posted
The following post is from Phyllis Mervine of CALDA:
Do you have friends or relatives in Connecticut? Do they know about Lyme disease?
We need their signatures on our petition to urge the CT attorney general to enforce the settlement agreement against the IDSA. IDSA has violated the voting process stipulated in the settlement agreement and concluded that the guidelines don't need to be revised. The IDSA guidelines deny antibiotics to people with chronic Lyme disease.
Please send your friends and relatives who live in Connecticut to http://www.lymedisease.org/news/lymepolicywonk/426.html to sign the petition asking the AG to enforce the terms of the settlement and make the IDSA redo the vote. Our ability to obtain treatment depends on the success of this petition.
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Posts: 819 | From New York, NY | Registered: Oct 2001
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hi folks, You don't live in Connecticut. You don't know anyone who lives in CT.
But you probably know someone who knows someone who lives in CT. (As a matter of fact, I think Kevin Bacon lives in CT. But that's beside the point.)
As you know, the Kevin Bacon game is supposed to show that everybody is connected via six degrees of separation.
So please send the following to everybody you know:
Dear friends, I'm writing to ask for your help getting the signatures of Connecticut residents for a petition that will not only save many Lyme disease patients, but has the potential to help everybody get better medical treatment. www.lymealert.org
It is a major step toward keeping commercial interests from controlling the medical guidelines that can determine how your doctor treats you.
This petition is addressed to Attorney Blumenthal of Connecticut so we want to gather ONLY the names of his constituents - i.e., ALL residents of CT. Please help me get as many signatures as I can. If you don't live in CT or know someone who does, please just send this out to all your friends.
The Six Degrees of Separation principle will get this petition to Connecticut residents soon enough. This issue is extremely urgent, so the more outreach we do the better.
posted
I hope everybody realizes that the guidelines we are trying to have thrown out say there is no such thing as chronic Lyme disease and that you can't be treated unless you have a positive test.
That means you will not get more than 4 weeks of antibiotics and that is only if you test positive for Lyme.
So please get everyone you know in CT to sign the petition at www.lymealert.org to urge AG Blumenthal to bring the IDSA to court so that we can get rid of these dangerous guidelines. Ellen
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Posts: 819 | From New York, NY | Registered: Oct 2001
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Ellen is so right! This is crucial, and we are down to the wire here.
People have been posting here on Lymenet that Medco is refusing to fill even their ORAL abx rx's!!! So, they are clearly emboldened by the IDSA's shenanigans on their behalf.
No one can fight this but us---and all our friends, relatives, and their friends and relatives, etc.
Posts: 3771 | From around | Registered: Mar 2008
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