posted
totally skewed in the wrong direction...
Posts: 27 | From delaware | Registered: Dec 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
It's sickening to see that such misinformation such as this still being written. I would encourage everyone to post their comments on the page of the article.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
I saw that and my first reaction was two fold...
1. Yes there are some weird characters out there who are just trying to make some money.
2. You dont have it so you cant comment. As I said before, I am about 90% of what I was prior to this so I know I have something left that has not been treated. So should I just seat here and do nothing while something fixable now turns into a nightmare.
People need to show more compation...
Posts: 324 | From Philly | Registered: Jun 2010
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
I didn't see anything about co-infections.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I like the way they try to paint Dr. R as someone who is living the high life going to black tie dinners, while getting rich off of patients some how falsely treating them.
He started out in Greenwich, one of the first few doctors who saw the need to take Lyme seriously many years ago, the same place Time For Lyme stated it's organization of support, political awareness and fund raising....doing good for the Lyme community and they turn it around into something evil. If Time For Lyme gives a black tie fund raiser and he goes or gets involved with the organization that makes him bad?
Of course, they don't mention co-infections. It's a one sided slanted, misinformed article.
Their site is very difficult to post on, as well.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
Their site is very difficult to post on because they don't want or care about your comments. You are not dealing with rational people who care about the truth, or anything but money and power.
Posts: 8430 | From Not available | Registered: Oct 2000
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Maybe I am just being a conspiracy theorist, but the way it is being continually disseminated to other major newspapers and news stations by Tribune Compnay makes me wonder.
If I see a big write-up from the New York Times and Forbes (they do have a blog post praising the Chicago Tribune right now) in the coming days, my suspicion would rise to an all-time high.
Pure Speculation
I wouldn't be surprised if the IDSA and friends are trying to get out negative publicity about chronic Lyme right now.
Why? Because of XMRV/HGRV or whatever they are going to call it.
I have speculated for a long time that there may be a connection to these retroviruses and chronic Lyme, and according to some other doctors and researchers it turns out that very well may be true.
In other words, they will tell us we all just have some form of CFS or Fibro, and they'll try to do away with chronic Lyme. A while ago, CFS research institutions (such as the WPI I believe) have estimated through specialized testing that 30% of people with XMRV may have Lyme Disease as well.
VIPdx (the lab that tests for these retroviruses) obviously saw the connection when they started offering their Lyme testing. They are no longer offer testing for Lyme disease (perhaps they would if you called them) and are focused on XMRV testing.
So, in my opinion, the IDSA may be preparing to throw chronic Lyme out the window and act as a victim. They will state all these people who were probably suffering with the "the aches and pains of daily living" actually have a severe, debilitating retrovirus.
They will do anything to prevent their ship from sinking, and I think this could be their next tactic. If people get rid of associated infections by taking some type of anti-retroviral, expect a misguided told-you-so attitude.
Perhaps this retrovirus is what is preventing many or most with chronic Lyme from getting better. Even if that proves to be the case, that doesn't imply that chronic Lyme never existed.
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
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