posted
"One fact is clear, Feder said: If treated promptly, Lyme disease is finished. The bacteria are dead and gone, he said, although some inanimate remnants may linger.
``There is no evidence of `late Lyme disease,''' he said. The latest studies are definitive, he said. There's no room for doubt."
-
and more stupidity from Shapiro
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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RDaywillcome
Frequent Contributor (1K+ posts)
Member # 21454
posted
Wow! It's only black and white with these big headed, heartless doctors!!!
What about the research that was done on the rhesus monkey's?
I loved most of the comments at the end though and maybe if enough write in, although I doubt it, possibly maybe one of their cohorts may think out of the box! DON'T HOLD YOUR BREATH THOUGH! Posts: 1738 | From over the rainbow | Registered: Jul 2009
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posted
``All of the evidence that `chronic Lyme disease' is Lyme disease, is missing,'' said Dr. Eugene Shapiro, professor of pediatrics, epidemiology, and investigative medicine at Yale University School of Medicine.
Patients' symptoms are real, Shapiro said. However, a chronic Lyme disease infection is not the cause.
--"Rather, the bacteria may cause damage that takes months or years to heal, doctors said. Another possibility under investigation is that protein remnants of the bacteria may remain and continue to cause an immune response.
Shapiro said that 99-plus percent of people who think they have chronic Lyme disease have unexplained symptoms ``that they want to call chronic Lyme disease.'' The cause remains unsolved."
- If it starts out being documented Lyme, why would you suddenly look for another name for the same malady??
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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RDaywillcome
Frequent Contributor (1K+ posts)
Member # 21454
posted
Are they talking neurological lyme disease also?
Because I would think that in this case you would have damage or some type of residual problems and maybe in this case, antibiotics wouldn't help after you've been treate.
It's a thought.
Posts: 1738 | From over the rainbow | Registered: Jul 2009
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posted
Why don't the authors of these articles quote Dr. S's peer reviewed article on chronic CFS and how they were cured or helped by long term antibiotic use?
What about the articles written by Dr. D?
Also, the article on rhesus monkeys?
IMO there is a media bias that makes the LLMD's look like quacks who do not want to believe the science.
Also, the writers of the articles do not state that at the end of these studies, the doctors write that more research needs to be done.
That research has not been done.
I have only done a cursory google search and don't have access to the information that journalists would have.
Why did they not interview some doctors who are already on record for believing chronic lyme exists?
poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
Inanimate remnants are left after treatment? Does this happen in any other infectious disease, or are they just making up stuff as they go along. I vote for the latter.
Amazing that doctors who have sworn to do no harm are so unblinkingly doing it, and for so long.
Posts: 2888 | From USA | Registered: Mar 2004
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
Feder was the one we first saw for our daugher.
I'll never forget when he turned to me and said some of these symptoms are "he then twirled his index finger around his right temple".
At the same appointment he stated "I know Lyme and your daughter doesn't have lyme disease".
Two months later we saw Dr. J.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
My key board seems to be acting up. I really do know how to spell daughter .
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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posted
Hey tim.. there IS an edit function for those of us who can't type worth a darn!!
What you said about Feder makes my blood boil.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
Lymetoo:
Feder keeps to his stick as he is the lead author with the IDSA to the NE Journal of Medicine on "chronic lyme syndrome".
He is following the standard of care and is safe from legal ramifications.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Not able to read the article or what others posted.
But, saw teh name Shapiro and was reminded of when I was working one week and not able to the next.
It seemed the plan as to rule out or confirm other conditions like MS, etc.
I was on an MS web site. yes my symptoms were very much like MS.
I was trying to get it ruled out or confirmed thru UCSF Medical Center.
I found them to be pretty poor on follow thru and dx. Many docs just shook my hand and then billed the insurance.
One doc did do some kind of testing which had all ready been done locally.
I was told that the testing was frequently done wrong that is why they ended to poke and prod some more and hook me up to machines.
I never did find out what the results were of those tests. I had been dx with lyme disease in the meantime and had enough of seeing over 30 specialist and traveling to get a dx and start treatment.
Once I was dx with lyme disease I went on the MS web site and reported my findings. I also reported that the lyme specialist who confirmed the dx had been dx with MS and treated for it for several years before he learned he really had lyme diseae.
he was now well.
A Dr. Shapiro wrote back that the abx were most likely a placebo and not to discount the power of placebo's.
Wondering now if it is the same Shapiro.
Wondering where I can get those placebo's as I lie here still very sick and very low functioning with the head pain that won't seem to go away
Please feel free to copy and paste this on the web site under comments.
I made teh mistake of moving out of state and no longer being able to see my lyme doc nor do I have the funds for treatment now so doing the best I can with what I have.
I do believe more research needs to be done. I have been on biaxcin and amoxy because that is all that medicaid will provide.
I have been on it since 2008. Too long i know. but, being off of it is worse.
I am loosing hope...I just have a mustard seed left.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
Kam are you doing any of the other non-western support/supplements/??? So much of it can be ordered here on the Amazon spot and that supports this site???
I pray your Mustard Seed grows into a magnificent tree Posts: 2563 | From Denver,CO | Registered: Aug 2011
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