Topic: Prayer request: complications, work, ins difficulties **Update**
sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Would you all please pray for me?
I've been very stressed lately and it's really starting to take a toll on me physically and emotionally.
Besides dealing with Lyme and Co, i've recently developed a hernia that is causing me pain and contributing to my GI problems.
I've also been dealing with a stubborn yeast infection under my PICC dressing. LLMD called in some Nystatin powder and a couple Diflucan tabs but it is not improving. I'm out of the Diflucan and cannot get in to see my local doctor.
My work has also been incredibly stressful. We are more short staffed than ever. Now we are having to deal with the Pandemic flu and we are just not prepared.
I am seriously considering looking for another job because I cannot deal with the stress anymore. I also feel like I will be risking my life by being so highly exposed to this flu. Being young and immune compromised makes it highly likely that I would develop complications if I were to become infected.
I've also filed an appeal for my ins company to pay for my first 3mo of IV therapy. Still waiting on the decision. I've been paying out of pocket ever since and praying that they will decide in my favor and reimburse me for these past couple months also. If they do not pay I will owe a huge amount of money.
All of these concerns are weighing me down. I feel so tired. And i'm more emotional that usual.
Thank you all for listening and caring. I know that you are the only ones that can understand what it's like to be sick and have to deal with all this. I know that your lives are complicated and stressful too.
I greatly appreciate all your kind thoughts and prayers
[ 09-10-2009, 09:15 PM: Message edited by: sammy ]
Posts: 5237 | From here | Registered: Nov 2007
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bettyg
Unregistered
posted
sammy, may God put his arms around you comforting you and providing guidance with your overwhelming life right now.
may he carry you during your deepest, darkest days/nights...
go to TREEPATROL'S NEWBIE LINKS, MEDICAL, and look for TIMACA'S letter she wrote insurance companies and WAS REIMBURSED MANY THOUSANDS OF $$$$ for her meds!!!
being timed at library; got to quit; hang in there; praying for you... xoxoxo
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< Sammy >>>>>,
Prayers going up dear one, for less stress and more and more healing...and that a better less stressful job will open up!!!
Check out the info and suggestions Betty posted, she and many others here are so helpful,and have learned thru many experinces.
Just Silverwolfi...lifting you up to Creator !
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Sammy,
I will pray for you...I feel for you. I know nurses can be so overwhelmed anyway with staffing issues and doctor's with 'tudes' anyway...but being sick on top of it and worrying because your insurance won't pay!
By the way....I know of a lawyer near Columbus, Ohio who told me that he has represented patinets with Lyme Disease whose insurance company wouldn't pay for treatment. If you would need the number, just pm me and I will send it to you!
Try to relax and know that God is in control (easier said than done...I've been carrying a weight on my shoulders for awhile now, and I'm slowly learning to turn it over to the Almighty).
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
sammy,
I am praying that you find the strength you need to deal with all of those issues in your life.
I am praying that God will lift your burdens and guide you down the path to healing.
Big hugs to you!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Thank you bettyg, Silverwolf, Ocean, and Dekrator.
I cannot even begin to tell you how much your kind thoughts and hugs and prayers have encouraged me.
Thank you for reminding me that God is in control. I know this in my head but sometimes I need to believe it more in my heart.
It is so easy to let the little worries slip in. Then all of a sudden my heart is consumed with burdens and fears that are not mine to hold.
I've got a lot of thinking and praying to do.
Thank you all for lifting me up. You are true friends Posts: 5237 | From here | Registered: Nov 2007
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Prayers coming your way.
Hang in there. God has already planned it all out.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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bettyg
Unregistered
posted
sammy, so happy our words comforted you during your time of need hugs/kisses
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posted
Sammy, my prayers are with you. I know what stress can do to you--let alone having to cope with Lyme's, a hernia, etc. I'm just starting Lyme treatment, too--although we think I've had it 20 years. I'm just trying to make it through one day at a time. I know that someday we will know the reason why God has challenged us with this illness. I know that having been ill for all this years, I have developed a lot more empathy and compassion for what others are going through. Blessings to you, and know that I'm praying for you.
-------------------- THE PRESENT (author unknown): **Yesterday is history. Tomorrow is a mystery. Today is God's gift...that is why we call it the Present.** Posts: 13 | From Twin Cities | Registered: Jun 2009
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Thank you Geneal, bettyg, and kitteagirl.
I've been searching for jobs and trying to update my resume over these past couple days. It is all so exciting and scary at the same time.
I really do feel like it is time for me to move on in my career but I don't know if i'm quite ready physically. This is something that I also need to talk with my doctor about at my f/u this coming fri.
I still have a PICC line and that limits my physical activities. It may severely limit my job prospects. We'll have to see. All I can do right now is prepare myself, put my resume out there and give it a try. If it is God's will for me, He will lead me and land me the job that I need.
I'm also really struggling with the actual update/rewriting of my resume. I've been looking at samples online, trying to use the tips provided at various sites. Writing, composing my thoughts, and expressing myself is all so much harder for me than it used to be. I still really struggle with cognitive dysfunction and it is showing now.
Thank you all so much for your prayerful support. You are true friends Posts: 5237 | From here | Registered: Nov 2007
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posted
Sammy...all my prayers and thoughts go out to you b/c I've been exactly where you are. It got so bad, I took a leave from work, but have to go back soon.
I hope you get to the bottom of your picc problem. Are they sure it's a yeast infection, and not an allergy to something?
I got my picc Fri, and hoping I can tolerate the rocephin with no problems. I need this to work!!
Will be praying and thinking of you.
Posts: 847 | From upstateNY | Registered: Dec 2007
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bettyg
Unregistered
posted
sammmy, best wishes on the resumes hugs/kisses
i just checked your job; i was hoping you might be able to get a LESS STRESSFUL one; don't think so in your area of expertise.
sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Update 9/10/09
I saw my LLMD on Fri and unfortunately i've not been progressing as we expected. The fatigue has been worse this month and i've had some neuro symptoms (tremors, black-outs, etc) return that had pretty much disappeared over the past couple months.
We have been treating Lyme and Co's aggressively with combination IV and orals for awhile now so I should be steadily getting better not worse. My doctor suggested that I take a medical leave of absence from work. Apparently it was obvious to him that i've been pushing myself too hard at work, that the physical and mental stress may be holding me back in my recovery.
I was shocked when he suggested this because I love to work. I know it sounds crazy but it's true. I am tired of the poor conditions/environment/position that I have now but I love the field that I am in. I love working with people. I love helping people. There's just nothing like it.
So even though I would like to look for another job I cannot imagine taking a leave of absence from this one. And yet this is what I know that I need to do. I know that the job is physically harming me/holding me back but it is so hard to give it up.
I spent the whole weekend trying to come up with alternatives to the whole leave of absence thing, cutting my hours, etc. In the end I knew that it wouldn't work because as soon as I get my foot in that door I know i'm not going to get out on time and I am going to get extra work dumped on me even if a lighter workload was agreed upon.
So, in tears, I called my boss on tues and told her that I needed to take a medical leave of absence. This was one of the hardest things i've ever done. I know it is only a month for now but just giving up the income and that last little bit of normalcy really hurts.
I am concerned about the financial impact of this decision but I know in my heart that it was the right thing to do. Again, I must learn to put my trust in God knowing that He will provide for all of my needs.
Posts: 5237 | From here | Registered: Nov 2007
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bettyg
Unregistered
posted
hi sammy,
i felt this was coming but it doesn't make it any easier. my late sister was dying of breast cancer and told she couldn't go backto work. it was the hardest thing in her life as she gave up the job she loved too.
go to top of support i believe and read the post about financial post and needing things when you don't have money for this or that; perhaps those things might give you some things to look into during the loss of your income. my best to you.....hugs/kisses
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