My problem is that for the longest time I have major symptoms that usually keep me from sleeping and feeling comfortable. My heart feels funny maybe palps, my head and body tingles,ear ringing,nerves feel over-sensitized with sounds, and whole body is crampy.
I had been doing alright for a couple weeks, but this always comes back and I am so tired of it. I am presently on 500mg Azithromycin and 2000mg of Ceftin daily. Is there anything, maybe supplements or whatever that have helped you?
thanks in advance
-------------------- IgM- 31,34,39,83-93 IND IgM- 41+
IgG- 31,34,39,83-93 IND IgG- 41++ Posts: 610 | From Lymeville | Registered: Nov 2010
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MDW005
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Good morning fuel,
I find B-12 shots help me with the tingles, umm..
think, think, think... ahh, yes Magnesium and tumeric with ginger help with the inflamation (for me) and I also take omega brite for the brain. Detox baths are doing wonders most days for the cramping. Now I still live with these symptoms just not as severe on many days.
sleep I still have issues with but I am finding that taking magnesium with ester-c before I lay to bed is helping.
Hope you feel better soon.
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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17hens
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Are you taking magnesium? It could very well help you feel much better.
Magnesium with B6, not with calcium.
Vitacost has a good one - Source Naturals Ultra-Mag.
Take 1000mg - 1600mg a day but start slow.
Just one big ole horse pill at a time. Maybe one at lunch and one at bedtime. A few days later try 2 at lunch and go from there.
Otherwise you'll find yourself running to the bathroom frequently for a day or so, as too much will give you the runs. Your body can only absorb small amounts at a time.
Eventually, you'll be able to take 2 horse pills (which is 400mg ultra-mag) together, a few times a day.
It should help with the tingling and cramping and maybe even the heart stuff. It also helps you sleep better so taking it at night is a good thing. And it helps keep you regular.
If the horse pill is too hard to get down, you can crush into yogurt or something. Or you can dip it in oil but that wouldn't taste too good. It's just big and chalky so sometimes hard to swallow.
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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posted
Presently, I am not taking any mag or B12 other than what is in my regular vitamin.
I have had tons of testing on deficiencies and always been fine and in range on everything. Could I still have symptoms?
Thanks so much for the help!
-------------------- IgM- 31,34,39,83-93 IND IgM- 41+
IgG- 31,34,39,83-93 IND IgG- 41++ Posts: 610 | From Lymeville | Registered: Nov 2010
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MDW005
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posted
fuel, from my understanding there isn't a blood test for magnesium levels and most people are low on mag. even if they do not have lyme disease. I am good on my B vit.in the body but they help with the uncomfortable sensations the nerves are playing.
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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B12 - any brands? Sub lingual? Not sure where I could get shots?
Also, while we are kind of on topic do any of you do Cats Claw?
Thanks again God Bless
-------------------- IgM- 31,34,39,83-93 IND IgM- 41+
IgG- 31,34,39,83-93 IND IgG- 41++ Posts: 610 | From Lymeville | Registered: Nov 2010
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MDW005
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fuel, sub-lingual is better than none. B-12 you have to get an rx. from your llmd and I believe you have to have it ordered in some states. My pharmacies do not carry it.
Cats claw I have not used but if you look in past posts, I think if I remember correctly keebler has some great info on it.
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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DIET, DIET, DIET is the key. Then, be sure to follow the 5 step plan outlined below. It was developed by my naturopath. It works.
"Successful control and elminiation of a Candida Albicans overgrowth requires a multifaceted program as described below. Failure to follow ALL the steps simultaneously will result in slow progress and will lengthen healing time significantly. The program should be tailored to the individual and must balance the need to eliminate the Candida and deprive it of its food source while insuring proper nutrition for the individual."
Five Steps to Candida Elimination:
1. You must starve it into submission by eliminating its food source.
2. You must kill it with anti-fungal herbs and supplements. [e.g....garlic, onion, caprylic acid, Pau D'Arco capsules or tea, clove, grapefruit seed extract, olive leaf extract, oil of oregano, tea tree oil, Echinacea, Goldenseal, black walnut, MSM, barberry root, uva ursi, neem leaf, biotin]
3. You must reestablish the proper balance and quantity of probiotic bacteria in the digestive tract. [...multi-strain lactobacillus acidophilus and bifidus capsules with FOS should be taken between meals to maximize repopulation of the digestive tract by beneficial bacteria.]
4. You must reestablish proper levels of all B vitamins (yeast free) and utilize other immune enhancing supplements to boost immune system function. [e.g ... B complex vitamins (yeast free), biotin, beta 1-3 glucan, colostrum, maitake mushroom, vitamins A, C, E, zinc and selenium]
5. You must cleanse and heal the digestive tract to promote proper elimination of toxins and Candida and assimilation of nutrients. [e.g...chlorophyll, MSM, omega 3 fatty acids found in flax seed and salmon oils, GLA found in borage, evening primrose and black currant oils. Pantothenic acid, digestive enzymes between meals]
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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My LLMD had me tested over the Summer and was surprised by the results. I was taking supplements most Lymies do daily but was not absorbing them.
Posts: 199 | From Let's Go Pens! | Registered: Apr 2010
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17hens
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posted
fatherguido, what happened then?
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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posted
17, I received a well prepared report on my test results and was deficient in the following:
B1 (a supplement I was already taking) Magnesium (a supplement I was already taking) Alpha Lipoic Acid (a supplement I was already taking) Selenium Spectrox - It measures the net ability of antioxidant and repair mechanisms to give a total assessment of antioxidant function.
Those familiar with deficiencies in these supplements know they are tied your body's ability to make energy, neuro activity, and immune system among others.
Before the test, I was NOT purchasing cheap supplements. The store was well known and a bit pricey for retail. My LLMD recommended an online site and have been getting them there for 6+ months. I am definitely feeling better from several changes made in diet, abx, and lifestyle but the supplements helped in my opinion.
Here is an example. On my last purchase of magnesium, the good online brand I was buying was out of stock. So, I bought a different brand and what a difference. My muscle twitches and palpatations came back.
My mom cannot understand why I spend the amounts I do on supplements but you get what you pay for in life.
Posts: 199 | From Let's Go Pens! | Registered: Apr 2010
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17hens
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fg, You took the test and it showed you weren't absorbing, you changed supplement brands and now you feel better...
do you mean that you were deficient in those things, you're body was not absorbing them, because they weren't a quality brand?
If that's the case, would you consider sharing with me what brand(s) are working for you now?
Thanks for your help with this.
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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posted
17, It was a quality retail brand I was previously taking but not absorbing.
I switched to Pure Encapsulations to address those aforementioned deficiencies on a recommendation from my LLMD. He also suggested I add a few other supplements to the mix. The supplements I now buy from them is: magnesium citrate/malate, alpha lipoic acid, vitamin C, B complex plus, niacitol, policosanal, and seleno-methionine.
I still get other supplements such as fish oil, Gloucosamine, etc from the local retail outlet but I do not go for the cheap brand.
I also made several tweeks to diet/lifestyle around the same time based on my LLMD's suggestion but they were just small changes. This was when I started turning the corner on this awful disease.
I hope this helps.
Posts: 199 | From Let's Go Pens! | Registered: Apr 2010
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posted
I also take the Pure Encapsulation that my alternative doctor recommended.
I will swear by the ADR for adrenal supplementation.
-------------------- IgM- 31,34,39,83-93 IND IgM- 41+
IgG- 31,34,39,83-93 IND IgG- 41++ Posts: 610 | From Lymeville | Registered: Nov 2010
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momlyme
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posted
I just made an appointment to have my son do this spectra cell test. We have to drive 2 1/2 hours to get to a doctor who can do the test. So I am glad to hear a such a positive result from getting the test done.
Glad you are turning the corner fatherguido! I hope this is the key to my son's recovery too!
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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Momlyme, Call the lab before drawing the blood work and check if they take your insurance. They take some insurance and will work with you if not fully covered. Good luck to your little one.
Posts: 199 | From Let's Go Pens! | Registered: Apr 2010
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momlyme
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I called the doctor's office today and they asked me about insurance. They took my information and they are calling to see if I have coverage for this test and the visit to see the doctor - BTW - if anyone is interested in traveling to Western Ma... PM me for the doctor's office. They advertise for treating Lyme and Heavy metal detoxing.
I called spectra cell labs directly today because there are no labs in NY-- AT ALL. They said there is a legal battle in the state of NY... my doctor can't write an order for blood to be drawn and send it to the lab from NY. I have to leave the state to get the test. They couldn't tell me why.
I wonder if it's Big Pharma? not wanting us to know that nutrition is a huge part of DIS-EASE?
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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posted
I am not sure if this will help, but it looks like the topic is deficiency testing. I had a very extensive test that does this. They have a sample on the site. Hope this helps if you can't get things worked out with the other.
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