lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
could you just sign in here? i know we did this b4-but if you can just give me a head count-and any other info you want to leave...like you decided not to tx or tx helped or tx didn't help...
thanks a lot
1. me...lpkayak - i'm both igenex and cdc neg but llmd wants to tx based on sx
posted
Through a Quest WB I had IGG 18 and IGM 23 reactive. So I was expecting my igenix test to have many reactive bands. Nope. I had IGG 41 + and IGM 23 IND and 41IND.
I had a bulls eye rash show up after six weeks of antibiotics durung a herx reaction So I know I have Lyme.
Posts: 132 | From Somewhere | Registered: Jan 2011
| IP: Logged |
17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Two of my friends tested negative at Igenex. Both of them have many co's symptoms.
One of them believes the test and is in denial of his symptoms.
The other has found an excellent LLMD and is progressing quite quickly, on her way to recovery.
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
| IP: Logged |
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I tested CDC and Igenex negative on my western blot, but I had a positive 31 kDa epitope confirmation test.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
| IP: Logged |
posted
Lots of INDs on my WB, negative overall. Looks like Babesia is what's causing most of my symptoms though.
Posts: 340 | From san francisco, ca | Registered: Nov 2010
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
thank you everyone!!!
i will keep this up til tomorrow night and then take my ammo to him
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
thanks for info robin. in the past-most of our testing was done a long time ago-when i called with a question they put nick right on! i think they have other ppl to answer questions now-but i have always been treated very well when i called-so patient-even back int he day when no one really knew what was going on
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
thanks guys
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
07/2010 LabCorp test again IgG neg, IgM 41,23. Doxy 2 wks
04/2011 MD Lab IgG neg, IgM 41,23 started Suprax, Azithro
07/2011 Bioref Lab, IgG 28&39, IgM 23 added Plaquinal Posts: 58 | From New Jersey | Registered: Mar 2011
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
its osteo arthritis. i believe it was brought on by lyme cuz it started when i was 33. thats kind of youngfor wear and tear. i had a carpel tunnel and trigger release surg done on the right hand. but now both need basal thumb joint reconstruction. i have been puttng it off for almost 10 yrs. jsut when i get ready...someting majr happens like an appendix or a gall bladder.
so for now i use ibu and fish oil and try to make do.
i also have confirmed by xray osteo arthritis in many other parts. and have had knees replaced.
i just seem to end up dealing with what is worse. i haven't been able to walk with out cane for a few days now...so i am more concerned with that than hands
i.m in jersey now. in brick. where are you?
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
lou4656
Frequent Contributor (1K+ posts)
Member # 10300
posted
Tested negative through Igenex. Diagnosed based on symptoms and a bullseye rash that I had six years earlier.
Antibiotics for one year -- saw my LLMD for 18 months. Almost five years after my diagnosis, I am very well. No symptoms . . . living a "normal" life.
Very grateful.
-------------------- LouLou Posts: 1276 | From maryland | Registered: Oct 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
Topic Closed
UBBFriend: Email this page to someone!
Printer-friendly view of this topic