kam
Honored Contributor (10K+ posts)
Member # 3410
posted
The body is doing that thing when it is just tooo weak to handle things...will not go into details.
but, need the symptoms to stop and to get my strength back.
need some quiet, uninterrupted time to do this also.
And need the strength to get rosie out to toilet with out the body doing that thing it is doing.
Some sleep would be good too and to be able to hold down some applesauce.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Praying for you kam!!!
May you find the strength you need to take care of rosie.
May you find rest and peace to heal.
May you have improved health, lessening symptoms and the ability to eat.
Wishing you better days ahead. Keep the faith.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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sending you hugs and prayers that this will past soon. Kindly, barb
Posts: 167 | From USA | Registered: Jul 2008
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Thanks. things look a bit better. But, I have not tried to get up and get in the kitchen to get some applesauce.
I was able to take Rosie out before sunrise so she can toilet but came back and the symptoms started back up.
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
Boy Kam you have been having a heck of a hard time.... I'm glad you came on and posted to let us know how you are doing....
that's good that you were able to get Rosie out....
rest and know that we are all here for you....thinking of you...praying for you...
let us know how your day is going...
mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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posted
Kam, so sorry you're having such a hard time!
Is there anyone you can call in times like this, so you're at least able to eat?
I'm concerned about you . . .
-------------------- Take care -kelly --------------- Posts: 330 | From TX | Registered: Mar 2009
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Thanks for the support. It makes all the difference in the world to know we are not alone with this.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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bettyg
Unregistered
posted
kam
praying for you kam that you can get everything you stated above and your body will cooperate with you to accomplish what is needed.
may god rest his hand upon you and give you peace and stamina to make it thru this soon.
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Able to take a much needed shower this am.
I really needed the shower chair but didn't think of it until it was too late.
It did remind me that I am doing better as when I first moved here I needed the shower chair all the time.
Now, I just need it once and a while.
It also amazes me that when we go through rough times how the time element gets scued. (sp?)
I think all the times we have been there before get added on and it seems like so much longer than what it really is.
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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merrygirl
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posted
thinking of you
Posts: 3905 | From USA | Registered: May 2007
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bettyg
Unregistered
posted
hugs to you my friend and glad you were able to take your shower without your special chair .. you're building endurance in your body. xox
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Thanks. Able to hold food down yesterday. Hoping to continue to do so today and continue to get back to "lyme normal"
I have had these times before...thinking it is from over tasking the body but not sure.
I have the inflamed brain and things are coming out both ends at the same time....not a pretty picture.
Guessing others go through this too.
Getting depends at the store as soon as I can as last time I got so weak I could no longer get out of bed or even call for help or lean over to use the trash can next to the bed.
Not that any one would have been able to help and moving me would have made things worse.
Scary ****...literally!
Glad it did not get that bad this time.
Able to get Rosie out to toilet via the reclining power chair 3 times yesterday.
She is really going to be ready to kick up her heels off leash once I get strong enough to drive her someplace again.
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Pinelady
Frequent Contributor (5K+ posts)
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posted
Prayers. Hope you are better soon.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Me too. Thanks.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
Kam, you are such a trooper. the courage it takes for us to live a day and take care of our beloveds. amazing. this has been one hell of a teaching, but we know what we are made of.
take care, my friend. basha and i will send rosie pretty pictures. aliyah
Posts: 830 | From Colorado | Registered: Mar 2005
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posted
kam, So, so sorry you've had such a rough time again, but I'm glad to hear you're improving. You, and others here, have been such an inspiration. Take care and keep on getting better.
And for Rosie: Posts: 4638 | From South Carolina | Registered: Mar 2001
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
thanks cbb and aliyalex....i know others are dealing with much more.
i was finally able to call the power chair repair guy today so I could get the indoor power chair up and running again.
he said he would return with a new meter. he got wrong 4 wrong readings on something and figured it was his meter and not the power chair system.
MOstly just extreme weakness now.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Damn...down again. Doing Ok until the new housekeeper called twice...very verbal person..I don't do verbal.
Closed door and told her she needed to stop talking to me.
She has opened door 3 times now asking questions.
I have a list for her...but she is not an independent worker.
She is one who needs verbally communicate.
Brain is tasked and close to the throwing up and have all ready had the loose stools.
Thankful I at least have the depends if needed. HOpefully I will not need them.
She will be out of here in 30 more minutes.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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When my brother was going through chemo for his 3rd bout with cancer, the housekeeper was vacuuming. He went over, jerked the cord out of the socket and said "You ARE through, aren't you?" She meekly said "I am now."
Since it's been more than 30 minutes, I hope you're feeling better. It does help to know the cleaning was done.
Rosie's a smart dog. Maybe she could learn to clean?
Posts: 4638 | From South Carolina | Registered: Mar 2001
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
cbb....i tried putting the laundry in this am and couldn't do it.
service dogs can be trained to take the laundry out of the dryer but that has got to take awhile....
There have been times, I have considered training Rosie to do this on my lower functioning times but have yet to do it.
i was wishing this am that I could teach her to put the laundry in the washer this am. HA!
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I couldnt do anything today either Kam. It stinks.
I also forgot all my am meds and now paying for it. what a dummy I am.
thinking of you, melissa
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tickled1
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Member # 14257
posted
I understand what you're going through kam. I really needed to get to the grocery store today but just not possible. I'm also counting down the minutes till it's time to get my daughter to music class hoping I make some kind of miraculous turn around today so that I can bring her. It also happens to be a make up class due to one that we missed.
I guess I shouldn't complain as you sound like you're in a worse place than I am right now but I certainly have been where you are and hope to never slide back that far again. I was just crying and my poor 3 yr. old was comforting me. She shouldn't have to do that and I hate what my stupid disease does to her.
Really really hope you get stronger soon! Even though I still have bad days, I am much much much better than I was. Just having a bad day. I was where you are though and have made progress. Posts: 2541 | From Northeast | Registered: Jan 2008
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tickled1
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posted
I understand what you're going through kam. I really needed to get to the grocery store today but just not possible. I'm also counting down the minutes till it's time to get my daughter to music class hoping I make some kind of miraculous turn around today so that I can bring her. It also happens to be a make up class due to one that we missed.
I guess I shouldn't complain as you sound like you're in a worse place than I am right now but I certainly have been where you are and hope to never slide back that far again. I was just crying and my poor 3 yr. old was comforting me. She shouldn't have to do that and I hate what my stupid disease does to her.
Really really hope you get stronger soon! Even though I still have bad days, I am much much much better than I was. Just having a bad day. I was where you are though and have made progress. Posts: 2541 | From Northeast | Registered: Jan 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
kam, i am truly sorry you are going through all this.
wish i could come and clean for ya! i'm really quiet!!!
please if there is something you need, would you let me know?
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Thanks randibear.
Laura...were you able to take your daughter to music class??
I stayed down all day but got my strength back tonight and was able to walk from apartment front doors to car and then be on my feet for 5 min at a paved path, rest and walk back.
Good to finally be able to get out of the house. It was an hour outing est...i think it has been a week without my strength.
I too ma doing better than in the past. I would not have been able to take Rosie out in the reclining power chair to toilet in the past without throwing up and feeling nauseaou and out of it.
Just very, very weak this time. Amazing how these symptoms keep changing.
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posted
Hope you feel much better very soon, kam!! VERY soon!!
Is your chair still broken??
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
The power chair is still broke. I got a few phone calls today but no one left a message.
I wasn't not up to being on the phone.
But, would assume if it was the repair man he would have left a message.
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tickled1
Frequent Contributor (1K+ posts)
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posted
Glad to hear you got out today for a bit. Interesting how you said you got some strength back tonight.
I feel my best in the evenings and was able to take my daughter to class. I'm so glad b/c I hate when she misses out on stuff b/c of me which is often.
It's like I have crashing episodes. I felt like I was going to pass out all day and I'm scared to take my daughter out when I'm like that. If I ever think there's any question whether I can take her out safely we stay home. My cell is also on me at all times and my husband knows he is to always be available to answer his phone in case I need him.
Anyway, this isn't about me. Hope things turn around for you very soon and stay turned around. You are in my prayers.
Posts: 2541 | From Northeast | Registered: Jan 2008
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posted
I'm always amazed at what service dogs can learn to do, but I didn't know they could help with laundry.
I'm so glad you're feeling somewhat stronger tonight. I hope you'll be even stronger tomorrow.
You and my Lyme Buddies are always in my prayers.
Posts: 4638 | From South Carolina | Registered: Mar 2001
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Laura...when I am "lyme normal" I can do simple things until about 9 or 10 am and then again after 4 or 5 ish.
Glad you were able to take your daughter to class. Amazing now what brings us joy.
It is tricky keeping ourselves and others out of harms way.
cbb...pretty cool. Rosie was not trained but is tuned into my brain...not the weakness in my body or the pain..
..but when the brain is going she will stop in her tracks and refuse to walk along side of me in the power chair.
I have pretty much learned my limits now so she doesn't do this very often now.
I know to call to get myself into a store and ask someone to call the tram if I am too far from home or if close know to get myself back home..in order to keep both Rosie and I out of harms way.
My brain use to just go somewhere. It was strange.
Then I would find myself in the middle of the street and wonder how I got there...or down the road several blocks and not recall being present those several blocks....
Able to empty the dishes out of the dishwasher this am. Resting now and then will see about breakfast.
I think I am getting back to "lyme normal".
Part of the set back is due to my mom's death last Wednesday or early Thursday morning.
We were not close but it still hurts. She is being buried tomorrow. I will go to the grave site when I am stronger.
I even have had some good memories of my mom start to pop in my head. Most of the memories of my mom are not good.
My health has been slowly going down hill since spring thought. Thought it was due to the heat of summer. But, it is colder now and I still have not gotten back to where I was...which was being able to go for morning walks for 5, 10 or 15 min in the quiet forest.
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aklnwlf
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Member # 5960
posted
Oh, Kamie!
Didn't know you were feeling so badly. Sent up a prayer for you and hope you get to feeling better real soon.
Joann
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6145 | From Columbus, GA | Registered: Jul 2004
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Thanks Joann. I am improving and I was able to get out last night and do my 5 min, rest and then 5 min back to the car.
That makes life so much more doable.
Hoping I will be able to do that tomorrow. Today is out.
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