posted
NOt looking for sympathy, just don't know where else to say it. Whole body hurts, brain don't want to work right...hot, cold, hot, cold...ugh. Am watching Under Our Skin...damn I hope I can be rid of this...
Posts: 98 | From Maytown PA | Registered: Apr 2011
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
Aw dang Jon, I hear you. It is a hard thing to be so very ill. You can come here for sympathy, because sometimes, that is just what a person needs.
I don't have Lyme, but I have watched my daughter suffer so, and I wish I could do something to make it better.
I hope for you that you will be able to overcome today, and tomorrow will be better.
I will be thinking about you for sure.
Sue
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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posted
Thank you very much! I hate to think of one of my boys having this...that scares me more than what my future might be. I have had this for two or more years (don't know as I never had the rash) and it is really hard sometimes. I put on a brave face and don't say anything to my wife but there are days when it is all I can do just to keep moving. Knowing I'm not alone helps more than I can say..
Posts: 98 | From Maytown PA | Registered: Apr 2011
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posted
You'll get well .. it just takes a lot of time and patience. Most of us here never had the benefit of a rash to let us know we were infected. And thus the saga begins.
Hang in there!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
I rewatched UOS this weekend, too.
Makes me feel a little bit better when the park ranger said he said a LOT of improvement in the 3rd year ( not that I'm glad it will take that long, but happy I'm not the only one not seeing much improvement in the first year ).
Hope you feel better real soon.
Posts: 1142 | From South | Registered: Dec 2010
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
My son was on orals for 3 years 9-12 years old. Hes 16 on Thursday and is symptom free for two years. Thank you Dr. J. It can happen. Waiting for it to happen to mom, (me), but he's ok now, just a typical 16 year old with the door closed, on the phone and facebook, thank God. One day at a time. This is by far no picnic.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
Hey Twisted Jon. We all can relate. I've had to come here for some venting before.
Hang in there!!
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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posted
A slightly better day today but I'll take it hahahahaha! Pain spread from hand to shoulder now, still look like I'm a silent yes man lol...I can walk a bit better though so this is good. Wife is threatening to take me to doc tomorrow if I am still shaking like this but I don't know what she will be able to do. I got my script for Neurotin today for the pain and tremor and so far not able to see any difference. Am sure I should see some result by tomorrow, I have a rather quick system lol...
Peace, Love and a symptom free day to you all!
Posts: 98 | From Maytown PA | Registered: Apr 2011
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posted
Just wondering what this sudden switch could mean. I was ok yesterday morning then about 3 pm, boom. I feel like a bobble head from the waist up lol...almost parkinson like shaking. Does it at rest but is worse when I move....
Posts: 98 | From Maytown PA | Registered: Apr 2011
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posted
Some days are better than others. I've been through three years of this hell and sometimes I feel almost normal and sometimes I feel like death.
Posts: 743 | From New York | Registered: Apr 2009
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posted
Called local LLMD this am, voice mail says all calls are answered within 48 hours so here goes! I'm very excited and hopeful to get somewhere with this!
Posts: 98 | From Maytown PA | Registered: Apr 2011
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