I want to change the way the world perceives Lyme disease.
The biggest problems Lyme patients face aren't the physical ailments themselves, though those are major.
Instead, it's "vision problems"--in the medical arena, the insurance system, the media and society at large.
For complex reasons succinctly described in the book Cure Unknown and the film Under Our Skin, people suffering from Lyme disease are basically kicked to the curb by the medical/industrial complex and left there to make it--or not--on their own.
It's akin to the early days of the AIDS epidemic, where very sick people found they had to fight their illness on two completely different fronts--the personal and the political.
That's where Lyme disease is now. Anyone who has Lyme themselves or is closely connected to someone who has it, finds themselves thrust into a highly charged political atmosphere.
Most of us didn't choose activism. Activism chose us.
On October 22, the day before the LDA/ILADS conferences in Washington DC, CALDA is sponsoring a day-long workshop called the Lyme Action Program.
Even if you're not coming to the LDA/ILADS conferences, if there's any way you can swing it, I hope you'll join us.
It's a chance to hear from leaders in the Lyme movement: those who spearheaded the sequence of actions which resulted in last summer's historic IDSA Lyme hearing, those shepherding Lyme legislation through Congress, those focusing on the special needs of children with Lyme disease.
It's a chance to meet with activists from all over the country (some experienced hands, some brand new to the game), exchange ideas, and forge a renewed sense of shared purpose.
Click here for registration information for the Lyme Action Program:
And whether you join us or not, I invite you to contemplate these questions: what's your Lyme mission statement? And what are you going to do about it?
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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