-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
| IP: Logged |
cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Oh, this is so sad, and so heartbreaking.
My thoughts are with her family and friends.
It is a tragedy.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
| IP: Logged |
posted
I am so deeply sorry for the loss of their daughter. It really brings it home how devastating this disease can be. My prayers are with the parents and family left behind.
We know Lindsay is without pain, and her parents will meet her again one day, but the bottom line is that she was taken out of this world before her time. It isn't God's will for young people to die ---- my heart goes out to everyone.
Posts: 256 | From Texas | Registered: Jun 2010
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
This is terribly sad. I feel so bad for her family to have suffered the loss of two daughters. I will keep them in my thoughts and prayers and also pray for other children that are suffering.
If it is Ellie K, I read some of her posts and now I am in tears. What a sweet sweet person and even capable of mocking her misery. She described herself in convulsions as "doing the fish on the floor for at least an hour". There is no doubt that she is in a better place.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
posted
That is so sad.....dont know what to say .....so will just say my thoughts are with this family......
-------------------- Oct 09 Positive CDC Western Blot Jan 10 Positive Babesia Duncani Jan 10 Cd57 28 Mar 10 EBV, IgM, IgG HHV-6 IgG Posts: 739 | From NC | Registered: Oct 2009
| IP: Logged |
posted
I'm so sad. She was so young.. God be with her family at this trying time. She is with our Lord having no pain.....
Posts: 871 | From orange county, ca. | Registered: Jan 2006
| IP: Logged |
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
This is unbearably sad.
Thomasx I would guess the most common COD's in Lyme
is Blood Clot or Arrhythmia's.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
another young one lost.
it's sad that they cannot get treatment or diagnosed early enough.
i feel the medical profession is partly responsible for this.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
posted
What a tragedy. And you can just tell she was a beautifully spirited person. Intended on doing public interest law.
What can we say. It makes me sad and mad. But I guess this is not the time to indict every person (doctor, gov. official, insurer, researcher, etc.) that has contributed to the Lyme controversy costing us our health.
I hope she rests in peace and her family can find some type of comfort.
Maybe we can keep her memory in mind as we fight on. I am so sad I feel like crying. But somehow we have to fight on for her and for us.
Posts: 107 | From maryland | Registered: Feb 2007
| IP: Logged |
heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
hey everyone. Lindsay was indeed Ellie K. she hadn't been on lymenet in a couple years but was an active member here in 2007-ish.
i am devastated over this. love to her family and friends, and to all of you.
posted
Thoughts and prayers to the family. Lindsay/Ellie was a brave spirited young lady.
May she rest in peace with her sister.
I can't imagine how devastating this loss must be for her parents. Let's pray especially for them during this difficult time.
And let's keep Lindsay and her family in our hearts and minds as we fight our own battles against these dds.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
| IP: Logged |
Just read the post she made about muscle rigors -- sounds so much like hubby in the past this scares me.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
| IP: Logged |
cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Just realized this was EllieK... Oh, I am so, so sad.
Sending prayers and comforting thoughts to her loved ones.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
| IP: Logged |
But his honestly scared the living S#$% out of me!!!
I'm only 31 and was diagnosed with Lyme and babesia in Oct 2009. And I've already went through SEVERE liver failure. I have a 3 year old daughter and I'm scared for my life sometimes. I have a great LLMD but I need more. I think I should start attending the Lyme Support group.
Posts: 151 | From california | Registered: Dec 2009
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Lyme (or any tick-borne infection) can be fatal, yes. And, even with the best care, not everyone makes it.
Of course, it's clear that the dismal level of medical awareness and that around tick-borne infections is at a criminal level in the U.S. Doctors fail patients every day. The LLMDs are the warriors here and they are under fire for their courageous attempts.
Lyme patients, themselves, are relegated by the medical profession as the lowest of the low. Yes, indeed, no one should ever have to die from lack of treatment - or from delayed treatment. But it happens every day.
Still, with the passing of Lindsay - of anyone - honoring that person will lift us all up to a better place. Focusing on the courage, the joy and the love that propelled her will help us hold on and continue on.
Honoring Lindsay will also help us to fortify ourselves in the best ways we can while not sweating the small stuff or getting overly frightened. We all have to face our own mortality sometime. We take a look at that and move on to be proactive.
Knowledge should never paralyze. It should empower.
And, true, even the best LLMD can't do it all. Treating TBD is a true commitment with everything we eat, drink, do, and even think. While false cheer is never good, we do have to embrace a healing attitude. It's never a guarantee but, still, a far better experience when we can hold onto some cheer.
In memory of Lindsay, let love shine. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
quote:Originally posted by thomasx: How do people die from Lyme? It doesn't seem terribly common.
Not to be incompassionate towards Lindsay, but does anyone ever wonder the opposite?
While it may not be likely that it will kill me, I literally feel like I am fighting for my life every day. Is this abnormal?
Lyme/CFIDS.
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- It's far more common than we know. Far more common. Still, for those getting treatment - or treatment in time - most seem to survive.
I think what kday seems to be asking (?) is how it is that we can feel as if we could die most of the time but we still trudge on.
How is that? Because parasites do not want to destroy their host.
But, over time or in the wrong circumstances, it's the toxic overload from the parasitic spirochetes (and other infections) that triggers the end. The body can take only so much poison and so much organ damage.
We have so much to learn but, as we stand where we are, proceeding in a manner of healthful habits is the best we can do. We can only do the best we can do. Where there is any available energy beyond what we need for self-care, we can try to make this better, easier, for others.
Education is still the key. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
Most of us are fighting for our lifes each and everyday. No Kday, its not abnormal; for us that is normal!
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
| IP: Logged |
heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
I just feel like we really need to honor and remember Lindsay, so I'm bumping this up. <3
posted
I did not know her, but she died too young. My heart goes out to her family. This is a real tragedy. I wish I could do more than just say that.
IP: Logged |
posted
Even my PCP, who is pretty lyme literate compared to most, said when I was at my sickest - couldn't get out of bed and was in terrible pain - said, "Well, at least nobody dies of Lyme"
Posts: 360 | From New York | Registered: Oct 2009
| IP: Logged |
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
| IP: Logged |
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
I hope to God that that isn't true, Tracy!! That would be unspeakable beyond words!
Posts: 3771 | From around | Registered: Mar 2008
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You can do a google search and find her sister's notice. It listed a neuromuscular disease as the cause. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Frown]](frown.gif)
![[group hug]](graemlins/grouphug.gif)
to her family
Printer-friendly view of this topic