posted
I feel like i spend way too much time online looking for answers in various message boards.. Or looking for understanding.
My brain spins so much when i try to look into all the treatment info or research... It is infuriating that we are all forced to become our own doctors because of the stupid insurance companies not wanting to pay for treatment, and because of arrogant researchers not wanting to admit their theories and paradigms are WRONG!
I am actually in the process of trying to start my own business bc it is the one chance i have to maybe one day be able to afford my family's medical care!
Cobra for my family is 1300 a month! Trying to find a cheaper plan, but "chronic lyme" is actually on the official list of conditions that make you uninsurable in my state.
So it doesnt exist if you are seeking treatment, but it does exist if you are trying to buy health insurance!
Sometimes i just want to sneak into the houses of the insurance company CEOs, and maybe the IDSA fokks too, and let loose some ticks on them from the woods where we first got infected!
Maybe then they would be the ones too sick to work, and there would be no one left to keep denying insurance to people.
-------------------- IgM ++41, IND 31, 34, 39, 83-93 IgG IND 41
"To the world you may be one person, but to one person you may be the world." - unknown Posts: 72 | From NC | Registered: Sep 2011
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posted
You are not alone! Our family keeps cobra from my old job because it is a PPO and my husband only has the option of a HMO. Then my doctor who takes insurance but likes to order labs from places that will not take insurance at all even though I already had positive test results from the last doctor. It is impossible to get ssn disability because lyme does not disable you. However finding life insurance is impossible with lyme. It is also terrible the "LLMD" people who charge prices like 800 every appointment. They are taking advantage of the situation until things change. Shame on them. I just recently learned of several military folks living in their cars because of the high expense of several docs.
Posts: 63 | From dc | Registered: Sep 2010
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
If you try for disability again, remember to list all the things that do qualify, that come from Lyme. Arthritis, IC, fatigue, depression., etc
And it is never about what you can do, it all about what you can't do.
It is hard to get disability, but it can be done.
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
My daughter got disability...even though Lyme was the culprit for all her problems...that fact is a moot point when it comes to disability.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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posted
Someone told me that Humana PPO is $21/person/month.
Posts: 13116 | From San Francisco | Registered: May 2006
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
WheelWatcher,
Did you get a diagnosis of Lyme yet? If not, quick get Cobra (if you can possibly afford it) before you get the diagnosis! But maybe it's too late for that. That's unreal that they are allowed to cut you out like that.
Does NC have any kind of state sponsored health insurance for people who have less money? Lots of states have such a program. It might not pay for everything, but might help all the same.
this is so messed up.
Posts: 3771 | From around | Registered: Mar 2008
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