Sometimes you need to hear that there is light at the end of the tunnel out there for us Lyme victims.
Or at least, somebody is paying the guy who turns it on.
I have been on treatment for just over a year. I was diagnosed early, under one year of being bitten and the last year has been shall we say interesting.
I ran the gamut of symptoms, rashes, memory loss, neuritis, arthralgia, fever and toxic sun reaction to doxycycline ( I couldn't even stand in a window and have sun touch me ).
Yesterday I went to the doctor and he asked me how I was feeling after being on high dose Augmentin for over one month.
I told him in all honesty, I felt better on the Augmentin than I did on the Doxy.
I had a week of settling in, with the usual mild herxing that was only maybe 5% of what I had been experiencing, and each subsequent episode was milder than the last.
The BIG difference that I noticed is that I feel about 95% my old self. My energy levels were better, although I still tire a little easier than I did pre-Lyme.
I still have some neuralgia twinges at times but I also have a history of Shingles so I know that there are some things you just have to live with and cope with.
I have treated myself with a combination of conventional and herbal treatments.
I have used ABTs along with the usual witch's brew of herbs.
I can honestly contribute my recovery to using both in conjunction with one another and being persistent with my treatment.
It hasn't been easy.
My hands are scarred from the toxic sun reaction I had in late March.
I feel at times as though I have ran a marathon that has lasted a year.
BUT! Have faith everyone. You CAN feel better.
I know I have a ways to go yet,but my doctor has given me the okay to taper down my Augmentin to a maintenance dose when I feel confident.
The big thing is that I found a tick on me two weeks ago. I think the dogs dragged it in after being treated with Frontline.
I went to bed without it, woke up with it attached to my belly.
I carefully detached it, cleaned the area, took a bolus of Doxy and went about life as normal.
Doctor asked me if I had any new rashes afterwords. I told him nope.
Hang in there everyone. There is life after LYME.
I may not be cured, but I'm hoping for a long, HEALTHY remission.
At this point, I am NOT a LYME VICTIM!
I am a LYME SURVIVOR!!!
-------------------- Why don't they make Front Line for humans? Think about it! Posts: 78 | From North Eastern Missouri | Registered: Oct 2009
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Thanks for the encouraging post!!!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6159 | From Columbus, GA | Registered: Jul 2004
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WildCondor
Unregistered
posted
Of course there is hope, you will all get better, just keep fighting this and it will happen.
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Good news.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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I too had a tick experience this weekend, nearly a year after getting ill. I figure that I was so full of antibodies to all the icky ticky diseases that maybe I would give IT a disease! HAH!
So glad that you are better!
Posts: 283 | From where the ticks are! | Registered: Oct 2009
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daisyrlb
Frequent Contributor (1K+ posts)
Member # 15686
posted
Thanks for sharing Nemo!!!!
In 2003 when I found that tick on me I had the pleasure of squishing it to death (right before the bulls-eye rash developed).
OK, back to serious.
Nemo, I am so rejoicing with you!!! What great news!!!
We are not Lyme Victims We are Lyme Survivors and I like to add one more We are LYFE SURVIVORS.
Keep us updated with more good reports. Thanks!
PS: I am on Dr. J's (KS) protocol and his protocol calls for continuing treatment just for two more months after symptoms are gone.
Posts: 2188 | From Oklahoma | Registered: May 2008
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posted
"PS: I am on Dr. J's (KS) protocol and his protocol calls for continuing treatment just for two more months after symptoms are gone."
Yeah, we are following Dr.B's protocol which is why I'm not too anxious to cut back too soon on my ABTS.
Last year, I was lucky enough to get H1N1 and they had to interrupt my treatment in order to treat me for that.
I had to go on Cipro and unfortunately, steroids for a short period of time, (no choice, my lungs were inflamed from asthmatic bronchitis from the H1N1 and I could hardly breathe).
Within 5 days of stopping all the meds for H1N1, my Lyme symptoms came back with a vengeance, including the rash.
It was the first time the rash appeared that my doctor saw it.
It made a true believer out of him.
It also made a believer out of me as far as ending treatment too soon is concerned.
On a lighter note.
I was in the vets office the other day and posed my question of why don't they make frontline for humans?
He got thoughtful and admitted, he didn't know, but if they did he would use it.
He said he has to go out into a lot of pastures to treat cattle/horses/whatever and had a ritual he did before he set foot in tall grass.
He duct taped his pants at the ankle and his shirts at the wrists.
He sprayed Deep Woods Off around his neck and hairline because it seemed whatever ticks found him,accessed his skin via that route.
And took a shower as soon as he got home to check for interlopers.
He confessed that he still found a tick or two on him at times, usually at his hairline and maybe he needed to start duct taping his neck as well.
As long as he didn't strangle himself in the process.
-------------------- Why don't they make Front Line for humans? Think about it! Posts: 78 | From North Eastern Missouri | Registered: Oct 2009
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