from Pat Smith, President, Lyme Disease Association, Inc. (LDA)
In This Issue Action Needed Sample Phone Blurb Thanks To All
MAKE THE LYME PATIENT VOICE HEARD IN DC
In the last call to action, you were asked to contact the US House Appropriations Committee. That campaign was hugely successful and resulted in the committee reporting out Lyme disease language to the full house. (Click here to see LDA press release.)
Now you must do the same for the US Senate. Please call ASAP (July 21st thru July 27th). *****************************************
The same appropriation language has been submitted to the US Senate Subcommittee on Labor, HHS, & Education (of Senate Appropriations Committee)
* Directing the Secretary of Health and Human Services (HHS) to create a Tick-Borne Diseases Advisory Committee
* Calling upon NIH to convene a scientific workshop to review all scientific perspectives on Lyme disease
* Directing CDC to develop improved and more comprehensive diagnostic tools for Lyme.
ACTION FOR YOU TO TAKE *********************************
1. Click here to see the list of US Senate members on the Senate Appropriation Committee.
2. If there is NOT a Member of Appropriations Committee from your state, stop here. You do not need to do anything today, thanks ****************************************************
3. If there is a Member of Appropriations Committee from your state, call him/her.
4. If you cannot call, at least email. Calling is preferred.
5. Ask for support for the language as stated below in the Sample Blurb
SAMPLE BLURB Senator,
Please support language in the Fiscal 2010 Labor, HHS & Education Subcommittee directing the Secretary of Health to create a Tick-Borne Diseases Advisory Committee, asking for an NIH conference on all perspectives of Lyme, and directing CDC to develop new tests for Lyme. Thank you.
Name Address Phone
THANKS TO ALL
The LDA thanks all of you for your cooperation in state efforts such as the physician protection bill in Connecticut and the federal efforts.
Working together, we have made and can continue to make a difference for Lyme patients everywhere.
Photo 1: Pat Smith, LDA President, Jodi Rell, CT Governor and Emily Bragg, TFL Board Member at the Lyme doctor protection bill signing ceremony in Brookfield CT, June 16.
Congressman Smith and Pat SmithPhoto 2: LDA president Pat Smith with Congressman Chris Smith in his office after a meeting about Lyme disease issues including HR 1179, Lyme & Tick-Borne Diseases Prevention, Research & Education Act 2009, a bill which will provide monies for better tests and education on Lyme disease.
See the homepage of www.LymeDiseaseAssociation.org for current pictures and blurbs on other recent state and federal meetings.
Please click here for more information on the federal Lyme and tick-borne diseases bill.
POLITICAL ACTION: Time to the call Senate Appropriations Committee
The last call to action from Pat Smith at the Lyme Disease Association was highly successful. You were asked to contact members of the US House Appropriations Committee. Great results--the appropriations bill that came out of committee had lots of good things for the Lyme community. (Details here.)
Now, it's time to do to call the Senate side. The same appropriation language has been submitted to the Senate Appropriations Committee:
Directing the Secretary of Health and Human Services (HHS) to create a Tick-Borne Diseases Advisory Committee
Calling upon NIH to convene a scientific workshop to review all scientific perspectives on Lyme disease
Directing CDC to develop improved and more comprehensive diagnostic tools for Lyme. What we need you to do:
Click here to see the list of US Senate members on the Senate Appropriation Committee.
If there is NOT a Member of Appropriations Committee from your state, stop here. You do not need to do anything today, thanks
If there is a Member of Appropriations Committee from your state, call him/her.
If you cannot call, at least email. Calling is preferred.
Ask for support for the language as stated below in the sample message.
Sample message:
Senator,
Please support language in the Fiscal 2010 Labor, HHS & Education Subcommittee directing the Secretary of Health to create a Tick-Borne Diseases Advisory Committee, asking for an NIH conference on all perspectives of Lyme, and directing CDC to develop new tests for Lyme.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/