posted
What if we could get 50 dedicated people, one from each US state to collect as many documented cases of Lyme and map it on each seperate state map. When we are done we could assess all info and could develop it into a useful piece of informantion, contact the most outspoken and motivated reporter, congressman/woman, or celebrity to help us make a claim that Lyme is much more common than the gov't leads the nation to believe. It might even help show trends as to where the disease has exploded or calmed down. How could a person get this type of info. I would be willing to do it for Ks. I would post a request on facebook, a state wide Lyme site, contact the Lyme support groups I am familiar with, any way I can think of to get responses and document as much as possible about each case, who diagnosed them and treatment. I would be a big undertaking, but one that might give us a direction and power to state our case. I have read people with chronic illnesses need a purpose. I would rather focus on this than my daily ache and pains.
Posts: 620 | From Ks | Registered: Oct 2011
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posted
I would leave out how WHO is diagnosing and TREATING the Lyme.
To reach enough people you would indeed need to use Facebook.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
I would love to help..I'm in Ohio, Lyme has exploded here.. we already have a list of over 2,000 facebook names from the IDSA's "How can we improve this year?" list.
posted
Could we take the list and itemize and categorize it into states and list people in each state. I agree, we should leave out who is treating and diagnosing. Just for kicks lets start a list and see if we can get a volunteer from each state to brainstorm and see what we can do.
So far we have two interested. Ks Ohio Anybody else interested?
Posts: 620 | From Ks | Registered: Oct 2011
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Brain is inflamed so only catching bits and pieces of this post.
I was reminded of my contact with CALDA (CA Lyme Disease Assoc) re: the same subject.
They needed someone at that time to write the program.
It would be great if someone could do this.
Then, we could answer the questions on line.
My interest was in stats as far as treatment...how many got well, how many impoved, how many died, how many remained the same, etc.
Over a period of time.
Check back with the person in a year, 2yrs, etc.
Ok brain is going and I am getting off track.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
That's what we plan to do, but you have to get the latitude and longitude, several attributes from the infected person to make an effective GIS map.....
Posts: 532 | From Texas | Registered: Oct 2004
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