posted
I understand this girl completely. It is so sad, I hate seeing kids being diagnosed with this. It is such a waste that I lost so much time on this diagnosis when I actually had lyme.
And, you tell friends and family, I am tired, I have chronic fatigue and really no one cares. You are dying, no limbs are falling off, but still, we are sick!!
Shalome
Posts: 893 | From Florida | Registered: Dec 2008
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bettyg
Unregistered
posted
my reply there ...
Have you been tested for chronic Lyme/TICK disease? Have you ever had a bullseye rash or have an EMBEDDED TICK?
If yes, please join www.lymenet.org discussion board! I have info galore to share with you on being tested by a western blot igm/igg blood test sent to Calif., USA.
Have you been check for worm parasites?
I've read all your stories here; they sounded like mine too. I was misdiagnosed with so many illnesses/symptoms; over 125!
I've had CHRONIC LYME disease for 40 yrs. this xmas! 34.5 years MISDIAGNOSED by 40-50 drs! UNACCEPTABLE.
300 other diseases mimic lyme: CFS, fibro, ALS, MS, parkinson's, alzheimer's/dementia, bell's pulsy, most mental illnesses.
part 1 of 2
part 2 of 2
Many others mentioned the things I would have: Detox,
Are you allergic to gluten/wheat or casein/DAIRY products? If yes, to eliminate them completely from diet.
Treating for worms that take over the body.
I was 21 and diagnosed with mono/EBV back then CFS/FIBRO.
I also have sleep apnea and use a CPAP to sleep. My sleep study showed I get NO DELTA 4 sleep where your body rejuvenates/heels while you sleep; I know this has gone on 30-35 years with no delta 4 sleep.
I believed all my drs. over the years; then I got much worse and started doing my own resarch investigations! Glad I did.
Oral/IV antibiotics are needed plus herbs/supplements to help get you into remission.
Moms can have CONGENITAL lyme babies!
I hope moderators delete Damion/MEXICO's nasty post. There was 1 other one too.
If you can get ahold of this, have your library order the UNDER OUR SKIN DVD, 104 minutes of 4 people's lyme stories, the politics involved by IDSA, infectious disease society vs. ILADS, intl. lyme associated disease aka chronic lyme literate mds!! My best to you in getting into remission.
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Tincup
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