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» LymeNet Flash » Questions and Discussion » General Support » Do you always get worse before getting better?

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Author Topic: Do you always get worse before getting better?
JeniferM
LymeNet Contributor
Member # 31996

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I'm a newbie to Lyme and am actually still awaiting my test results. I went in to get the blood drawn yesterday. In the mean time, I was wondering if it's most common when people start treating Lyme that they get worse before they get better? Or are there people who just got better? I'm just thinking ahead to what I might be in for if it turns out that I need Lyme treatment. Maybe I should start researching short term disability or something.

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IgM: [18++,31+++,34++,41++,83-93+] [39 IND]
IgG: [41 IND]
Positive according to IGeneX. Negative according to CDC. Negative for co-infections.
Currently treating for Lyme, Bartonella, Babesia

Posts: 225 | From Minnesota | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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There are a few people who just get better and better.. they are in the minority. (sadly)

Trying to work while being in treatment can be very challenging to say the least.

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--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
JeniferM
LymeNet Contributor
Member # 31996

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Yeah, that's what I was thinking based on what I've been reading here in the forums. I'm hoping, since I'm not yet as severely affected as others, that I might not be as miserable, but I should be prepared just in case. My employer was very quick to shove short term disability papers in my face when my knee swelled up a year ago and disabled me for a while. So, I would imagine that's the way I'll have to go.

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IgM: [18++,31+++,34++,41++,83-93+] [39 IND]
IgG: [41 IND]
Positive according to IGeneX. Negative according to CDC. Negative for co-infections.
Currently treating for Lyme, Bartonella, Babesia

Posts: 225 | From Minnesota | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
payne
Frequent Contributor (1K+ posts)
Member # 26248

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jeniferM,
praying for you to endure this knowing you want to be productive and cleansed of this desease.
AMEN.

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TULAREMIA/rabbit fever ?

Posts: 1931 | From mid-michigan | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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hang in there as long as you can ..

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
sbh93
LymeNet Contributor
Member # 30429

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I agree with Lymetoo--hang on as long as possible. I am struggling with the same issue and have become worse. But I hang on because if I go on short-term disability, what's the guarantee I will only need it "short-term?" What if we're even worse at that point and wished we'd held off a bit?

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It took 20 years to find out I'm not crazy.
New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco.
I am not a doctor and happily offer only my own opinions.

Posts: 357 | From The Beach | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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Exactly, sbh .. you don't know how long this is going to take.

--------------------
--Lymetutu--
Opinions, not medical advice!

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missing
LymeNet Contributor
Member # 22437

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I am working and have Lyme, treated for Babesia and Bartonella.

My husband had to help me out.

He has Lyme, and now he is working 60 hour weeks to help pay for our bills.

Because our daughter has Lyme.

If we quit work, then no meds, no appointments, no nothing. WE would get sicker and sicker.

It is torture to work everyday, but maybe it is helpful to be forced to move a bit.

They say that we are suppossed to keep moving.

I dunno.

I am in extreme pain, but the days that I have to move aren't as bad as the days that I rested in bed.

I have been getting treatment for 18 months and really sick for 4 years.

All that moving, housework, yard work, planting trees in my yard (700 seedlings, yes, I checked for ticks, and yes, it was stupid of me.), painting the house, painting the garage, etc. etc.

and working full time,,,

and hey! I am still alive, it didn't kill me, even though I spent a lot of time crying and screaming and crying and crying and crying and wishing I had enough money to hire maids, homecare, and quit work!

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I am not a doctor. I have no clue.

Posts: 606 | From somewhere out there | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
   

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