sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
I'm more not here on LN than I am here. Even when here I can't seem to follow a storyline longer than a day or two, and am terrible at replying.
And, I'm sure I'm not the only one with those limitations. So, I'm keeping this one hello thread in one place going, and hoping for company here.
dilly
[ 05-28-2010, 11:22 PM: Message edited by: sometimesdilly ]
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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just don
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posted
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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Elaine
Posts: 671 | From Fort Myers, Florida | Registered: Jun 2009
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Hi Dilly,
I stop by to read the posts but don't usually have much to say.
Hoping for better days ahead for all of us.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
Hi Dilly! Just keep on checking us out. We all have ups and downs. But we are always here if you need us.
I,too, go for days without getting out of bed or doing anything at all. Most discouraging.
PM me if you need help for anything!
Farraday
-------------------- DOCTOR: "I don't think you are sick." PATIENT: "We are all entitled to our opinions. I don't think you are a doctor." Posts: 697 | From Northern California | Registered: Jul 2009
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Hi Dilly.
Ugh, the low pressure system is doing a number on me today.
Sorry, I'm not very cheerful when I feel like ****.
Carol
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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posted
Hello, everyone! Great idea for a post...so we can just check in with each other, even if we don't have much to say!I have been absent lately, because I am on a new forum....this time, for diverticulitis! For the past month, that has been my new focus. Hate it! But I do still read posts here every few days or so.
Posts: 283 | From where the ticks are! | Registered: Oct 2009
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Hi Dilly!
I'm kinda new here. Just hangin' out.
Lyme x20 years. Diagnosed x2 years. Pluggin' away...
If you're in the mood for some dark humor, I added a few of the most annoying pieces of advice I've ever received to the thread "Get a new bag" here in General Support.
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Boxer Mom...wondered what was under the subject line of Getting a new bag
Hello Dilly and others.
Nice to recline or lie here next to your fire. Sugar free hot chocolate anyone?
Love the smell of wood burning in the fireplace and the sound.
I am getting ready to move to the handicap apartment down the hall.
Moving the first of the month. Doing what I can when I can to pack.
maintenance man here at the apartments will be moving me.
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MDW005
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posted
I brought the popcorn, anyone have a good movie? It's raining today thought I would sit for a bit. thankyou Kam for the rain dance.
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Diane...you are welcome. Blind Side might be coming in the mail today via netflix.
We could watch that....don't be surprised if I doze off.
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
its totally nice to see that y'all are keeping the fire going and even bringing movies and popcorn. gotta love it.
hope your move goes well, Kam.
Hi Boxer! dark humor is my favorite flavor, so if i remember, I'll go check out your bag.
Carol- you are always delightful, gal, even when you're not at your perkiest. hope things are getting better, at least for the moment.
more logs for the fire.. i love the smell and sound and warmth of wood burning....
dill .
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Carol...how are you doing?? Do you need marshmellows to roast over the fire??
do you need to get a bit closer to the fire...chilly..or are you too hot
(these marshmellows are lyme friendly)
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MDW005
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posted
I love sitting around the warm fire with family.
Kam, pass me a marshmellow...please.
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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kam
Honored Contributor (10K+ posts)
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posted
I watched part of Blind Side last night. Feel asleep so hoping to watch the rest of it today.
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Tincup
Honored Contributor (10K+ posts)
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posted
What about the cow in your spare bedroom Dilly? Is she ready to make some ice cream for all of us?
PS. I am not into cabanna boys right now ... but then, the sun hasn't gone down for the day... yet.
MDW005
Frequent Contributor (1K+ posts)
Member # 22706
posted
Popping a seat for a moment to let everyone know that I have had a wonderful day with my family outdoors.
Hi Dilly!
Diane
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
Diane-- wonderful days with family are one of the greatest gifts of all. I'm happy for you...
I'm going to be all the way gone for the next week. A major change in fortunes has given me a chance to escape by myself to the mountains and deserts of Arizona and NM. The quiet I find there has been the best medicine I've had in these past years.
Better yet, what our great news means is that we can afford to have me go back into treatment, after a year of simply not having the money to do that.
so, see y'all in awhile, and enjoy the fire.
dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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posted
Yay, Dilly - sending a pm - Robin
Posts: 13117 | From San Francisco | Registered: May 2006
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Dilly, I am in AZ If you are in the neighborhood drop on in.
Good to hear the good news.
May be moving this week nor the weekend down the hall.
Been kind of out of it lately. Days are running together.
Will take the last of the amoxy today. Not sure how to get more at this point.
Doing what I can when I can towards packing. HOping I will be able to get on the kitchen floor and pack the lower shelves today and under the sink. That is a big tricky for me physically.
Housekeeper is coming tomorrow so she can change the bedding, empty the dishwasher, do the laundry, help me put the laundry away from 2 to 3 weeks ago.
thankful I have help with the actually moving part and the cleaning of both apartments will be taken care of.
Able to clean out the clutter in the glove box of the car and put my binder with registration and insurance card in.
First time since the car was donated to me in 2007.
MOst likely will add what ever was in the glove compartment to a junk box to be sorted out later.
Able to do little things here and there that were normal things before this hit.
Time to take Rosie out to toilet now via the power chair. Most likely will take her out via my pJ's and a coat as moving about to get dressed is not working yet this am.
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MDW005
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posted
putting another log on the fire and awaiting Dilly's return.
Hey, when the cats away do we party?
Diane
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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kam
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posted
LOL...Let me get my walker first and put my teeth in. Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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MDW005
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posted
you are too funny Kam.
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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sometimesdilly
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posted
i'm baack.
let's ditch the fire concept, ok? it is so HOT here.
Arizona where i was never reached higher than 70 degrees, and it actually snowed 3 days out of the 7 i was there. felt nice.
best times of the trip:
--i almost stepped on a 2 foot long gila monster!! EEK!!!!!! and WOW!!!
--saw herds of elk...
---whole mountain sides covered with yellow and orange and pink and white spring desert flowers
---driving for hours on roads stretching forever with beautiful scenery everywhere and not seeing another car or another soul for those hours.
--taking short walks in ponderosa pine forests, along spring-melt crystal clear streams, in cracked-dry desert sands, in snow-covered alpine meadows with snow falling--- completely alone in every place, wind and trees rustling and bird calls the only sounds, ever, anywhere.
It was so peaceful; I could literally feel my nerves healing. The worst part of Lyme for me is not being able to tolerate more than one noise or thing happening at a time, which in a normal day means just about every hour of the day awake causes pain.
Looking now for a doc so that the everday is bearable again, but i am so grateful to have had the chance to heal myself for that week away...
speaking of docs-
please PM me, anyone, with suggestions for a great LLMD, on the East Coast (ideally, but not necessarily),
who uses abx as the core of treatment but who also knows about and can recommend supplemental stuff,
who has lots of experience and success treating long-term chronic Lyme and co's, and who may actually be accepting "new" patients...
thanks for any thoughts on this!
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
dilly...so glad you had such peaceful, pleasant times on your trip.
Warming up here. Supposed to be in the 80's this week.
so, yes...need to go with something like pool side or lake side or stream side meetings.
preferably with ice cream.
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MDW005
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-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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sometimesdilly
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posted
thanks, Diane.
to anyone hanging 'round....
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MDW005
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posted
Hi Dilly, I'm still hanging around.
Diane
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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MDW005
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posted
Where is everyone? I think Kam is still in the pool keeping cool and ate too much ice-cream and has a brain freeze Well, I am ready for that ice cream. I am ready for a cool swim... I have my polka dotted bikini,flippers and snorkle.
Diane
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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MADDOG
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posted
Howdy!!!!
MADDOG
Posts: 3997 | From Ohio | Registered: Oct 2000
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
2nd week of getting settled in the handicap unit down the hall.
Hoping I will be able to unpack, sort and organize the boxes in the den this week so I can get the computer and outdoor power chair in the den.
I also would like to pot some plants.
Good to hear from you Maddog...even it is just a howdy.
Diane..it is beginning to be ice cream time around here. We had a warm week, then it went back to being cold for a week and now looks like a warm week again.
So, anyone know of a dairy free, gluten free, sugar free ice cream??
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MDW005
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-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
hi....
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MDW005
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Member # 22706
posted
Dilly... there you are. Hi! missed you.
glad you came back around.
Diane
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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MDW005
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posted
Dilly, Hope you have a nice Memorial weekend.
Diane
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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![[hi]](graemlins/hi.gif)
dilly
![[group hug]](graemlins/grouphug.gif)
![[sleepy]](graemlins/sleepy.gif)
I brought the popcorn,![[Big Grin]](biggrin.gif)
![[lol]](graemlins/lol.gif)
![[Smile]](smile.gif)
you are too funny Kam.
Hi Dilly, I'm still hanging around.
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