posted
What do you mean by flare up?? A herx? or a relapse?
If Lyme is ADEQUATELY TREATED there will be no future problems.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Well, I was trying to piece this together but am too confused and tired to make this fit.
I might have misinterpreted your question to ask why you are in a flare if you thought lyme was treated.
I see, after trying to figure out your path, that you may be asking a theoretical question - to know if you can be well after treatment.
If treatment is thorough, it is possible.
If you have been told that you've been treated adequately, according to your history, that would not be the case.
According to your posts, it appears as if you only began treatment on September 8, a few weeks ago. And with just one antibiotic at a time (doxy or zith).
Is this true? But, then, on Sept. 21, it looks like you had a change of Rx. That was just 2 days ago.
If so, lyme has not been treated adequately, especially as you were ill for months. You'd be looking at at least 6 months of combination treatment with support supplements and then - treat 2 months PAST symptom clearance.
======================================
on September 11, you posted:
Please help, I need a Doctor who is Lyme literate.
I have alot of pain for months and even worse since starting Doxy 3 days ago.
-------------------- Fatigue, dizzy head and jaw pain since July 2010.
Igg neg/ Igm pos 23/41 KD reactive
doxy per day Sept 8 - 20 Azithromicin current
(fflutterby )
=====================
You posted on September 21 that you just saw your LLMD for the first time and
" . . . He took me off the Doxy 200 mg per day. He replaced that with azithromicin 500 mg per day. . . ."
(fflutterby ) -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
It's very important to have this book as a reference tool for self-care and support measures. It answers so many questions in detail that is impossible here on the forum.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
This explains WHY you need an ILADS-educated doctor (even if they vary treatment to each individual, they know the science of the spirochete: -------------------
Documentary: UNDER OUR SKIN (you can purchase for $35 at the site or see if you local lyme support group has a copy to lend.)
While not everyone featured in the film survives, may do get better. While this film is poignant, it's also very important to help understand many of the key issues with treatment.
The bonus footage shows some stunning Success Stories.
In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:
I would encourage EVERY person who has received a lyme diagnosis to get the following tests.
- at link. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
I have been sick since last week of July 2010.
This is my first time being treated, I know it will take months. I have only seen my LLMD once. He says that I should expect to get better each month.
I am just beginning treatment. I guess I am hoping that since I went this route and found an LLMD. Since I didn't listen to "other people" telling me "3 wks of Doxy and you will be good to go."
I am 80% functioning right now, other than late afternoon fatigue, headaches and anxiety. I just was wondering if it is possible.
Looking for light and hope
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Oh, I'm so glad to hear that the question was theoretical and not some doctor telling you that you should have been all well by now.
It's an excellent sign that you are 80% better now. That is very good news, indeed.
So, yes, it is possible. Be sure to rest in the afternoon. You may want to explore adrenal support.
Does your LLMD have you on
liver support,
adrenal support and
magnesium? -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
I am taking mostly everything on Dr. B.s basic supplement list except NT Factor. I also ran out of alpha lipoic acid and I need to get more.
Plus Liver essentials and Kidney essentials from Swanson.
I don't have the best of the best, money is a big issue for me right now. I need adrenal support. I was told will discuss more at the next visit in Oct.
He ran the blood test for co-infections and we will know by next week.
I am very very tired and my head hurts. I think I over did it, whew....
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
| IP: Logged |
onbam
Unregistered
posted
Yes. Some appear to get cured early on, particularly if they treat more aggressively than the IDSA recommends, which is with the utterly useless doxy dose of 200 mg/day for the far-too-short period of a month. It has been speculated that the IDSA's treatment may even make new infections worse in some cases, in fact, by promoting drug-resistance and abrogating the initial immune response.
The fact that the authorities recommend inadequate prophylaxis says to me everything that needs to be known about official handling of Lyme.
IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic