't have a "rash", she wasn't even opened to the idea that I could still be suffering from that first tick bite. She did however order another lyme test. No surprise I tested positive, the western bloc also had many poitives but I was told (by my new doc) that on the last four areas I only tested positive for one so I don't have lyme??? I will be getting copies of test and my old test and taking them to a new doctor. Thanks to everyone who gave me LLMD's yesterday.
Posts: 105 | From Mass | Registered: Apr 2009
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
Hi CathyMary. Welcome.
I'm copying and breaking up your post for those who can't read large blocks of text.
I hope you can find a doctor who will listen to you and help you on the road to reovery.
This is a great place to be! --------------------------------
I'm new to the network and to a deeper understanding of lyme even though I was diagnosed and treated for it 4 or 5 years ago(can't even remember date of the onset of this traumatic disease).
At that time I presented with the classic bulls eye rash and symptoms, my regular doc tested (positive) me and put me on antibiotics.
I got sicker, after three weeks I was sent to a cardiologist who said I had a normal EKG...but prescribed additional 2 or 3 more weeks of medicine.
After that course even though I wasn't completely better my doc said we caught it in time and I no longer needed medicine.
I never did regain my old self.
Today I regret not seeking out a specialist, support, or going with my gut instinct.
I allowed my doctor to treat my lyme like a common cold, today I suffer for it (lyme. CFS, FM, ????).
On the bright side I no longer have that doctor and I am fighting back demanding to be listened to.
I recently changed primary doc again because she continued to say I was just "depressed" and couldn't have lyme again because I didn't have a "rash",
she wasn't even opened to the idea that I could still be suffering from that first tick bite. She did however order another lyme test.
No surprise I tested positive, the western bloc also had many poitives but I was told (by my new doc) that on the last four areas I only tested positive for one so I don't have lyme???
I will be getting copies of test and my old test and taking them to a new doctor.
Thanks to everyone who gave me LLMD's yesterday.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
Hi CathyMary,
I am sorry you have gone through so much needless suffering. Most of us on this forum have had similar experiences unfortunately.
This is a good place to visit. There are many well-educated, informed people here who share their profound knowledge and support.
Best of luck to you.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Welcome!
Glad you are here, but at the same time, wish you didn't have to be.
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