Topic: I would like to try to get Lyme and its controversy talked about on the Oprah show
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Maybe if we all write letters, they will consider it.
I'm sure they will get some ID docs to dismiss our cases but maybe we can get some LLMD's on there.
What do you guys think?
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- They tried that and it was a mild disaster. I admire Oprah in many ways but her format is simply not cut out to do a program like this justice and I think the political heat from a segment that would be adequately produced could destroy her health and ruin her last year of her program.
This past year, Oprah had the producers from the documentary "Under Our Skin" on with Dr. Oz - but he could not wrap his head around this and the program was inferior to what it could have been, mostly due to Dr. Oz's comments and the lack of ILADS people.
It also shared the program with MS and there was no mention that, often, MS is undiagnosed lyme.
A do wish FRONTLINE would look at this. But a recent program of theirs on vaccines was astonishingly full of errors. Usually, they are so good at presenting all the information but they really dropped the ball on that. Still, FRONTLINE is the best around.
I'd still like to see "Under Our Skin" take off even with a run on TV at prime time on a major network, with a panel discussion to follow with experts.
Oprah had an excellent series on bioidentical hormones for women's health this past year. I thought it was excellent. She had a balance of experts (and patients) but she was just blasted for that. Absolutely blasted.
For as talented and dedicated as Oprah is, controversy around this would cause a great deal of stress. She also may not have the staff to really pull this off. They do tend to call on Dr. Oz for all medical matters and he just doesn't get it - not really.
On one segment of his current program a couple months ago, Dr. Oz talked about lyme disease - for about 5 minutes. He did say it could be very serious if untreated but he totally failed to tell people that their PCPs know nothing about it, usually.
He also failed to discuss treatment length and the fact that there are other tick-borne infections that usually travel with lyme was totally omitted.
He had a couple errors about how long a tick needs to be attached, etc. So, while he did give few minutes to it to help with prevention, in no way was it all the information needed. He still sticks with the IDSA on this and can't imagine a short course of treatment is not enough. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Keebler- wow thanks for all that info
I think you are right. This is so unfortunate!
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
| IP: Logged |
posted
Good luck with that. Been here 10 yrs and it's been tried at least 5 or 6 times. Keebler said it well.
Maybe one day.
and I would say we shouldn't give up
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I have not seen her deal with MS< Myasthenia Gravis, Lupus, Chronic Fatigue, fibromalgia, etc. etc. etc.
When I first came down sick, I was given labels like MS Myasthenia Gravis, Al's, etc.
Learned from the organizations for these conditions that many people go years and to many doctor's seeking a dx and help too.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
| IP: Logged |
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Maybe if she gets Lyme she will. Though she has more money than the world and would buy the cure.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic