posted
Sounds like you handled it VERY well!! Congrats!! And that's awesome that you got enough meds to carry you through!! (sorta!)
So is this a WB from Igenex.. or no such luck?? Keep in mind that it may still come back negative, since the other labs don't test for all possible bands.
Yes, Doryx is VERY expensive. I took it once and it was SOOO much better than doxy. BTW, Doxy IS the generic of Doryx.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Yes, That was the right decision. If it were me -- and I'm not telling you to do this -- I'd just double my dose on my antibiotic so I could take a nice chunk out of it. Or I'd increase by 50%, which would be 300mg instead of 200 daily.
Might as well kill some of the little *******s. But, you do what you feel is best until your LLMD appointment. I have no idea where you are symptoms wise.
Hope you feel better.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- If the blood draw was on Friday afternoon, it will be too old by the time the lab does the test. This is a big part of why there are so many negative tests.
Obviously, this is not going to Igenex so all the bands will not be tested and you may still need an Igenex test. I'd say wait to see how this one comes back but they've already messed up big time.
What lab is doing this and what is the location where it will be done? Was it shipped overnight express to be done as soon as received? You may not know until it's back.
Check dates between draw and test - and locations. Then verify that the lab AND the technician have certification for lyme testing. Not all do but it does not stop them.
Both IgG and IgM?
Did they ask about your abx use so they may know how to account for that in the test?
Still, a blood draw late in the week is never a good sign.
* You can call and have them stop that test and go back for a new blood draw early in the week and be sure the sample won't get old. That way, you won't be paying for a poor test. Your insurance company won't pay for another one, likely.
Even if the lab worked over the weekend, the shipping carrier may have your blood sample sitting on a truck in a locked yard until Monday morning.
Refer to Igenex' site for how they do shipping, etc. - - www.igenex.com
posted
Keebler, I have no idea about any of the things you asked. I was just going along with my PCP at this point. I will have another blood draw with my LLMD on July 30th. Not expecting anything miraculous from this one yesterday!
IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You may not be expecting anything miraculous but if the test is void from the get-go, and negative, it will be in your medical file and not even a glaring CDC positive at a later date will change that in their minds, especially if you've obtained it from an outside lab.
If you can, it would be good to check on this matter. If the blood is not fresh, you don't have a chance at a decent test. You will be paying for incompetence on many levels and it could affect you for a very long time. You deserve to have the test sample to be in the best shape possible. Even if the lab does not do everything correctly, there is still a better chance.
July 30 is also a friday. You might want to clarify with the office staff and see if they will be doing it or giving you an order for a local lab to draw your blood early that next week and send to Igenex with an Igenex kit. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
You should provide your PCP friend wiht Dr. B's Advanced Topics in LD and let her know it conflicts with the IDS guidelines.
On the WB we found it "impossible" to obtain the band readings when the negative came back. We had it done at a childrens hosipital who sent the blood to a Utah lab. The lab indicated we should request the band reading up front.
Good luck and yes this gets expensive fast. You want your PCP on your side to help with prescriptions, etc. just to save cost with the insurance company.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
I was thinking about this & wondering how the LLMD can get an accurate test reading since you've been on antibiotics. I know when I got my appointment, I was on the "standard dose" (100 mg 2x day). I was advised by the LLMD staff to cease it completely, so when I went to my appointment with them 2 weeks later, I'd be free & clear to get an accurate test. I don't have the test results yet (from Igenex), it's only been 6 days.
ON the other hand, though, I thought of doubling up on the dose I already had but decided against it after speaking to the LLMD office.
So it's up to you what to do...thank God you are going to the LLMD!!! You'll make it, friend. Don't give up!!!
By the way, are you having the Herxheimer reaction? I did on the first round I was given but so far have had no severe side effects.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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