So glad you came. It was great to finally meet you! I wish we could have talked more. I missed talking to some of the other Lymenet members too. Questions & answers just went too quickly. I had hoped to get a chance to have members identify themselves - so sorry that didn't happen. We'll all have to plan a reunion! I loved the lady who shared her story of her LD and Dr. B's "pioneer" treatment days. She, and others shared so much information. I'm not sure if you were still there when Jenny announced she would bring OUS back for another showing on April 17th - prime tick time. Maybe others on the forum will be able to attend, and those who have already seen the film can meet afterwards?
Posts: 42 | From Ohio | Registered: Oct 2002
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MADDOG
Frequent Contributor (1K+ posts)
Member # 18
posted
Hi KatieBugsMom It was good to meet you.
The older lady was an old friend I had not seen for years.
She even lost her marrage over her lyme,her husband was a airforce doctor as well as one of her children and he didn't back her up,nor did her son back her up.
She was an attourny and lost her ability to remember court stuf so she allso lost her job.
But she is now full of fight.
I had to leave ,i was exhausted, and still had to stop at my dentist house in yellow springs and still get home (before dark).
I turn in to a ware wolf after dark OH no!! AAAAAOOOOOOOOOOOOOOOOOOO!!!!!
Actually i am blind when cars come at me with their headlamps burning holes through the back of my head.
MADDOG
Posts: 3996 | From Ohio | Registered: Oct 2000
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
I wanted to go so badly but I had some setbacks this week and was unable to attend either showing.
Were there a good number of people that seemed unaware of Lyme? Or was the turnout mainly people already affected by Lyme?
Maybe i'll get to make it to the April showing. I really wanted to be able to meet you all there!
Posts: 5237 | From here | Registered: Nov 2007
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posted
MADDOG -what a sad story about your friend. I guess the typical reaction/nonsuppport dates back to the beginning of lyme. What is it about lyme that makes people shut their eyes to it? Geez, how horrible that she had family members that were doctors, and they refused to back her. How that must have made her feel. Yes, she certainly is full of fight. I thought she was the hightlight of the evening!
Sammy - So sorry you weren't able to come - especially since you weren't feeling well. I'll post an announcement when the April show gets closer,and try to private message all that attended, or wanted to attend this time. I tried to take a head count, and am guessing there were about 70 people there. Altho there seemed to be many who had LD, or knew someone with LD, I think there were many who didn't, by their questions.
I met a lady from Yellow Springs with LD at Thusday's show, and she wants to send personal invitations to all the local physicians. Would be great if even a handful came to see it, wouldn't it?
Posts: 42 | From Ohio | Registered: Oct 2002
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Personally inviting local physicians is a great idea. It would also be a good idea to somehow post invitations and information at Wright State University's med school. WSU is only about 20min from Yellow Springs.
Posts: 5237 | From here | Registered: Nov 2007
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posted
Hi! I was there I was the one talking about my whole family (including kids having it) except husband.
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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I am concidering coming back in April. It's a 4 hr drive for me so I have to stay the night.
I got to meet a very good lyme friend. She wasn't able to attend but after the showing I went to her house.
So it was a great experience for me! I was also happy to see Valerie. The doctor that diagnosed my boys when no one else would test them.
Thank you to whomever invited her! She is wonderful
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
Wow! Congratulations on this excellent event!
At the April showing, maybe you could pass a sheet for people to register names and phones or e-mail addresses so you could keep this great set of people in touch with each other or get a support group or activist group going.
I hope some of the people I contacted about it with my L-d E-list were there. Wish I could have been....
MADDOG
Frequent Contributor (1K+ posts)
Member # 18
posted
Hi Gang
I would like to have a support group in this area.
WE need each other.I am 60 miles south but am willing to goto a yellow springs support group.
I am shure that there would be a place to get donated to meet in yellow springs.
Summers ok winters would be hard to get there.
MADDOG
Posts: 3996 | From Ohio | Registered: Oct 2000
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I really wanted to come to Yellow Springs. It sounded like a nice place to go do a nice day outing and meet some lyme people. I really would of liked to meet the one and only Maddog.
This weekend I ordered my own copy of Under Our Skin. Thought it would be cheaper than making the trip.
Now how to spread this dvd with family and friends to educate them?
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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MADDOG
Frequent Contributor (1K+ posts)
Member # 18
posted
Hi Map113
I had under our skin on video.good thing as i cryed every time I watched it.
I only lost a few tears at the yellow spring thing,no one saw me so i am good to go.
What a tragedy we live every day.
MADDOG
Posts: 3996 | From Ohio | Registered: Oct 2000
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I have the movie too and had seen it 2 times before going. I tried not to cry again but during the last 1/2 hour the tears just kept flowing down my face. Especially when I see the kids and think of my kids with lyme and can relate!
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I received my copy of Under Our Skin in the mail Monday. I've yet to open it and watch it. Something just keeps pulling me away.
I keep moving it closer to the TV. I want to watch it by myself then sit my husband and daughter down to watch it with me. But????
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
MADDOG I think there will be some interest in forming a support group.
I agree - summer months and longer days (not so much night driving) would be better for support group meetings. Maybe we could get map1131 and others to venture out in better weather.
I didn't realize you came from 60 miles away - for some reason was thinking you were more Dayton-based.
There should have been a prize for those who came the longest distances! I know we had some from Youngstown & Cleveland too. Amazing.
I got to talk to Amy C, and just a "hello" to you and sixgoofykids. Wish there had been more time to talk to everyone.
Posts: 42 | From Ohio | Registered: Oct 2002
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posted
I was there, I was the one with all the kids, LOL! Black sweater, blonde hair.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
I would be interested if there was a support group in the Dayton/yellow springs area. I live farther south but it would be worth the drive.
Posts: 5237 | From here | Registered: Nov 2007
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posted
I was the one who came from Youngstown. Would love to start a support group here. I have tried to contact a few people from NE Ohio on here but they haven't responded.
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Katie and others in southern Ohio, maybe after we get our Louisville/Southern IN group going(March 13th) we can meet half between Louisville and Dayton area? Good idea.
Now the Under Our Skin DVD has been here almost 5 days and it's still not viewed. I keep telling myself I don't feel like crying today.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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