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» LymeNet Flash » Questions and Discussion » General Support » Stressful, stressful week for Silver

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Author Topic: Stressful, stressful week for Silver
TxCoord
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Member # 9204

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Well, we have just been through a harrowing 7 days. Silver had a mamo last Tuesday and they said we would get the results back in 10 days - 2 weeks. Well they called last Thur and said she needed a second reading Fri afternoon with possibly doing ultrasound.

Not a problem. Had the 2nd reading and ultrasound and they told Silver that the radiologist would read it and send the report to our dr for Monday (yesterday). Wolfn was told she had a ``cyst''.

So stress city all weekend and then Monday came and we waited and waited and waited. We finally called the clinic and the report hadn't come in. We called the hospital and talked with the radiologist who said she would fax it immediately to the clinic.

Stress is sky high because we don't know! Call the clinic an hour later and they are vague. Got a call from the health department (who set all this up) and she wanted to know what was happening. We told her and she was not pleased that we did not have the report yet either.

She called the radiologist who said she mailed the results (vs fax and yes she backtracked because fax is in violation of privacy but they trust the mail?!?!?!?) and then health dept called the clinic and they ``promised'' to call us as soon as the report came in.

Today the home office of the clinic called to change our May 1st apt to today! Now the stress is really going off the charts! We called the clinic and they finally called this afternoon and told us the cyst was benign. Finally, so the stress is gradually falling away. Gradually.

Sorry it's so long, but as y'all can imagine Silver has almost been going through the ceiling over this. Worry, stress, pain from the testing. Thank God it's over for this year.

[ 04-17-2012, 05:47 PM: Message edited by: TxCoord ]

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I have a good time wherever I go!

Posts: 665 | From Lost Wages, NV | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Not fun. Been thru one of those stressful situations. I really decided though that I was FINE until someone told me otherwise!!

When they say "cyst" just take them at their word until further notice.

I do so hope you two can get some rest now. God's blessings on you!!

[group hug]

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--Lymetutu--
Opinions, not medical advice!

Posts: 96229 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
TxCoord
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"Okay Silver, release the doct - no, honey you have to let go of his throa - yes both hands. Okay, good, now step back slowly. And release!"

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I have a good time wherever I go!

Posts: 665 | From Lost Wages, NV | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Silverwolf
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<<<<< Lymetoo >>>>>,

Thanks for the kind reply, It was scary for sure. I did some research so knew that we often have benign cysts.

It was the way it was all handled, that made it so difficult. And the fact of my beloved Aunty dying of cancer [roof of mouth ,brain and stomach] two days before the first Mammo'.

So I have the Mammo on Tuesday the 10th, 'Molehills into Mountains imaging', and I am told,

...after correcting wrong info' to be sure that the PA and our address get the info' not someone unauthorized, oh it'll be a week to 10 days to get the results.

Aunts funeral is Thursday the 12th, on which afternoon they call to say I must go up to the *Hospital Imaging Diagnostics Unit* [ yes we'll have *HID your results from U]

... for Friday afternoon the 13th please they need some more Mammo pics ,to see about 'something' they spotted.

So with some trepidation on the quickness of the callback, but w/ some relief because the radiologist will read it right then, and you'll have the results [ if you believe that we can sell you grannies swamp land too].

Well after much so much 'torture', mammo pics and ultrasound,we were sent home. Oh your Dr./PA will call with the results Monday... UHM...NOT.

We tried to get info Monday,to be tole the Hopsital had not sent it yet, then that they had...no one called Monday w/ results.

The health group called wanting to know why two bills...we explained, so they called both Hospital Imaging and our clinic.

Health group was told oh we'll be calling later today [ that was yesterday Monday ]. Come to find out as TxC said they mailed it,late in day

..and no one was at Our clinic that day...all calls were being forwarded to a different town, and clinic.

They were shining us on...because they were not at our clinic. So this morning they call and want me to come to 'Our' clinic in half an hour...

[and bump up a MAy 1st appt,on a cancellation]we live about 35 minutes away,and were just finishing breakfast.

We don't have the gas to get there [thank the Lord pay day is coming]...so we say sorry ,as clearly stated we live out of town...no way to get there in time today.

Now all of these insistance on - rush appointments-, I am beyond freaked out..all we know is there was a cyst or cysts. Most cysts are benign...so what is up,

why not read my results now please...If-You- Have-them,as my PA is supposed to be at clinic. Then the caller asking about appt. change says oh it can take up to Two weeks for the mammo results..., at which point I lose it...

TxC' Bless him takes over, and explains that we were told the follow up info was supposed to be in PA's office yesterday, for Monday...

Finally they called about an hour ago, today it is beleived to be benign...come back next year...sorry we got you so upset.

UPSET???? UPSET...!!!! You didn't deal with the Lyme rage my TxCoord dealt with..when I couldn't take anymore... Thank the Lord this is over with...

and hopes that my words will stop slurring now...and the headaches finally leave...Yeah that kind of upset...and Yup,I cussed... I try very hard to be polite,and not use ugly words...generally I manage fairly well...

Well I am off for now,else this will become a novel... ANd to all who were praying and sending good tho'ts Thank You So very very much...this was about the longest week of my life so far.

Jus'Silverwolfi here

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2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3581 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
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quote:
Originally posted by TxCoord:
"Okay Silver, release the doct - no, honey you have to let go of his throa - yes both hands. Okay, good, now step back slowly. And release!"

-
[lol] [Big Grin]

Just wait till we all get national health care .. oh glorious day. All our troubles will be over. [Roll Eyes]

Take a breather, Silver!! [group hug]

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--Lymetutu--
Opinions, not medical advice!

Posts: 96229 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Silverwolf
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Lymetoo,

oh yes,...Oh glorious day... [Roll Eyes] ,that's a fact...

Now about that swampland for sale...we have a bridge too... er in Brooklyn!

Okay, breathe Silver..breathe Wolfi... Well I am off to the shower..or uh..just off perhaps...!!!

Silverwolfihere

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2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3581 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
fflutterby
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So sorry you went through this today. Sounds like you could use some rest and relaxation. So happy to hear that it is benign ! I get those too. They call it calcification. I always get called back. Happy happy joy joy.............

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Psalm 46 1 God is our refuge and strength

Posts: 1367 | From North Jersey | Registered: Sep 2010  |  IP: Logged | Report this post to a Moderator
momindeep
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So happy for you. Unfortunately I can relate 100%. Been in that same situation myself...thought I'd have a heart attack the waiting was so so indescribable.

Good news for you both...it is hard to trust the Lord and be joyful through harrowing situations.

Maybe some chicken noodle soup and some TLC like a bubble bath or something little like that would be helpful in getting your feet back to earth.

Posts: 1512 | From Glenwood City WI | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
Silverwolf
Frequent Contributor (1K+ posts)
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<<<<< fflutterby >>>>>,

Thanks for the reply, sorry you have to go thru this as well.

They didn't tell me if it was calcification or fibrocystic issues...just that the cyst[s] is/are benign.

I was researching this... and boy oh boy...Happy happy, joy joy, is right..OY Vey. [Roll Eyes]

There must be an easier way to tell,what else going on,as to our breast health

I am still shaky from it all. TxC' did a cut and paste for me,my long explanation from here, is on the medical board under the ...*What to expect from a Mammogram* thread now too.

Hope you are doing better, keeping you and yours in prayer.

Jus'Silverwolfi

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2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3581 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Silverwolf
Frequent Contributor (1K+ posts)
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<<<<< momindeep >>>>>,

Sorry I type slow, I am finding that so many have this scary situation occur.

Both TxC' and I need a break now...this was plain scary. Gotta wait awhile on finances before we can really do much tho'.

Well we at least both got showers today [Smile] ,and that was nice...before this we've been sorta glued to the phone.

Young neighbor came by,and she stayed w/ me while TxC' showered,then I got one a bit ago. Not quite a loverly bubble bath,but still nice!!

It seems that the Hospitals ,Imaging offices,and clinic don't coordinate very well,and no one knows what some other staff person said.

It was the not knowing,that was so scary,after my last Aunty passing on Easter,from cancer.

Lyme and Co's are so frustrating...my coping skills seem to have flushed away down the sewers.

They don't exist right now, and I am glad others couldn't hear me...er still repenting over my melt down this AM.

Jus'Silverwolfi

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3581 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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