posted
Well, Im probably going to ruffle some feathers but I said, if I ever get better I would come back to this website and help a much as I possibly could. Here it goes..I was VERY sick about 4 months I had all the signs of Lyme Disease, LUPUS, RA, even a positive rocky mountain spotted fever, you name it. Took all the tests, was positive on Lyme just 2 bands, my ANA was positive a well as my RF. As soon as my LYME was positive(but not by CDC standards) I sought a LYME Dr in Texas(he has since been shut down) and was soon prescribed Doxy. Thank god for that man, no one else was figuring anything out and I knew I needed to be on a antibiotic, there was something horrible wrong with me. Now, at this time I was also paired with a Rhemy whom did not believe the LYME theory(imagine that)but was very good in what she does as well, one of the best around. Once I got to her she was very perplexed because before June of last year I was as healthy as a horse, now I am going into a LUPUS, RA stage, losing weight like crazy, so she began testing one thing after the other(she had no idea I had seen a LYME Dr. or was on DOXY, I felt embarresed and should not have but my confidence and anxiety was so out of control at this point that I was jut wanting to be cured) and she took strep titers and they were sky high! My body from porisis to sweating to fevers to dizziness was still going on but better because I had been on DOXY for about 2 months at this point. She immediatly started me on Pen. V and I have now been on it for going on 4 month(she said chances are I will be for the rest of my life). Well, what do ya know I have gained 35 pounds, I am sleeping, I have no more shakes, sweats, psorisis has cleared up and so much more has changed. Again, Im not saying you dont have LYME and I thank god for the LYME Dr. that listened that something was going on, Im just saying check your STREP titers and make sure strep isnt the problem. Even when they said my LYME test was positive on 2 bands, I jut could not believe it, I have never been bit by a tick and I live in a area that there has NEVER been one case of LYME and no I do not travel. As for strep, I have three kids and with the enviroment and my immune system being so low this is very understandable. I just promised myself that when I got better I would try and help anyway I could because I can remember when I truly thought I was going to die. How times have changed... I wish you all the best and hope for a recovery, you only hear the aweful stories online and no one comes back once they are well, I made that promise to myself because I found lots of comfort in this website and I am here to tell you, there is life at the end of the tunnel and you are not crazy. I am not 100% but I am 85% and if you would have asked me just 5 months ago if I thought that was possible, I thought I had to be dying of a unfound cancer and things were just going to be this way until they found it but because of a antibiotic my life is tuning around Im getting back to my old self. Im not here to give advise, just wanted to give some comfort to someone in need. Take care~
Posts: 13 | From texas | Registered: Apr 2010
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posted
wow...now you have my mind thinking again...I am always second quessing the doctors...I am about to start IV therapy for lyme but my elisa was negative..I have been bitten twice by ticks but was always tested negative...Iknow something more is wrong with me and the llmd is saying lyme...YOu are giving me something to think about when I finally was settle to fight lyme...UGGH idont know..
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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posted
I know, I am so sorry and I knew when I did this I would make people think and ruffle feathers at the same time. If it wasent for the promise I made to myself I would never had done this, plus that was such a horrible time in my life that I really don't enjoy talking about it but if it might help just one person then thats all I want. Just have your strep titers checked, after all this I do believe they interfer with eachother. Strep in my case was a lot more logical then LYME, and it just so happens once I started the PEN V my life started to change and blood work did as well. Good luck, Im sorry, I went through all this and about went crazy doing it! I did forget to mention, not only did I start the antibiotic, but I completly changed my lifestyle, no more sodas, very little sugar, lots of organic, changed lots of chemicals in my house to natural and stayed on top of my immune system and that is truly the key, you have to get your immune system up and going but I know I would not have got well without the antibiotic. I was sensitive to EVERYTHING at one point and I am way better with all that as well. It all sounds like a crazy person but I was a very active and involved mother of three with a very sucessful business and very healthy and it changed overnight. You can get better the point of my post was not to give advise just to make people think. I never did IV but it sure cant hurt, at least they are doing something, rocephin should kill about anything! I know from reading that some people are for the all natural and I really believe that is vital in your recovery but again there is no doubt I needed to have a antibiotic to get to where I am. Hope this help~
Posts: 13 | From texas | Registered: Apr 2010
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posted
Originally posted by monkee: Well, Im probably going to ruffle some feathers but I said, if I ever get better I would come back to this website and help a much as I possibly could.
Here it goes..I was VERY sick about 4 months I had all the signs of Lyme Disease, LUPUS, RA, even a positive rocky mountain spotted fever, you name it.
Took all the tests, was positive on Lyme just 2 bands, my ANA was positive a well as my RF. As soon as my LYME was positive(but not by CDC standards) I sought a LYME Dr in Texas(he has since been shut down) and was soon prescribed Doxy.
Thank god for that man, no one else was figuring anything out and I knew I needed to be on a antibiotic, there was something horrible wrong with me.
Now, at this time I was also paired with a Rhemy whom did not believe the LYME theory(imagine that)but was very good in what she does as well, one of the best around.
Once I got to her she was very perplexed because before June of last year I was as healthy as a horse, now I am going into a LUPUS, RA stage, losing weight like crazy, so she began testing one thing after the other(she had no idea I had seen a LYME Dr.
or was on DOXY, I felt embarresed and should not have but my confidence and anxiety was so out of control at this point that I was jut wanting to be cured) and she took strep titers and they were sky high!
My body from porisis to sweating to fevers to dizziness was still going on but better because I had been on DOXY for about 2 months at this point.
She immediatly started me on Pen. V and I have now been on it for going on 4 month(she said chances are I will be for the rest of my life).
Well, what do ya know I have gained 35 pounds, I am sleeping, I have no more shakes, sweats, psorisis has cleared up and so much more has changed.
Again, Im not saying you dont have LYME and I thank god for the LYME Dr. that listened that something was going on, Im just saying check your STREP titers and make sure strep isnt the problem.
Even when they said my LYME test was positive on 2 bands, I jut could not believe it, I have never been bit by a tick and I live in a area that there has NEVER been one case of LYME and no I do not travel.
As for strep, I have three kids and with the enviroment and my immune system being so low this is very understandable. I just promised myself that when I got better I would try and help anyway I could because I can remember when I truly thought I was going to die.
How times have changed... I wish you all the best and hope for a recovery, you only hear the aweful stories online and no one comes back once they are well, I made that promise to myself because I found lots of comfort in this website and I am here to tell you, there is life at the end of the tunnel and you are not crazy.
I am not 100% but I am 85% and if you would have asked me just 5 months ago if I thought that was possible, I thought I had to be dying of a unfound cancer and things were just going to be
this way until they found it but because of a antibiotic my life is tuning around Im getting back to my old self. Im not here to give advise, just wanted to give some comfort to someone in need. Take care~ [/QB][/QUOTE]
**edited with space so others can read it more easily**
Moving to Medical Questions
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
Glad you feel better! That is the important thing.
What is Pen V? Just curious. Never heard of it.
Posts: 1142 | From South | Registered: Dec 2010
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posted
Glad you are improving on your medications!! Many LLMD's ARE finding the connection between strep and Lyme. Sometimes it's a back and forth thing. Keep that in mind in case you remain ill after beating the strep.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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