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» LymeNet Flash » Questions and Discussion » General Support » Is anyone going to the ILADS / LDA conference this year?

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Author Topic: Is anyone going to the ILADS / LDA conference this year?
Melanie Reber
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Oct 23, Friday - LDA
Oct 24-25, Saturday and Sunday - ILADS

Gaylord National Hotel & Conference Center
National Harbor, Maryland


http://www.lymediseaseassociation.org/Conference2009.html

http://www.ilads.org/lyme_programs/lyme_events.html

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Tincup
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It's possible... but ONLY if they have ice cream.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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kam
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Possibly next year...hopefully.
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Tincup
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Anyone else planning to go?

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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Melanie Reber
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That sounds so charming Miss OP! Really looking forward to meeting you... and getting even more 'happy'.
And, Dr TC, if you play your cards just right... I bet I could make some room in my Bicillin bag for a frozen treat. [Wink]

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Geneal
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My LLMD is presenting this year!

I wish I could.

Hugs,

Geneal

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Melanie Reber
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Hey Sugar,
I wish you could as well. But, rumor has it that we may be seeing you soon thereafter?! [Wink]

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Pinelady
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I would love to. But I will hope for next year.

Speaking of ice-cream- I had the best I ever ate

at the state fair. It was a peach. Among many other flavors. The vendor gave

you a huge serving. If anyone wants to serve it up

I can find vendor. I think I kept their card.

It was Ehrlers.

[ 09-05-2009, 09:29 PM: Message edited by: Pinelady ]

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

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Tincup
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What? Ice cream for BREAKFAST?

What a world we live in where we CAN do that!

And peach sounds soooooooooo well, peachy keen!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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lou4656
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I had thought about going. At least for some of it.

But after looking at the links above, it seems that the conference is geared towards medical professionals.

So I'm not sure now.

--------------------
LouLou

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Melanie Reber
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Hi Lou,

Yes, they are geared more toward medical professionals, however the general public is welcome (adults only).

I know it is a big expense when so many of us are struggling to even pay for meds. But in my opinion, it is an amazing opportunity.

The big draw for me... is to spend time with so many others that I have come to know over the years, to hear what is new on the TBD medical front, and to feel as if I am actively participating in one of the very few events surrounding something that has consumed most of my life for decades.

Plus DC in the fall is supposed to be pretty nice! [Smile]

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lou4656
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Thanks Melanie!

Luckily, I wouldn't have big expenses because I am not that far from DC.

And it is pretty nice in the fall. [Smile]

--------------------
LouLou

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SoSublyme
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I hope to go...and yes, Old Town is a wonderful place to visit and hang out in.

Should I go on the ILADs site to register?

Tincup, I will treat you to a double-dip (with sprinkles) if I make it!

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Melanie Reber
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Good morning SoSublyme (great name BTW),

Yes, you can register directly on the two sites. Both link to PayPal for the fees, but I found out yesterday, at least with the ILADS site, that I was able to register without paying just yet anyway.


*** NOTE ***

In addition to the three days, there will also be a one day CALDA workshop on Thursday for TBD patients and advocates. The details are still being worked through, but it looks promising. ")

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SoSublyme
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Thank you, Melanie...I will check it out right away.
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Tincup
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"Tincup, I will treat you to a double-dip (with sprinkles) if I make it!"

Mirror, mirror on the wall,

Who is the fairest of them all?

SO SUB is!!!

And I'm looking forward to seeing you, sprinkles or not!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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Melanie Reber
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Here is the information for the CALDA portion of the conferences:

...........

EVENT: Lyme Action Program at October conferences in DC

For the second year in a row, CALDA is sponsoring a day-long workshop for activists in connection with the annual Lyme conferences. It will take place October 22, the day before the LDA/ILADS meetings.


Westin National Harbor
171 Waterfront Street
Oxon Hill, MD 20745
301-567-3999

2 blocks from the Gaylord National Hotel (location of LDA/ILADS)

$57 per person before October 8, 2009
$65 per person after October 8, 2009

Size is limited so sign up early to ensure a seat!


For more information and direct links, see:
http://www.lymedisease.org/news/lyme_disease_events/203.html

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Tincup
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I hear the CADA thing is suppose to be really good too!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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just don
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here is my offer,,,i will buy you taffy ,,,but you have to come pick it up

--------------------
just don

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Melanie Reber
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Well now, this is shaping up to be quite the reunion! Hope you can make a few events Miss D... (believe it or not) I would LOVE to meet you. [Wink]
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Melanie Reber
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Lovely! Just so you know, in advance... I like my drinks with salt AND umbrellas!
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MADDOG
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Howdy,Melanie post then TC,then TC and then Melanie,WOW

The beautiful foxes are all on this linc.

Sorry Don I can't say you are a beautiful fox,you hansom devil.

HE HE HE HE HE !!!!!!!!!!!!!!

AAAAAOOOOOOOOOOOOOO!!!!!

MADDOG

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seekhelp
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How does everyone function well enough to get to these things with Lyme? [Smile] I can only dream.

I can't drive 3 miles or walk a block without suffering. [Frown] I hope someday to be at a better functioning level.

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Melanie Reber
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You will get there Seek. It takes patience and persistence, but it happens.

I can't speak for others, but I was at a place too where I could no longer leave the house... was told I could no longer live alone. Driving was too confusing, and most certainly too dangerous for myself and anyone else on the road around me.

The unrelenting pain felt unbearable... but it eventually subsided and other skills eventually returned or were relearned as well. I use to run 5 miles daily and have unlimited enerygy. Now, I too get exhausted after a block or so... and pay dearly for any attempts at exertion.

However... things are much better for me now, and they will be for you too. Keep dreaming! [Wink]

Good morning MADDOG! Wish we were driving through your part of the world in November. Know that constant thoughts and prayers have been flowing your way.

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Tincup
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Maddog..

We DO love you!

[Big Grin]

Just Don...

I'd travel across country for your candy ... but ONLY if I get to see you too!

[Big Grin]

And dill pickle...

Cabana boys?

Ooooouuuuuuuu laaaaaaa laaaaaaa!!!

``````````````````````````````````````````````

Wow. How did this post turn out to be about men, men and more men.

This is ALMOST as good as ice cream!

[lol]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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trishee
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Would love to go but I'm back on IV to push back symptoms and don't think my body will make the trip. Remission has been great but I need to learn to manage it.
So much good information there but will hope next year will be my year to attend!

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SoSublyme
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Well, I finally registered for the conference. I wanted to wait to see if I felt well enough to make it. (I'm still pretty couch-bound.)

I'll probably only be able to make the afternoon sessions on Sat and Sun. I'll keep my eye out for other lymenetters. (I'm not really sure how, though!)

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kam
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Looking forward to reports from today's event: CALDA and tomorrows event LDA and of course ILADS.

Yahoo!

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Robin123
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Sorry to read this, Dilly - hopefully someone can fill you in. You should go to the rest of the conference, if you can. It's a great experience.
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bettyg
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dilly,

melanie can't get on lymenet; see post by steve white telling about the situation saying melanie is banned??

she can't do anything with her pm box, etc or post!

i'll pm you her home email...

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imagine2
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Is anyone videotaping the conference this year. In the past, videos of the speakers were available for $50. So extremely important for those who couldn't be there.
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kam
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SoSubLyme....

Some things that have helped me are my reclining power chair and my reclining camp chair...Lafuma...but Walmart has a copy cat chair for much less.

Problem with the reclining camp chair is that I can't recline in it for more than 30 min and someone needs to carry it for me.

I use to lie on the floor before I had these tools of the trade. Ouch.

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Ariel1
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Hello all,
Hubby just surprised me today by registering me for ILADs so I will be there tomorrow and Sunday. Hope I get to meet some of you all!

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daisyrlb
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After the "family reunion" please post what it was like to see each other, meet each other and also what you did.

Of course share about the Conference too.

Have fun and safe trip back home.

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bettyg
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ariel, what a special hubby you have!!

yes, report back on your 1st experience, and who from lymenet did you meet? lol [Smile]

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Ariel1
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Hello all,

The first day of ILADs was fantastic!

Got to listen to some of the greatest LLMDs present including and ask them questions on the side.

I also got to meet Mandy from the film "Under Our Skin". Can't believe how healthy she looks especially after seeing her in the film.

Good patient turn out!

I went around introducing myself and asking some folks if they are on Lymenet but unfortunately did not come across anyone from here [Frown]

All in all worth it for the info you get and the interaction with doctors and fellow patients.

Was a long 12-hour day today!

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smileynot
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Is there anywhere on these Lyme blogs where we can read about how the conferences went, the breakdown of the day, what was accomplished, who spoke, were their controversies, .. were there heated discussions, .. do any non lyme literate Dr.'s show up and try to muscle in.. or do they ask questions and act concerned at all??? I would love to know EVERYTHING that happened and what was learned. And is there any hope that these Dr.'s can offer to us.....will we ever get better and have our lives back?!?!?!
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kam
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Ariel...thanks for the report. So glad you were able to be there.

Smileynot..I did read somewhere about the percentage of people who have "normal" lives after being treated by a LLMD.

I can't recall what that percentage was but it was high and the odds were very good.

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Pinelady
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Guys if you get any links to the days events would you please start a thread for them. Thanks so much.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

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Ariel1
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Hi all,

I'll try to post more info about the ILADs conference I attended when I get a little more time to spend on here.

There was so much info!

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bettyg
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please post ALL REPORTS/SUMMARIES on tincup's post in medical forum....
**************************

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/87230

ariel, can you copy your 1st post about this over to tincup;s post? big thanks! [Smile] hugs

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