posted
I have been through this before. My stomach and intestines get messed up and I have pain and sensation for not wanting to eat. I have to eat. I have lost over 100 lbs. in 3 1/2 years and down to 130 lbs. I am scared to go down anymore. I know some people here weight 85 lbs. I want to fight the good fight and weigh more not less. My stomach gets blah feeling and then my intestines hurt so bad I can't sleep. I am taking out the few fruit I have been eating, all dairy, no red meat, have not eaten sugar for 1 1/2 years, no high carbs. I am starting to blend all my food so it is easier to digest. I don't want to do this, but I feel it is try something or end up in the hospital. I will do anyting to stay out of there. Any suggestions. For breakfast I had juiced carrots, cucumber, and lemon. I will have blended chicken and carrots here after a while. I have a severe left buttock ache to that seems to be part of the whole picture to. Would love any feedback. I hope there is someone out there that has unfortunately been through this too.
Posts: 620 | From Ks | Registered: Oct 2011
| IP: Logged |
posted
Cozy, I think you know I can relate fully to you. I can say that eating less fiber has helped a teeny tiny bit with my intestinal pain. I also blend some of my food w a Ninja juicer and that has helped a bit.
I think its all a process of trial and error. There is no one set diet or set of foods that will work for everyone. For me I am nauseous no matter what I consume, but I have found that certain foods are a tiny bit easier to keep down, so I am sticking with those.
I am with you in the fight to avoid the hospital, it is my main goal right now. I wish you the best of luck in finding a solution that works for you. You are not alone with this. It is miserable, I know. Best wishes, Jess
Posts: 651 | From ct | Registered: Sep 2011
| IP: Logged |
sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Have you talked with your doctor about this? You may need to change your diet an add carbs back in. Not all people can stay on the no carb anti-yeast diet forever. I tried it early on and my doctor told me that I would not get well if I cut out all carbs. I was sicker and could not keep my blood sugar up.
Maybe you would do better adding in some brown rice with meals, cooked beans or lentils, quinoa, sprouted grain bread (like ezekiel bread), more whole grain stuff.
Remember your healthy fats like nuts, nut butters, avocadoes, coconut oil, olive oil, butter, etc...
If this doesn't help, try eating whatever you can tolerate even if that is some Ensure. You do need to continue taking in calories, fat, and protein for your body to heal.
Jess has a big thread on gastroparesis in medical right now. You may find more helpful information there too.
Take care.
Posts: 5237 | From here | Registered: Nov 2007
| IP: Logged |
MannaMe
Frequent Contributor (1K+ posts)
Member # 33330
posted
My husband uses a supplement called GI-Reviv when his stomach gets messed up.
Posts: 2252 | From USA | Registered: Aug 2011
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i am also in the same boat right now. eating gives me tremendous pain under both ribs going to my back. the pain is mind numbing. i can't describe.
so far i've lost about 10 pounds in two weeks. i have no appetite.
i did go to the er. waste of time...."indetermined upper abdominal pain"...and a shot of bentyl which did reduce the pain from an 8 to about a 2 to a 3.
couldn't give me painkillers cause i was alone and drove myself. but they did give me vicodan in pill form to take home.
i am constipated now and can't go. i just sit and sit...nothing..
something has really messed me up.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
Have you done a CDSA test and worked with a nutritionist?
I had lost a 3rd of my body weight in less than a year. The CDSA test and the doc who ran it helped work out what was going on.
Here's a link to a site about what you can eat when you can't eat anything. If you do a text search for CDSA (all caps), you can read about what the person went through.
I was on an all organic veggie diet with low-fat proteins and was still wasting away. Supplements weren't helping either because my gut was a mess.
It turns out I needed to completely change my diet ratio and also get rid an infection that was "caused" by antibiotics that I had taken over a year before.
I actually don't tolerate beans, whole grains and brown rice well at all and do better with diary and meat (go figure...). This is why it's so important to find a doc who knows about nutrition and can evaluate you on an individual basis.
Please get your gut checked. No doctor had thought to run a CDSA test on me and finally a doc ran one after 2 years of me being ill. It would have saved me so much time and money to get this done immediately.
Here are a couple places to do doctor searches for people who can run these:
This has happened to my husband repeatedly. His weight goes down, then when he starts to recover from the "bad periods" and he tries to pack it back on bc he doesnt want to end up too anorexic during the next weight loss period.
-------------------- IgM ++41, IND 31, 34, 39, 83-93 IgG IND 41
"To the world you may be one person, but to one person you may be the world." - unknown Posts: 72 | From NC | Registered: Sep 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic