posted
HOW ARE YOU TODAY?? FEELING ALL PERKY BECAUSE IT'S MONDAY???
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96237 | From Texas | Registered: Feb 2001
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aklnwlf
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Definitely not perky today, still sick.
Saturday-Cut a little grass and cleaned the inside of my car and washed the outside. Oh and did a couple of loads of laundry.
TuTu-Hope your feeling better. Was alarmed to read the tail end of last week's posts.
Kayak-Hope you're ok with the epoxy. That stuff can be potent.
Kam-Glad to hear that you're getting out and about with Rosie.
See you all tomorrow!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6352 | From Columbus, GA | Registered: Jul 2004
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kam
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Perky Smurkey....
Tutu...how is it going? Thx for starting the thread and keeping us connected.
Woke with what I call inflamed brain..
Took a couple of excedrin and waited.
Able to load the power chair and get out to the forest for 10 min. Good medicine.
Ice packs on the brain now. If it gets worse I will take more excedrin.
Ah..also able to go to the grocery stor eand get a couple of cartoons of goat's milk.
I wanted to do more shopping but was thankful for that I was able to get the milk.
Short conversation with a neighbor. One of the neighbors is going to an assistant living home as soon as they find one.
I am really thinking I would like to get out in the forest for a while and camp...the quiet I think would do me good.
But, it is just a thought now. A thought I have had many times before.
I'd need to go where it is cooler...I think. If I am up to it I could go to the campground about 3 miles from ehre and lay out at one of the campsites under a tree and see if it is too hot...test run.
But, for now..I need to lay ldow and pray this inflamed brain stuff goes away.
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kam
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Tried to watch a couple of movies I rented from netflix this weekend.
I wasn't able to watch them. Not sure why. I do know if they had closed caption I would have been able to take in what was being said.
I could hear the dialog ...but wasn't able to know what was being said....neuro stuff or hearing??
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kam
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ALW...hugs
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lpkayak
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i tried to move back in house today...sort of. with bed in livingroom...trying to make space for clothes, food , sleep and bills. its going slow cuz i have to wash every surface with mold killer before i put something there.
talked to homeowners ins lady(bad), bank(good), and lawyer(hopeful). have real appt with big wig lawyer wed...glad i passed the first part of his assistant checking out my story
and epoxy floor guy just left...said he could solve my problem permanently in living room hall and one bedroom in a few days for 3000.
im going to go look at a place he did.
all the things they say onine about epoxy floor that are bad he says arent true.
anyway...on top of all of this my daughter emailed me this morning she wants to come for lunch tomorrow. she is coming back from trip to hungary and stopping over in boston.
last conversation with her was pretty ruff...i'm a little afraid to see her. but i told her to come anytime and just be nice to me becasue i was exhausted. we'll see.
KAM-I know camping sounds nice but in reality i know i cant do it. when i get there i am not ok. controlling temperatures and comfy furniture and stuff are hard for me to go without
plus the bugs...when i moved my bedding in from the camper this morning a monster spider fell out so i had slept with him last night i guess. i was exhauseteed when i got in bed...guess im glad i didnt see him then. i never would have fallen asleep
AK-seems you do more sick than i do when well...i sure hope you get to feeling better soon...this seems to be going on too long
TUTU-hope you're feeling better too
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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kam
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Kayak..so good to hear the ball is still rolling and you are overcoming obstacles.
Able to color my hair today, rest and then try and use a curling iron on it.
Very unusual for me to be able to do this.
90% of today has been with ice packs on my head while lying down.
But, the wild and woolly look of my hair has been getting to me.
coloring it did not help. I ahve tried different shampoo's and conditioners adn not coloring it.
all of the above did not help.
This wild and woolly or dry and frizzy hair started when my health went south...so guessing it is the meds or health or ?
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kayak... sounds like you are moving on and UP! Hope your daughter's visit goes well!!
kam... good job on getting the coloring done. I've never done that. I would be clueless. All I've ever had done was highlights and I gave that up about 7 yrs ago.
Maybe you could take some Omega 3's to help with your hair?? or biotin??
I'm doing "OK".. my stomach is still pretty bad. I haven't taken any pain pills since Sat morning. Amazingly, I haven't "died" from the pain. Today was better than yesterday on the pain.
I talked to my cardio's nurse and she said not to worry about the low heart rate unless it continues and I begin fainting... oh great.
I will see the neurologist tomorrow morning... Nervous about that.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96237 | From Texas | Registered: Feb 2001
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lpkayak
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good luck tomorrow tute. not my favorite thing-a neurol...i keep postponing mine
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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kam
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Hugs Tutu.
I purchased hair color that foams on...I forgot the smell does me in...I was just trying to find something that might work as far as putting it on.
I will look into biotin. I am doing the omega stuff...kind of
I need to read how much I need to take a day.
Able to clean up in the kitchen a bit while in the power chair. HOping to go back and clean up some more.
It was so cool yesterday to go in the kitchen and be able to see one counter.
Small kitchen. Not much room at all so keeping counters clean is needed.
Able to put ice in one of the ice packs. I need to go back and fill up ice trays and get them back in the freezer.
Just putting the ice in the ice pack wore me out.
I put my trash bag outside my door yesterday as I was getting that strange smell in the kitchen again.
I put it in the hallway door. It disappeared.
Thankful for whoever walked by and took it to the dumpster.
time to get up and out. Not sure if I will load the power chair this am or just drive the 3 miles to the forest and let Rosie out to run.
Body is hurting. I think at this point..just getting in the car should be my goal.
Brain is limited too this am. So need to take things one small step at ta time.
Too weak yesterday to swallow my meds and supps. Tried eating a hard boiled egg and that had trouble getting down the esphogus (sp?)
So stuck with yogurt and applesauce yesterday.
Some days are like that...but usually when I have over done it. I didn't think I had over done it yesterday??
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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aklnwlf
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Well crap, still not well. Co-worker said it looks like I have pink eye so am going to the walk-in clinic after work.
Kayak-You're right, this has been going on to long with no improvement. Have been gargling with warm salt water for days. My co-worker said all that gargling wasn't going to help my eye. Cutting grass and cleaning my car didn't help either. Boy am I dumb!
Kam-I remember when my brain was giving me fits that I couldn't keep track of the plot of a movie let alone remember that I watched one. Don't beat yourself up about it though. I used to do that before I realized I had short term memory issues.
TuTu-Glad to hear you're feeling some relief. Hope and pray that you'll be ok.
I'll let you all know what they say at the doc-in-a-box.
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6352 | From Columbus, GA | Registered: Jul 2004
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kam... I know what you mean about kitchen counters. I've been allowing mine to get cluttered lately and I hate it. Gotta solve this problem, but I fear it is mostly laziness!!
The neuro was very nice and pretty thorough I think. I will go back Friday for an EMG... oh joy.
He thinks I have small fiber neuropathy and said it could be from Sjogren's or celiac. So he ran a blood test (2) for celiac. I hope it is definitive.
I've been gluten free for 6 yrs, but have felt that I am a true celiac. If I am FOR SURE, I will be even more vigilant about my diet. The only time it gets broken is if I get accidental ingestion at a restaurant or at a friend's house.
For now, he's putting me on neurontin. Not sure how that will go. Have had experience there already.
My stomach is better since I stopped the pain pills for two days. My feet are pretty bad today and they kept me awake last night.
Kayak.. hope your day goes well with all the work you have to do!!
AKL... get to feeling better soon, OK!? Quit working so hard!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96237 | From Texas | Registered: Feb 2001
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kam
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Tutu..the appt sounds like it went as well as possible.
I am taking gabapentin...6 pills a day.
I finally started sleeping once the gaba was added. I think gaba is generic for neurotin
i hope it helps you
pain wise my body is in pain most of the time....
primary doc I had at the time said that neuro's recommend more dosage than what he had me on..
I switched primary docs before the best dosage was figured out.
I tried takign it when I first got up and learned I can't do that..it really made me loopy.
But, I seem to be OK if I wait and take it with meals later in the day.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
yeah, I took neurontin (gaba) last month and I think it made me swell up
it was either that or it was too much salt or a combo
will try again with low salt
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96237 | From Texas | Registered: Feb 2001
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aklnwlf
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Well, I've got a sinus infection and pink eye.
So I'm on Amoxicillin 1,500 mg a day, in divided doses and a Sulfa eye drop.
So, I swear, I'm laying low this weekend.
Feel like I'm herxing, sweating and jittery, on only 2 doses.
It would figure.....
TuTu-I've tried Neurontin and Lyrica before. Made me to loopy. Should have tried what Kam did and wait until later in the day and take it with food. Good luck!
Kam-I know what you mean about being in pain all the time. My pain threshold is so high now that it takes alot for me to go to the doc when I'm sick or injured. I'm so used to toughing it out that sometimes I'm doing more harm than good.
Hope everyone has a great day and see you all tomorrow!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6352 | From Columbus, GA | Registered: Jul 2004
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Hope you feel better soon, AKL.. so glad you went to the DR!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96237 | From Texas | Registered: Feb 2001
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lpkayak
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ak...twice i went on for weeks with broken bones thinking it was "just lyme"
well this was one of those really bad days. its hot and humid here so that isnt helping. first i couldnt sleep last night so ened up cleaning-or something -until about 4am-then i slept til 10
woke hopeful my lawyer appt would go well. i tried to keep busy -forgot what i did...then got call from them just as i was about to shower and dress that they had a conflict of interest and cant represent me
i know the realtor is a powerful guy in this town and the truth is he did nothing wrong...and i really like him...and i dont want to go against him but the way the law works i will have to cuz he was the boss and his emplyee was bad.
but i am pretty sure i should just give up cuz it will be throwing money away even if i find a lawyer who will take me.
so i am sicker and sicker with chronic cough. pulmonary docs wont see me for a long time unless i go to er...so i just have to get really sick and then see what happens
i tried to pay my bills tonight in the house with the gas maks on and started coughing with it on!!!! i dont know what that means. it gave me the idea to check the filters on 2 ac and 2 dehumidifyers and they were all full of the concrete dust that made me sick b4 it was painted. i cleaned them but they are drying so nothein is on right now
tomorrow i have the satallite guy coming...does it make sense to get tv in a house you cant be in? i am so screwd up right now.
i see my primary friday and a realtor to see about selling the berlin house
i think there is a good chance i will have to live in camper and maybe a screen house or something until nov/dec and then go live in the one room in berlin with no shower for 2 months...
i just dont know. i feel likei need to isolate cuz there is nothinggood to say or think anymore
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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kam
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Able to drive on the 65 mph highway for est 3 or 5 miles and then back.
I read somewhere that it is good for the engine to do this once and awhile..especially if you usually don't get over 30 mph.
went to grocery store to pick up some carrot juice. used their elec cart. Ended up picking up a few more things.
Body is in pain now...the kind of pain that makes me very impatient and I can't think.
Wishing I had loaded up my power chair and taken it.
I also walked into the hardware store and got a rubber nob to put on the metal handle of my power chair.
I keep scrapping the walls with the metal handle.
got the wrong size so need to go back and exchange it when able....it took me months before I was doing well enough to replace the rubber end that disappeared.
Picked up a few more things while at the hard ware store too..pushed myself...
Also walked into cable company....phone is not working...
...That was OK once I was able to sit down and put my feet up on the other chair and slouch.
...Cable person is supposed to come out between 10 and noon.
..I also walked into the ma and pa health food store to look for raw honey. They were out.
Able to do more than norm this am. I wonder how long it is going to take before the pain becomes manageable.
Mostly lower back and lack of oxygen or blood to brain and limbs too I guess as right foot is numb again.
it does that when I over do it.
I am hoping they will provide wheel locks for the power chair lift.
Now, it takes too much out of me to load it, tie it down with 4 straps, release the straps, unload it, load it, unload it...at each stop I make. I am done in with one trip.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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aklnwlf
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Thursday-Feeling better today. Eyes don't bother me as much and throat is feeling much, much better.
Kayak-Don't give up on trying to find an attorney. Might have to find one in your state but not the same town.
I had an issue with my botched second shoulder surgery and had to go through a friend's brother, who's an attorney. He recommended someone and they emailed me to let me know that the statute of limitations had run out.
It was tough finding someone to even talk to me. Let me dink around on the Internet this afternnon and see if I can come up with anything to help.
Kam-Oh my gosh Kam! Hope you get those wheel locks. It does sound like quite a workout with all the tying down.
TuTu-I'm glad I went to the doc too. I'm so hard-headed.
See you all tomorrow!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6352 | From Columbus, GA | Registered: Jul 2004
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lpkayak
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i get impatient and cantthink when i cant breathe...i remembe yelling at the kids if i had to ask them to do something twice wheni was working in the bad air school building
now it is here
tv guy is here-im trying satalite for 25 a month instead of cable for 152.
hope i can leanr how to use it ...better go
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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kam
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Cable guy showed up. Phone is working now. Msg are going to a center now. Cable guy was not sure how to check for msg as he didn't have a land line.
So, wtg until my brain is working well enough I can read the directions. Makes me depressed that I am not able to read.
Speaking of reading. HOping to read what you are able to read what you all have been up to soon.
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kam
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I wasn't able to eat until after noon today. Woke up at 4 am or 3:30 am.
I need to get back to just doing one thing in the morning so I will not be so weak I can't eat.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kayak.. I'm so sorry to hear of all your troubles. Don't ever feel like you can't talk about it here or by phone.
WE will listen! Wish we could all help you figure things out.
kam... Are you getting cable .. or he's fixing your phone set-up??
AKL.. hope you feel better!!
I will have an EMG tomorrow. Please pray for me!! I am afraid of the pain it may cause me. Especially on my FEET!! ouch!
Right now my stomach is still HORRIBLE. I hope it shapes up by tomorrow. I made the mistake of eating some peanut butter and the fat was WAY too much for me.
I've only eaten toast and chicken soup today. Still in really bad pain. Thankfully, it lets up once in awhile.
Have a more restful night tonight everyone!! I didn't sleep well either. A storm woke me up twice.
-
OH!!! The GOOD NEWS!! I will pick up my prescribed orthotics tomorrow. I SO HOPE they will help my feet recover!!! I want to WALK!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96237 | From Texas | Registered: Feb 2001
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kam
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ALW...glad you are feeling better. Whewph
TUTU..i sure hope the shoes help.
Cable now has phone service for $20 a month including caller id, msg ctr, and long distance.
I needed cable to get the captel phone. I received an email letting me know that they are working at getting the captel phones out as soon as possible.
Hoping it helps and I am able to use the phone.
Captel phones are free with this company. Other companies wanted $100.
Kayak..that sounds like a good deal for satelite
You are dealing with a lot right now. System overload. Too bad we dont' have a defrag button.
It is tricky to know whether to spend the money on an attorney as you may not benefit from it.
Sending my imaginary limo and driver over. The driver will have a crew to take care of things at home while you take a break from all of this.
Where would you like to go? All expenses paid of course.
I slept for 5 hours after the cable guy left. It also was due to being able to run errands this am.
Hot here. Doin the monsoon rain dance so it will cool things off.
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kam
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Just checking in this am. Body is still in too much pain to do much so laying here trying to figure out what to try and do.
I am leaning towards loading the power chair and heading out to the forest.
I was able to fill up both sinks with hot, sudsy water and put dirty dishes in. Hoping to be able to wash them later.
I have lots of things I would like to do this am but health has to come first.
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lpkayak
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kam-thanks for thinking of me. it is a dilemma...with so little $ i really dont want to throe it away. i cant help burt think...why??? what did i do wrong to deserve this? what am i supposed to learn from this?
i know i have grown spiritually thru the whole thing cuz as obvious as it is that 2 parties were in ca-hoots to hide the problems here....i dont HATE them...i'm not BITTER OR ANGRY... just exhausted and wondering how to get to a better situation...and i know in my heart it is not my job to get back at them for what they did. some one else is in charge of that.
my biggest thought now is my years on earth may be much shorter. every time i get a whiff of mold and know it is going in my lungs...everytime i have a coughing fit and cant swtop...i know...this is not a good thing. it needs to get fixed fast and that doesnt seem possible.
i picked about a 250sf area to clean and tape off so i could do kitchen, bath and bills somewhere...and altho there are times it seems ok. b4 long i get sx.
last night i slept in the camper and when it was cool enough to turn off the ac and put on the fan the first bunch of cool air to come in was full of mold...the camper is near the house now and there are vents from the attic...yesterday was wicked hot and humid and as it cooled down i think the mold went crazy and started blooming right out the vents.
anyway...my vent for the say. i drive 2 hrs north for a primary "well visit" today. ha. she is too busy to get into for a sick visit. i wont remember everything. all the test results i am supposed to get (that i already got in the mail) have write up mistakes in them...soooo crazy this world. you are made to pay 1,000.s for a test...they screw it up...and oh well...just do it again. grrrrrr.
maybe i will feel a little better in the mt air...august is best up there.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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kam
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Kayak...I was reminded of something i heard lately when I read your post....not exactly what the person said as I can't recall..
but double trouble...double blessings or something like that. Sure hope so.
I too was thinking maybe things will be better in the fall when you can open up the house.
Your health is the main thing here.
I was able to load the power chair and cruise around on the streets in the forest.
Rosie wouldn't come when I called her again. She was down in the dry creek bed trying to get a can of cat food open...an animal had all ready bitten into it.
I went down into the creek bed and diffferent way this time...which worked better.
Able to carry out a bag of canned cat food cans.
Thsi is the 3rd bag. Weird. All I can think of is someone is using them as bait perhaps for ? kind of wild life?
Not sure what to do about it. The can blows up in the hot sun or I should say puffs up as it is still mostly closed.
Thinking of contacting Fish and Game if able to contact them via the web as I lie here. Or the police department.
Until I do, I need to stay away from that area with Rosie. It is too much on me to go down and clean up.
She has been taught to leave it and she will if you are right there. But, if you are far off she ignores me.
I headed towards the hardware store on the back roads this am to exchange teh nob cover for my power chair.
Stopped at one yard sale. So many homes in the area have steep driveways. I was fine going down but coming back out on my feet was too much.
headed towards the hardware store again. STopped at another yards sale (I need to let you know that the friend who gave me her car was a yard sale person...so I have no control over the car...it automatically turns towards the yard sale signs. HA!
This was in an area on a dirt road I had not been on before. I learned where the dance studio that use to be on Main ST moved too...it was the lady who was having the yard sale in the dance studio.
I don't like to take Rosie with me to the yard sale as people always want to talk about her. I can't talk and be on my feet too.
So I left Rosie in the car with the doors locked and the air conditioning on high.
Oops. LOcked the keys in the car. Lots of imput from people on what to do.
I also had cell phone at home charging...I had thought of it while driving out of the parking lot but thought it would take too much out of me to go back and get it so left it.
Learned the hide a key also is no longer on the car.
Thankful for the people who let me use their cell phone and called AAA for me.
It took two people. One dialed the number for me.
The other talked to AAA giving them my membership number and the address where my car was.
AAA said they would be calling the fire department to unlock the car since there was a dog inside.
I went to unload my power chair ...I thought i would recline in it in the shade while I waited.
Not able to unload it as I needed the keys.
Then, I thought I would get the lounge chair out of the back so I could lay down somewhere...oops...again...needed the keys.
I was done in just from being on my feet for the short time ..looking at the yard sale.
The lady kept talkign to me so I cut it short and decided to leave instead of telling her that I can't be on my feet and listen to people.
I had forgotten my ear muffs...they were in the car.
Another guy was directing traffic in the circle like area...telling them to park somewhere else as the fire department was coming.
Lots of people coming and going. It was too complicated for me.
One lady looked for a way to get in the car...she discovered the back tail gate of the car was unlocked and was able to open it about a foot if that.
BEcause the power chair was on the lift and I did nto have the keys I could not do the swim away so I could get in.
One of the ladies was able to get in..an older lady than me. And weighed about as much as I did ...go figure. I was impressed.
She climbed in the back and then over the back seat to open up the car.
Mission accomplished. I left after the yard sale lady called AAA back for me to let them know.
I left embarassed and feeling like I was going to toss my cookies from being on my feet too long or sitting or trying to hold what conversations were needed to get the job done.
I sure could have used a cell phone with relay or captel service.
I have tried getting more keys made for the car. I even went to the local key maker as the hardware store and where ever else I went when I first got the car where not able to make a key that worked.
Time to try that again. Keep one in my purse and one in a metal hide a key on the car.
I also Need a harness for Rosie to help me stabilize while on my feet...and take her with me instead of leaving her in the car.
The organization that provided the lift said they would purchase a harness for me.
But, I asked if it wouldn't be possible to do the wheel locks instead. It is rare I am able to be on my feet ...I would get more use out of wheel locks.
And Rosie is 8 yrs old now. She really is getting to the retirement age.
I have noticed she is really slowing down and less active.
Time for ice packs on my brain...all of that made the brain inflamation worse. But, getting up to get them ....well..I'll just lie here some more until I am OK with getting up to get them.
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aklnwlf
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I'm doing my Friday dance!
Meant to exercise today but slept til 10 and then had to get ready for work.
If you have time check it out. I hope it helps. I'll be looking for other info too.
Kam-OMG! Sounds like quite the ordeal at the yard sale. So glad that someone was able to help you.
TuTu-Hope the EMG goes as pain-free as possible. Let us know how those new orthotics workout.
Hope you all have a great weekend!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6352 | From Columbus, GA | Registered: Jul 2004
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kam
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Typed a long report. Got up to get my ear muffs as the carpet shampoo truck is outside my door cleaning the upstairs apartment...it is very load when it is running.
Came back and my report was gone.
Bottom line is I went to cable company. Phone is still not working.
Went to hardware store adn exchanged the cap to go on the end of the power chair.
Something went wrong when I tried to load the power chair.
Went to mech. They were able to fix the one tie down that was bent.
But, the joy stick mech is still bent so not sure how things will go next time I try to load it.
HOping my brain will remember it is messed up so I take it slow and easy and don't crunch it like I did to bend it out.
It is not clearing the black box thing now when I load it. It is under the black box and the box comes down and scrunches it.
Very unsual for me to be able to run errands after 9 am but my adrenaline was going with the phone thing.
Especially since i listened to an old msg and learned this phone thing has been going on since the 31st of May.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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lpkayak
Honored Contributor (10K+ posts)
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posted
ak-thank you-i got some #'s
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
My mind wants to do more than my body or brain can do this am. So, trying to decide which things to choose to do.
Body is not very strong this am ...over did it yesterday but thankful for all I was able to do.
So, getting up now to take a much needed sit down shower....afterall...it is Saturday. HA!
I think it was last Saturday that I was able to take a shower.
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Able to do the sit down shower. I remembered to put in my ear plugs as the sound of the shower is too much.
DRove Rosie out to the forest. She ran while I drove.
Wanted to do more this am but it is one of those times it is not safe to push myself...
I did stop by the feedstore to see what time it opens on the way back...ran over some parking berms while I was there...confirmed I needed to get home before i do some real damage.
Hot out all ready at 7:30 am
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
PS Just learned that a friend from CA is coming to AZ to stay in a cabin/lodge that allows dogs and I am welcome.
The place is 3 hrs from here ...the drive is all thru the ponderosa forest as far as I can tell via mapqwest.
So, I am going to try and do what i can this week and then rest next week. I am hoping that will help me have some strength and stamina to do things.
Also packing this week. I think it is about 10 degrees cooler there. Not sure if it is power chair friendly.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
kam... I wish someone could drive you there!!! This seems impossible to me... but I hope you CAN do it.
It would be so great to see some "old" friends.
The EMG was BAD, but I survived. I took a Vicodin and a Xanax before going! SOOOO glad I did! The electrical shocks were the worst. Now I know what torture is. But at least each shock was only a few seconds.
Had probably 50 shocks.
The doctor did the needle part and most of the time those were not bad. When he hit a painful area, he would move it slightly and it would be better.
Found out:
I have small fiber neuropathy, no neuro-muscular diseases, do not need surgery for neck or back, and I have carpal tunnel in both hands. No shock there!
The new orthotics feel GOOD!!!! I'm PRAYING and oh so hopeful this will turn me around. If the plantar fasciitis will calm down, there is a chance that the neuropathy will too. (doc said that)
he also gave me Cymbalta for pain, but I'm going to wait on that until my stomach pain settles down...still can't eat much .. NO fats right now
hope to have a much calmer week next week...
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96237 | From Texas | Registered: Feb 2001
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Tutu...I haven't asked about the details yet. I am thinking that my friend will be driving me there.
Ah. I thought i had an EMG when I was first looking for answers.
I had about 3 of them as each doc said that they needed to do the testing as the testing is frequently done wrong. Go figure.
I just recall having to go straight to the bathroom after each time. it was as if I were Yule Gibbons (SP? Name?) and had been out in the forest eating twigs and sticks??
Guessing the elec shocks killed off parasites??
Glad you don't need surgery. Hope the cymbalta helps.
Yes. HOpe this coming week is a calmer one for you and you are able to lay low adn regroup.
Cool the ortho's feel good.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
That would be GREAT, kam!! I was afraid your friend thought you were well enough to drive.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96237 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
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posted
tutu-hope you keep feeling better. its good when you get answers. i couldnt take the cymbalta but i know many can.
really good news about orthotics
i am in mts-hard to breathe even here during the day-harder to do any packing or making the place look better. had my primary appt---she is good but noone can help breathing unless i can find records from 12 yrs ago...i forgot docs name...
they say not to move too much and go to er if bad and that way i will get specialist
anyway...i am not thinking well but it seems i should saty up here a little bit cuz it is cooler than down below
kam...good luck. i cant imagine doing something like that now
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
kayak...glad you are in a cooler place. Hoping the rest will help you regroup.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
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I have been making a list of things to take for the trip.
So much different now than when I would just put some things in a suitcase an hour before I left.
Power chair, battery charger, peltor ear protection muffs, etc etc.
My main concern is I don't know how it will effect me being around people. I usually can't handle that.
Food is also something I will be packing as I usually can not go out to eat. There is a restaurant at the lodge but doubt I will be doing that.
Wondering too what it will be like for my power chair. Will I be able to get around??
The power chair can handle some dirt roads but my body can't. It hurts too much so I try and stay on paved roads.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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One problem with my orthotics. They are rubbing on my heel. They made a "heel cup" and I have calcification at the back of my heels. It is rubbing on my heels.
They said they will work with me, but I'm so tired of having problem upon problem. Anybody relate??
The heels are so bad that I have to sleep with my feet on a squishy pillow. Been that way for several years.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96237 | From Texas | Registered: Feb 2001
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lpkayak
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problem upon problem? yep i can relate...
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
that sounds tricky tutu
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
We'll survive! Look how tough we all are!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96237 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i wonder if the lawyers keep dropping me cuz i write on here about what it is going on. they probably do a web search and see how wacky i am and dont want anything to do with me. i should probably erase everything and only talk about the nice things in my life. but-honest...i need you guys. i really do. this is hard.
huh-i just googled me. im all over the place. even in branson!!! but the only reference to me and mold was in seattle and an LP was havong trouble with ceramic molds or something.
there are 2 around here...and the only one i knew about in ny she cuz kept screwing up my credit report.
i dont know what to do. but my meds are in so i better start moving. i go up to the mts later in the week with sign with realtor and take pics.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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