posted
I am struggling with the emotional and physical effects of having myself, my husband and my 2 yr old son all in treatment at the same time.
I'm sick and herxing, my husband's sick and herxing, my son is sick but full of energy and my daughter, thankfully, is a healthy and active teenager. Our kids need us to be well...yesterday.
For those of you who are in treatment while raising kids, as well as those of you who have multiple family members in treatment, how do you get through these difficult days when you have no idea if/when things will start to get better?
-------------------- aperture Posts: 551 | From Louisville, KY | Registered: Nov 2011
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
It's definitely a struggle.
My endurance is maternal instinct. I have to get my kids well so they can go on to have happy, productive lives.
Good luck.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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posted
No doubt..I've been infected for over 4 years and wifey for 20 yrs and just found out summer2011...kids start testing soon. half the battle was getting her to go get tested...almost killed marriage few times. Pantera73 take care all
-------------------- NWOODS WI/ bit May08 diagnosed Jul08 Lyme March 09 symptoms return Ehrlichiosis pos.no Lyme? Feb 11 CD57=26 Mycoplasma 343 Babesia 55.2 HHV6 5.8 WB CDC POSITIVE 31++ 39+ 41++ 58++ 66+ 83+ WB IGG POSITIVE 31++ 34 IND 39 IND 41++ 58++ Posts: 55 | From the Lyme Mine | Registered: Dec 2010
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
aperture, I don't have your answers but I've thought of you and your family since our Jan meeting. How tough it must be?????
I can't even image lyme & co times three in a family. I do know the stress of wanting to know when, what day, what month, how soon will I turn the corner and have more good than bad?
That's one thing so horrific about this illness, we don't know when or what will make it better for sure. I know accepting it and making peace with the unknown does help eliminate some stress.
The roller coaster ride of ups and downs is also hard. How can one have a good day or maybe 3 days and then it all comes crashing back down again? It's a tough road.
I'm glad your youngest is bouncing back. I remember how hard it was for myself wanting and needing to be with my grandchildren and having fun and doing life with them.
I became the Nana that was known for board games. Sitting on the floor with them and playing Hi Ho Cherry O's, Candyland.
Try not to focus on when or if!!!! That is a stressor.
Take care, Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
honest. i dont know how i did it. 3 of my 4 had tx while i was sick. my husband was sick but in denial. i worked and commuted. again...i dont know how i did it.
but others seem to be glad when they hear my kids got well and all ended up going to college and getting married and got good jobs...so know that if you stick with it...get all of you the best tx you can...you will come out on the other side
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
jackie51: thank heavens for maternal instincts. I will fight for my kids and husband's health. I am just so weary myself and, at times, feel like quitting my own treatment.
Pantera73: I hear ya. Having one spouse sick is hard on a marriage. I guess if we can get through these hard times, the good times will be a breeze.
Pam: Your story gives me hope. I'm glad I was able to meet you at the meeting. I have got to start taking life one day at a time.
lpkayak: All I can say is you are one strong person! The thought of my little boy going to college, getting married, etc, etc is actually a possibility now and gives me hope.
That was not something I would have thought possible just 2 months ago, in December when he wouldn't make eye contact and just kept repeating the same things over and over.
Thanks so much guys for your encouragement!
-------------------- aperture Posts: 551 | From Louisville, KY | Registered: Nov 2011
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
I understand. My daughter with Lyme is a handful- and when I am weary and impatient, whew.
Before we figured out Lyme, I realize I had really simplified life- we are home a lot- not social except with family- even that is low key.
My daughter with Lyme is in school most of the day, honestly that helps- she does better there than at home.
One foot in front of the other. And when I want to get all these things done around the house, and don't that day, I try not to beat myself up.
We cannot stop treatment- we backslide even more off the antibiotics.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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