I'm back! Wish it was on better terms --- after a few months of literally no bad symptoms,
gaining back much of my cognitive function, and noticing that I was feeling much much better, I thought I had beaten this Lyme deal.
But now I am feeling the effects of it again; this time my immune system seems to be wonky,
and I've experienced mycoplasmic pneumonia, viral conditions, and terrible allergies with wheezing, cough, and asthma.
At this point I am just basically fatigued so much that I am literally sleeping away the
afternoons, into the evening, and into the next day, where I will have a few morning hours of energy and that's about it.
But here's my dilemma, and I welcome any suggestions ----
I can no longer afford to see my LLMD. As wonderful as he has been, I could no longer continue to put myself into more debt for his office visits (I paid in cash as long as I could, which was in summer of last year) ---
then I declared bankruptcy last November because of overwhelming lab and Lyme treatment bills; I also lost my car in reposession.
This means I would have no transportation to get to my LLMD anyway.
I have only a part-time job as a caregiver, no health insurance or prescription plan.
I do need to maintain daily oral abx: Mainly doxy and amoxycillin.
However, I no longer have prescriptions for them.
My family doctor, who would call in prescriptions for me without an office visit, will no longer do that for my abx
as he believes that there is no such thing as chronic Lyme, and I should have been "cured" by now.
So here's where I am. Any suggestions or guidance?
Thanks a million!
Mar
-------------------- The Bite: July 1995 Next 13 years: Treated for things I didn't have Symptom total: 45 1 faint Lyme IgM May 2000 5 More negative tests IGeneX says YES! 3/16/09 Finally feel human: 2012 Posts: 120 | From Plainsboro NJ | Registered: Feb 2007
| IP: Logged |
posted
Will Medicaid or some such program help people like you? Have you worked long enough to qualify for social security disability?
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey hey MissMari,
Sorry to see you here! HA! But you know what I mean!
-------------------- The Bite: July 1995 Next 13 years: Treated for things I didn't have Symptom total: 45 1 faint Lyme IgM May 2000 5 More negative tests IGeneX says YES! 3/16/09 Finally feel human: 2012 Posts: 120 | From Plainsboro NJ | Registered: Feb 2007
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Check in Medical. jbral just posted a link about disability.
posted
There is some evidence that an antidepressant dampens inflammation, which is part of what causes symptoms in lyme. Not sure if this is true of all antidepressants.
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
annxyzz
Frequent Contributor (1K+ posts)
Member # 20404
posted
I am feeling better than I have since 1996 . I did 3 years of ABx , and was finally free of pain , but still really SICK.
Unfortunately , the ABX caused chronic bladder and kidney problems , and I feared they would have ill effects on my immune system if taken indefinitely . I was desperate and began an herbal approach and combined rife ( EMEM) . I was not too optimistic , but still TRYING to attack the bacteria and babesia. I used the herbs that I read others here were frequently advised to try by their LLMDs : artemesia annua, and grapefruitseed extract , mostly . ( I also threw in some of Buhner's herbs after six months, whole andrographis and coptis ) .
The first few months with rife and herbs, I was somewhat worse . Slowly , within six months I saw improvement . It was gradual, but REAL . After 16 months of this approach I actually can function most mornings , can be productive every afternoon and can walk a mile or two a few times a week . I am almost never in bed, though I am not as fast as I would like. I do not have chills all of the time or feel sick as a dog every minute of everyday . Life is better than I thought possible , and I hope to continue improving .
I have seen many people here reach the end of their pocketbooks with LLMDs with minimal progress and years of ingesting a huge amont of mepron , antibiotics, etc... for YEARS . There is no easy answer , but you can be sure that lots of ABX , drugs, and $$$ spent on LLMDs does not appear to necessarily get a person to a cure . The few folks I know who have seen LLMds finally ran out of dough and resorted to helping themselves by trying a variety of therapies .
Do not give up . Many of us have been in your shoes , and persevere to a better place . You will too .
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Big Grin]](biggrin.gif)
![[hi]](graemlins/hi.gif)
)
Printer-friendly view of this topic