posted
Ok, my PCP ran another Lyme test for me on Friday and requested the Western Blot. Of course I told her about using IGENEX but she is limited to the lab she has to use at her clinic. I didn't tell her that I was going to an LLMD for further testing!
Anyway, here is what her office told me about this last test.
She said that on one part of it I have ONE POSITIVE band (didn't say which) but that 3/5 were required for a "positive" result ...
also on the "other part" of the test, I also had ONE POSITIVE band but again, the requirements are for 2/3 to get a "positive" result ..
BUT "you and I" know the problem with this! I will wait and see what my IGENEX testing that was done yesterday will show!
Just wanted to share this with you all ... you did warn
IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- What Lab did the PCP use? This is really important to know what bands they used.
Did she put a copy of the test results in the mail to you? If not, you might call back and have the office manager do that today. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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quote:Originally posted by Keebler: - What Lab did the PCP use? This is really important to know what bands they used.
Did she put a copy of the test results in the mail to you? If not, you might call back and have the office manager do that today. -
I don't know what lab but they used Quest last time. I DID ask her to mail me a copy though! I was "on the ball" with that thanks to all the help from this forum!
Don't worry ... I had blood drawn at my LLMD's office yesterday and it's going to IGENEX!
posted
That doctor is quoting the surveillance criteria for CDC reporting, which CDC has said should not be used in a clinical situation (doctor's office) to deny a lyme diagnosis.
So, you are wasting your time with this doctor.
Also, regardless of what lab you use, the testing will not pick up all cases. I have said this to you before, but here it is again: do not put all your faith in testing.
Posts: 8430 | From Not available | Registered: Oct 2000
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quote:Originally posted by lou: That doctor is quoting the surveillance criteria for CDC reporting, which CDC has said should not be used in a clinical situation (doctor's office) to deny a lyme diagnosis.
So, you are wasting your time with this doctor.
Also, regardless of what lab you use, the testing will not pick up all cases. I have said this to you before, but here it is again: do not put all your faith in testing.
I do know this ... that is why I went to an LLMD yesterday and paid $260.00 to have new labs sent to IGENEX!
I do also realize that even then, that labs don't always tell the "whole story" but my LLMD has already started me on abx and supplements for Lyme!
Be sure to read whole thread. This is just an excerpt:
This is a quote from Dr. C's Western Blot Explanation (at top of Medical section).
[As your test was drawn on a Friday] this explains why the blood must be drawn on Monday, Tuesday, or Wednesday only:
"The right way to process the Western blot specimen means for the blood to be drawn and express mailed early in the week.
Research shows the borrelia antibodies have the potential to clump together, resulting in false negative test results. So far, unclumping has not been practical for laboratories to do.
The fresher the specimen, the more accurate the test results. Patients at our office are scheduled Monday, Tuesday, or Wednesday if testing is to be done.
This way, express shipping will assure that the specimen does not spend the weekend sitting at the post office. This is the right way to test and ship borreliosis specimens. ". . .
IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Igenex does test for 10 IgM (not 3 like other labs) and 10 IgG bands.
My result was still "negative" but with Igenex I had a few Positive and Indeterminite bands that were lyme specific.
You may still get a clue from your Igenex test even if it is Negative.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Dekrator, are you doing better now? I see a lot of posts but have no idea if you made good progress.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Was making progress with pain on doxy.
Had to go off for the summer and plan to get back on it asap!
I'm taking tetracycline and cefdinir now.
I am better than when I started...have a ways to go though.
Thanks for asking, seekhelp.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
TNKim: I'm glad to see you made to to your LLMD!!! Great news.....good luck! Be sure to guard against the 'yeastie beastie'. I'm fighting it now. Let me know how things go!
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Olive leaf extract (OLE) totally prevented systemic candida from even developing the last time I was on abx. Along with probiotics (timed away from both Rx and OLE). -
Posts: 48021 | From Tree House | Registered: Jul 2007
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onbam
Unregistered
posted
Commercial labs only look for the bands the CDC tells them to, which are the least common bands. The CDC does not want us to get treatment.
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