posted
How is everyone? my son's mother had her appt at this clinic and wanted to give an update......Here is what happened to us. My son's mother has had Lyme for over three years (all tests positive and EVERY single known symptom from chronic Lyme). We went there on Friday and *** Si*ver*la*t, M.D looks at all the positive tests results and of course says "these are false positive Western Blot test". The three major bands from CDC are all positive!!!! then as you can guess...."have you thought this is all in your head". This is obviously a ISDA friendly clinic which means its wothless. I am looking for anyone else's experience there. We will be damanding our money and time back from this scam facility! Thanks and sorry for the rant...Stressed as you all are also best wishes for all!!!
Posts: 7 | From Boston | Registered: Jan 2010
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posted
How terrible! Sorry you guys went through this.
If Lyme is so easily treated, according to the IDSA, why does it need it's own clinic? Something isn't right here! They are trying to lure those of us that know the truth in, and convert us to thier line of thinking, and then we will say, "well, I heard it at a clinic that specializes in Lyme so it must be true."
I hope everyone else will be seeing right through this! Thank you for the update.
Posts: 89 | From U.S. | Registered: Apr 2010
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posted
thats why i didnt go there last summer, i knew thats what was gonna happen. get ahold of Dr. D on the cape.
-------------------- 3 months Doxy 8 months of Tetra 7 months of Biaxin/Plaq. 4 months Doxy/Biaxin/Plaq. 5 months Biaxin/Plaq. Back on Doxy/Biax/Plaq On the road to recovery. Trying to make people Lyme Aware....... Posts: 289 | From R.I. | Registered: Jun 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- From a NPR interview summer 2009, about this clinic: ------------------
PBN: What led you to open this clinic at South County Hospital?
[Dr. S]: My major reason is that during the course of my infectious disease practice, I have seen many patients who have not received proper diagnosis for suspected Lyme disease and have been receiving inappropriate treatment.
The clinic is not for acute cases of Lyme disease, for example at the stage with the typical bullseye rash - that is readily handled by primary care providers. Rather we will see patients who have had symptoms for months and are not responding to therapy.
*** Many do not have Lyme disease and require re-evaluation and re-diagnosis so that they can receive proper treatment for what they do have. ****
. . .
PBN: How treatable is Lyme disease at different stages?
[Dr. S]: Lyme disease is very treatable during the early stages, and if adequately treated, the disease does not progress.
The early stages include the bullseye rash, joint pains, meningitis, Bell's palsy and nerve pains, among others. The later stage is manifested by chronic or recurrent swelling of large joints and central nervous system symptoms such as memory difficulties, chronic fatigue and problems with concentration and mental skills.
Treatment is usually successful with a two- to three-week course of doxycycline taken orally twice a day for the earlier stages. For the later stages, a one- to two-month course of intravenous ceftriaxone is recommended.
. . . - full interview at link above.
======================
Big Sigh. So much "information" that is so wrong. And NPR really failed to do their homework or to challenge him. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
We have called and called Dr D on the Cape and her Primary has called and called and left message after message for him to at least just return a phone call. No calls or replies back. This has been an awful experience and I feel she is honestly giving up on life due to this REAL disease.
Posts: 7 | From Boston | Registered: Jan 2010
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posted
well he can be difficult to get ahold of, i had to wait 2 months to see him but the staff has been more than helpful. just follow the steps for new patients. i know you have to send your lab results as well as a letter of your symptoms and how your feeling, but he is worth it, i truly owe him my life back thanks to him... good luck her.
-------------------- 3 months Doxy 8 months of Tetra 7 months of Biaxin/Plaq. 4 months Doxy/Biaxin/Plaq. 5 months Biaxin/Plaq. Back on Doxy/Biax/Plaq On the road to recovery. Trying to make people Lyme Aware....... Posts: 289 | From R.I. | Registered: Jun 2009
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
CKM, post in the seeking doctors section that you're looking for a good doctor. Dr. D is a good guy, but he doesn't treat a lot of the associated infections of Lyme Disease. He strictly treats only Lyme, and he does so -- at least for the first 3-4 years of treatment, with only two combinations. It's an ok place to start if they person has no other choice and no money, but co-infections need to be taken far more seriously by a physician who treats Lyme Disease.
I like Dr. D, but I left his practice in 2008. I'd been treating with him since 2002. I made some progress, but inspite of all my requests and questions, he refused to treat co-infections. He told me I was fine, and that his treatment would have resolved them.
They didn't. I tested positive in 2008 for Rocky Mountain, Lyme. Years of antibiotics, and Quest laboratories still finds Rocky Mountain? I was also infected with Babesia. It responded to Malarone, but again, he would not treat me. I had to see someone else.
Just a heads up incase you choose to see him. He makes a good local support since he backs patients on disability and he does sincerely care, but I wouldn't leave my entire case in his hands alone.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
If you are looking for a good LLMD in MA, the one I am currently seeing is very good. On my first visit I received a diagnosis, prescriptions for antibiotics and an even further interest into helping me beyond just what Lyme is, but also what Lyme does.
I wasn't just told I was going to get some antibiotics and that is it. I was told that this was going to be a treatment that required a multitude of steps. Rebuilding vital systems that have been taken down and seeing what may have developed after the fact, due to immune weakness.
It is a fact very few people stop to consider. Lyme is not the entire picture. It is the beginning of the fire, the match that starts the inferno, but can lead to many other issues and diseases that end up requiring their own forms of treatment.
I believe my doctor is open to treating co-infections as well and takes a concern for environmental factors in treatment along with all this.
Let me know if you'd like their info and I'd be happy to PM it to you.
Posts: 10 | From Western Massachusetts | Registered: Mar 2010
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best wishes for all!!!
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