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» LymeNet Flash » Questions and Discussion » General Support » Positive for Lyme

   
Author Topic: Positive for Lyme
pripoli
Junior Member
Member # 23884

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According to the lab I am positive for IgM Western Blot, 31kda, 34 kda,41 kda. According to an organization and another sstate I am NEGATIVE?. The test also states this can be a false positive if you are infected with Epstein Bar Virus, among a few others. My PCP ran blood and I did test positive for EBV, just like I did years ago. This is confusing! Anyway we faxed the results to my Rheumatolgist, I s aw him once and he put me on Lyrica for the fibromyalgia, and he wanted to see the Lyme results, he has the Bartonella results, and told me I was at one time infected with Bart. Im seeing him in a week. Anyway my nutritionist told me to keep taking the 400 mg of Doxy, and as far as he is concerned I have Lyme too.

The Lyme IgG and full panel for Babesia came back negative, at least that's good.

Your thoughts are appreciated.
P

Posts: 9 | From NNJ | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-
What LAB?

IgM positive indicates chronic lyme. With symptoms ("fibromyalgia"), it's very telling information, indeed.

This is not likely a "false" positive for lyme. However, the negative for Babesia may not show the whole picture.

You are likely wasting your time by going back to the Rheumatologist. Don't give him the original test rests, only a copy. But, I would just not go back.

He is not well enough educated. He discounted bartonella and accepts the lame diagnosis of "fibromyalgia" and forced you to seek answers elsewhere. Why pay him for ignorance and another chance to derail you with his incompetence?

Find a Lyme Literate MD - an ILADS-educated LLMD. ASAP.
-

[ 08-29-2010, 07:54 PM: Message edited by: Keebler ]

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

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From previous posts of yours, you wrote:

(3 January, 2010) I have never re called seeing any rash or tic bites on my body. I am a 46 yo male. I was diagnosed with CFS, FMS 20 years ago. I also suffer from GAD, Panic Disorder, etc.

I was on SSRI's for years. Have been off of them and connot tolerate them. I take xanax as needed. Recently, my eyes have become sensitive to light, severe stiffness in neck and face,nausea, etc. I have had blood tests for Lyme, but negative. My concentration has diminished, have confused and foggy episodes.

----------

(20 July, 2010) BABESIA LABS: "My results for both were 1:16 and 1:20, right on the numbers on the test. suggested re test in 10 to 14 days. Has anyone had these readings?"

You wrote in another post: "I tested positive for Bartonella,"

All these pieces, together with symptoms and the lyme test would suggest there is nothing "false positive" about it. I hope you can find a good LLMD. I see you you have added to a thread in "Seeking a Doctor" but have not place one yourself.

I hope you find the top quality care you need. Good luck.
-

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Keebler
Honored Contributor (25K+ posts)
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www.canlyme.com/seronegreasons.html

(27) REASONS WHY A SERONEGATIVE TEST RESULT MIGHT OCCUR

======================

Dr C's Western Blot explanation is discussed here:

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042077#000000

and

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042077

" . . . But actually, more IgM blots are positive in chronic borreliosis than IgG. . . ."

======================

http://cassia.org/checklist.htm

Symptom checklist for lyme.

======================

http://www.angelfire.com/biz/romarkaraoke/whento.htm

When to Suspect Lyme - by 
John D. Bleiweiss, M.D.

=====================

http://www.canlyme.com/tom.html

The Complexities of Lyme Disease - A Microbiology Tutorial

- by Thomas M. Grier M.Sc.

=======================

www.thehumansideoflyme.net

The Human Side of Lyme

Deliberations of a psychiatrist who evaluates and possibly diagnoses Lyme and other tick-borne diseases of the mind, sharing case histories . . . .

========================

This explains WHY you need an ILADS doctor:

www.clinicaladvisor.com/Controversy-continues-to-fuel-the-Lyme-War/article/117160/

CONTROVERSY CONTINUES TO FUEL THE "LYME WAR"

=========================

www.ilads.org

ILADS - INTERNATIONAL LYME & ASSOCIATED DISEASES SOCIETY

================================

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Dr. Burrascano's Treatment Guidelines (2008) - 37 pages

Sections regarding self-care:

Go to page 27 for SUPPORTIVE THERAPY & the CERTAIN ABSOLUTE RULES

and also pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation.

----------

This is included in Burrascano's Guidelines, but you may want to be able to refer to it separately, too:

http://www.lymepa.org/Nutritional_Supplements.pdf

Nutritional Supplements in Disseminated Lyme Disease

==============================

This book, by an ILADS member LLMD, holds great information about treatments options and support measures:

http://tinyurl.com/6lq3pb (through Amazon)

THE LYME DISEASE SOLUTION (2008)

- by KSn, MD

You can read more about it here and see customer reviews.

Web site: www.lymedoctor.com

===========================

http://tinyurl.com/5crsjv

Cure Unknown: Inside the Lyme Epidemic (2008) - by Pamela Weintraub

This details what an entire family went through. Having this knowledge of their journey will help others to get better, faster treatment.

http://www.cureunknown.com

==========================

http://www.underourskin.com

Documentary: UNDER OUR SKIN

DVD can be obtained through the site - or maybe borrowed from local support groups.

===========================

http://wapedia.mobi/en/Lyme_disease_microbiology

From Marnie: a good "primer" (easy to understand) for newcomers.

============================

In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=069911#000000

TIMACA

I would encourage EVERY person who has received a lyme diagnosis to get the following tests.

- at link.

===========================

Find your local SUPPORT GROUP for help in finding a doctor, etc.

www.lymenet.org/SupportGroups/UnitedStates

====================

Post in: SEEKING A DOCTOR

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=forum;f=2

=====================

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=020605

MAKING THE MOST OF YOUR LLMD VISIT

======================

You can copy and paste this set of links to a working / research file on your desktop. These should help serve as the most basic reference links for you to get started.

Good luck & be sure to take really good care of yourself.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

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You said above: " . . . my nutritionist told me to keep taking the 400 mg of Doxy, and as far as he is concerned I have Lyme too. . . ."

So, who is actually prescribing the doxy? Do you have a LL doctor on board who can (or will) prescribe according to ILADS guidelines?

I hope your nutritionist instructed you to take PROBIOTICS and also good LIVER SUPPORT - and ADRENAL SUPPORT.

Has your nutritionist told you to take MAGNESIUM & a good FISH OIL ?

Is your nutritionist a member of ILADS, perhaps? That would be so good. But you need someone who is LL and can prescribe things that the nutritionist cannot. And, you also will need a LL nutritionist so I do hope the one you have will still work out for you - or find another (or a LL ND - naturopathic doctor).
-

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Lymetoo
Moderator
Member # 743

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Moving to Medical Questions where you will get more help and information!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94761 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

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