posted
I continue to research my condition in my spare time. I am actually using links from the CDC website, I am assuming they are intended to back up their noncommittal views of this disease.
What is interesting is that these links lead to other articles that I am not sure reflect their intended purpose.
I have made some interesting observations.
Relapse is accepted but limited. Almost all research accepts relapse up to 60 days based on clinical observation, not laboratory testing. Relapse is denied after 60 days based on the lack of any proof of laboratory findings.
My understanding is that finding the bacteria hiding in human tissue would require multiple, invasive procedures to biopsy tissues.
An autopsy may be the only way to prove a persistent infection.
Interestingly enough I found a study done on animals that showed the animals that were treated for 60 days and had persistent symptoms after a 60 day treatment were shown to still have bacteria present when tissues where gathered and examined during the autopsy.
What I am finding is that there is little common sense being applied to the treatment of the disease.
It looks like a battle of egos, where the argument has become more important than the patient.
I believe that many doctors out there in the trenches dealing day to day with the suffering are left to wade like myself through the studies and literature and come to their own conclusions about treatment of patients that repeatedly relapse.
One thing was clear they are not getting much support from the literature when faced with a relapsing patient.
In fact most of what I read claims that all relapses after the magical 60 day grace period are in the mind of the patient.
I am of course venting again about what I am finding to the reality of what unfortunately happened to me one day while working in the garden back in March.
My life has been changed forever.
Posts: 36 | From Dallas GA | Registered: Jun 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic