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Author
Topic: Involentary movement.
Bob054
Member
Member # 26027
posted 06-02-2010 08:29 AM
Pams continues the rosepherin, starting with an oral today. Over did it on Memorial day (saturday), doc visit, bbq, the Ridgeview movie screening. She's much more fatiqued last 3 days, and "Lymes related narcolepsy" has returned. Her Involentary movements seem more pronounced also. (My Take) Her brain is signaling either her tounge or gums that she must repeatadly move her mooth to remove "debris"..Her left arm then raises up like she is sewing, streching, exercising, whiplashing her hand sometimes like shaking water off. Somtimes hand goes behind her head and she extends it so far, I think she will dislocate shoulder. She says she needs to to this to gain leverage in order for her toungue to clear the debris. Pam uses the computer, on the the jewelry sites to continuously scroll, seeing all the different colors to distract her, Knitting also helps. Hence she says its volentary although I see her doing it in her sleep, sometimes much more violantly and agressively. She also get extremely agitated if I ask her to stop, or adress the issue in any way. Yesterday I told the PA at the docs, and found that Pam had never mentioned it to them. Its probably the most pronounced sypmtom, but only when she's fatiqued, "spaced out", or not focused on any one thing. Parastesia? It began 4 years ago while on "Mepron" in fact the third day she began. Doc said never heard of mepron reaction, probably some kind of lyme symptom, and continued mepron for the month as the protocol required. Has anybody heard or expieranced this. Pam is looking for validation, as this was the "truama symptom" that caused all her docs at the time to say she was either delusional, hallucinating, or had Parkinsons, all of course except her Lymes doc, doc "H" at the time (NY). I'm leaning towards neuro symptom, that will clear when Roshepherin tx is done, and that its more pronounced now as rosherine is agitating that particular spiro. Thank you for any therory or expierances. Bobby ** edited to change region to state ** [ 06-02-2010, 09:25 PM: Message edited by: sixgoofykids ]
Posts: 24 | From Vermont | Registered: May 2010
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sixgoofykids
Moderator
Member # 11141
posted 06-02-2010 09:26 PM
Sorry, I don't really know .... maybe the constant mouth cleaning is OCD? What did the PA say? Moving to medical questions -------------------- sixgoofykids.blogspot.com
Posts: 13449 | From Ohio | Registered: Feb 2007
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