posted
Hi everyone. I spent last night in the emergency room. I started to have terrible symptoms after drinking a lot of water relatively quickly. I was shaking and nauseous and so dizzy and had terrible chest pain. I was diagnosed with hyponatremia, or low serum sodium levels and had to be given a saline IV to correct this.
I want to remind everyone to be careful with both water loss and over consumption of water. Low sodium is not a joke and it can actually kill you. I was alone in my house last night when the symptoms hit and I was utterly terrified that I was going to die. I am now drinking gatorade around the clock per my drs orders to keep my electrolytes in balance.
Please be careful to watch electrolyte levels. A lot of the symptoms of low sodium can seem like neuro lyme symptoms but the electrolye imbalances can be acutely dangerous. Jess.
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lpkayak
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posted
wow-glad u are ok.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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surprise
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posted
So sorry!
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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BoxerMom
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posted
Jess - I'm so glad you went to the ER instead of toughing it out. And thanks for posting.
Both Babesia and adrenal insufficiency (often due to Babesia) are notorious for causing low sodium. Many of us feel better with a pinch of sea salt in our water throughout the day.
Keebler
Honored Contributor (25K+ posts)
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posted
- Glad you are on the mend but when you say you are
"now drinking gatorade around the clock" I just shudder.
That's really junk food (either sugar and dyes and additives to get you addicted to the taste with other chemicals as preservatives; or toxic sweeteners and all that other stuff).
Then you have the BPA and other endocrine disruptors that leach from the plastic bottle.
There are much better options. Sorry your doctor did not tell you this.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- BoxerMom,
Thanks for that link. Nice to see no additives at all. This is the best formula of all I've seen.
I know it's just not practical to have everything in a glass bottle, so when we do buy things that just come that way, it's good to then put it in a glass bottle before putting in fridge.
Best to not drink directly from any bottle itself so as to keep it as clean as possible. This should last for 67 doses.
I know that additives, colors, dyes, flavor, sugar or sweeteners are not necessary. Glad Dr. K think so, too. Simple, basic nutrients & water:
Amount per Serving:
Sodium (as chloride and bicarbonate 75mg or 3%.
Potassium (as bicarbonate, chloride & phosphate) 127mg or 4%.
Phosphorous (as phosphate) 225.5mg or 23%.
Magnesium (as chloride & sulfate)18.5mg or 4%.
Bicarbonate (as sodium & potassium) 71mg.
Sulfate (as magnesium) 3mg.
Chloride (as magnesium, sodium & potassium) 128mg or 4%.
Other ingredients: Distilled Water.
*Percent daily values are based on a 2000 calorie diet. -
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Keebler
Honored Contributor (25K+ posts)
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Ingredient list exactly as above, dose per dose (just minus all the water, though some is probably used to get the power into a powder). -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
- So this can become a nice ELECTROLYTE reference thread, some basics for those who may not know how important electrolytes are and how our diet can be the best source for achieving electrolyte balance on an on-going basis.
Go SLOW WITH WATER, too. It's good to drink enough, of course. Just take it easy, don't create a flash flood as too much water all at once can rob us of essential nutrients & electrolytes - it all washes out too fast.
Only recently did I learn not to gulp a full glass of water at one time. Who knew? Not I.
As this seems a good place for this, I did learn in my young years to never drink an ice-cold drink when my body was already overheated. Too shocking to the heart.
FOOD SOURCES are best to keep us in the clear, too. Still, it's good to have on hand a replacement formula -- had I known this years ago, I may have avoided a trip to the emergency room.
Many links pop up from a basic search. Just three of those:
Electrolytes are minerals in your blood and other body fluids that carry an electric charge.
Electrolytes affect the amount of water in your body, the acidity of your blood (pH), your muscle function, and other important processes. You lose electrolytes when you sweat. You must replace them . . . .
[Specific electrolytes listed and more detail at link above.]
posted
Thanks everyone so much. I am feeling better than last night, that's for sure. I was truly convinced I was a goner for a few minutes there-I was that profoundly ill. I have a newfound respect for the power of sodium lol. Thanks again for the kind words. Jess.
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dbpei
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So glad you are doing better. Thanks for the info too!
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Jane2904
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posted
Phew!! That must of been scary. So glad you are feeling better.
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sammy
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posted
The EmergenC product would not be a good electrolyte solution to replace your Gatorade. It does not contain Sodium. The doctor wants you to have sodium to treat your hyponatremia.
My LLMD has also told me to start drinking Gatorade because I've been having a hard time staying hydrated and keeping my electrolytes balanced on my weekly labs. BUN is elevated, sodium and potassium and too low.
I just started drinking the Gatorade and hope that it will help me feel better. I hope that you feel better too Jess Posts: 5237 | From here | Registered: Nov 2007
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posted
Thanks Sammy-the Gatorade is helping me feel better already. I hope you improve with it soon too! Jess.
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randibear
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posted
I thought Gatorade had too much sugar?
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
Randi-for many people it does contain too much sugar. I am someone who needs the Gatorade however as I have issues with my electrolytes and the only thing that has helped me in the past is Gatorade. my LLMD who is ILADS trained even told me to drink it. I already feel a positive difference after drinking it all day today. This may not work for everyone, but it most definitely is helping and essential for me right now. Jess.
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posted
Tickled, I had severe dizziness and chest pain and spasms and nausea. I couldn't see straight and I felt on the verge of collapse. It was utterly terrifying. Gatorade really is helping me enormously already. I feel much clearer and stronger than I did last night. Jess.
Posts: 651 | From ct | Registered: Sep 2011
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posted
No I was driven to hospital by my ex boyfriend actually. I called him to come over immediately after my llmd told me to get to the hospital and he shot over. He carried me into the car and the er and everything, as I was too weak to stand. It was really scary. And yes, I do have POTS. Jess.
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tickled1
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posted
Didn't you have C Diff at one point? Not to get graphic but how are your BM's? You couldn't still have C Diff could you causing you to become dehydrated?
When I ended up in ER a couple of wks. ago for C Diff and they gave me IV fluids I went from feeling like death to feeling great in a short period of time.
Posts: 2541 | From Northeast | Registered: Jan 2008
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posted
Tickled-I had an extremely severe case of c diff. Thankfully, just had another comprehensive stool test 2 weeks ago and I am free of c diff. You are so right about the iv helping so much though. My ex boyfriend said it was like "watching lazarus rise from the dead" .
He said I went from being pale and listless to getting color back and looking ALIVE again. He was like, "my god-in just two hours on that IV you were...reborn" lol. It really is amazing how awful depleted electrolytes can make you feel. Jess.
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tickled1
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Yes, that has happened to me several times as far as perking up after IV's. Many times not knowing I was dehydrated and having no reason for being dehydrated. Why did they say this happened to you?
Posts: 2541 | From Northeast | Registered: Jan 2008
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posted
I actually depleted my sodium from drinking too much water too quickly. I have gastroparesis and I never feel hunger and I am quite underweight but the meds I am on make me terribly thirsty and I just drank too much water too quickly last night and I also barely ate yesterday and the combo led to a serious and rapid depletion of my serum sodium and thus the horrible symptoms. Jess.
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tickled1
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How much water did you drink?
Posts: 2541 | From Northeast | Registered: Jan 2008
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posted
I had to have had at least 5 9 ounces glasses in less than an hour. I was terribly thirsty..and it just overwhelmed my system. my dr thinks my sodium was prob a little low to begin with and that extra fluid just tipped me over the edge into dangerously low territory. Jess.
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tickled1
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Wow, I've probably drank that much in that amount of time. Glad you are doing better. Take it easy!
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posted
Thanks a lot!
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Keebler
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- To know "five 9-ounce glasses in an hour" (45 ounces) helps put things in perspective (as one quart = 32 ounces).
I'm sure I've been that thirsty before when I forgot to keep up. I use to just forget - or at other times, so thirsty all the time that I had to really monitor myself to not overdo it.
In the future, to know that if we can keep hydrated all throughout the day, on even keel, we are less likely to become dehydrated and intensely crave so much then all at once.
It's good to take a cup of water as soon as we awaken each day as we do get dehydrated often overnight. With the huge cups and mugs so popular today, though, remember a cup is 8 ounces.
And, for some, a half cup will do and they need to spread it out more slowly.
Sometimes with lyme, the endocrine system and the brain's messages to us gets short-circuited -- so be aware that we may not be able to just "listen to our body" all the time but do what we know we need to do, anyway.
Also be aware that, for some, they need individualized water totals (can't say that correctly).
I do best with 3 quarts to 4 quarts (one gallon) a day. But, for some, that would be WAY too much.
Get your LLMDs advice for YOU. -
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Kudzuslipper
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Jess, I am so glad you are ok. Glad your ex was there for you.
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beaches
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posted
Jess, not to be personal or anything, but why is he your ex? Sounds to me like he could be quite a good contender for the future maybe...? Something for you to consider?
I've been in the ER with low sodium and it was VERY scary as I had never experienced that before. Thankfully it happened only once and that was enough for me!
My kids have been advised to take in gatorade at various times for various reasons. I just wish gatorade was available without all the artificial ingredients.
As for me, I drink water all day. I estimate that I consume at least 4 bottles of water daily, not including a cup of coffee in the morning and a glass or two of juice during the day.
Posts: 1885 | From here | Registered: Jul 2012
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posted
beaches, yes low sodium is very scary. I think that if you arent getting any symptoms of low sodium then you are probably drinking an ok amount for your body. Um...he's my ex by my choice, not his lol.
He is a wonderful person but I don't know if he'll be a contender for the future. I do know that I trust him more than almost anyone I have ever known however, and he has always loved and supported me unconditionally-including and especially since I have been ill- and that's priceless. Jess.
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linky123
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posted
So glad you are ok and your ex came through for you too.
Take care and God bless.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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beaches
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posted
Not to pry or sound motherly but if by your account he is a wonderful person and you trust him more than almost anyone you have ever known and he has always loved and supported you unconditionally including and especially since you became ill----why isn't he your current?
Sounds to me like he loves you unconditionally and you've got a winner on your hands. Is it possible that you don't think you are worthy of this man's love for you?
Posts: 1885 | From here | Registered: Jul 2012
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posted
Wow beaches-you're getting profound on me lol. No hes a wonderful man but I am not in love with him. I am actually very much in love with someone else at the moment , and I can't pretend to be in love with my ex when I am not.
That being said, he is a wonderful person as I stated and his love and loyalty towards me is incredibly appreciated ..... How did my thread on low sodium turn into a confessional on my love life ? haha...Thanks for the kind counsel, beaches. And I do think I am worthy of love, no worries . Thanks again. Jess.
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tickled1
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Hope your current love turns into the right combination of fireworks and unconditional love Posts: 2541 | From Northeast | Registered: Jan 2008
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posted
Tickled-let's hope someday... My current object of affection doesn't yet know I love him....I am shy . Thanks so much. Jess.
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Keebler
Honored Contributor (25K+ posts)
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posted
- beaches,
you say that you "just wish gatorade was available without all the artificial ingredients."
There IS - it's just not from the company that makes Gatorade.
This is what Dr. K recommends.
Easy for your kids to have packets with them and add to water - but it also comes in bottles.
If they need carbohydrates, apples and carrots are always easy to carry, too.
Ingredients - (in the Lemon-Lime) -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- beaches,
For your kids:
FOOD SOURCES are best to keep us in the clear, too. Still, it's good to have on hand a replacement formula -- had I known this years ago, I may have avoided a trip to the emergency room.
Many links pop up from a basic search. Just three of those:
Electrolytes are minerals in your blood and other body fluids that carry an electric charge.
Electrolytes affect the amount of water in your body, the acidity of your blood (pH), your muscle function, and other important processes. You lose electrolytes when you sweat. You must replace them . . . .
[Specific electrolytes listed and more detail at link above.]
This is why it's important to drop all food dyes and chemical additives.
A note about "natural flavors" - while often they are addictive chemical additives and not natural at all, sometimes, they may be.
We have to find out exactly what that means for anything we might want to consume which contains that. A few minutes of research can really pay off for our safety. And we have to go beyond the actual company's product detail to find that.
Excitotoxins; MSG; Aspartame; & "Natural" Flavors -
Posts: 48021 | From Tree House | Registered: Jul 2007
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beaches
Frequent Contributor (1K+ posts)
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posted
Keebler, Thank you SO MUCH for this information. I had no idea I could get this without all the crap in it!
And Jess, I don't mean to be profound Just making observations and assessing the situation from afar even though it's none of my business whatsoever!
I hope you find that the object of your affections is similarly very much in love with you. Ahem, I think you need to get over your shyness in that regard but again, none of my business!
Posts: 1885 | From here | Registered: Jul 2012
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surprise
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posted
They took off the soaps on TV Chastain, we need to follow something, lol. Let us know
if you get any jewelry, or anything.
Just kidding, glad you're feeling better.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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posted
HA-Surprise that is funny. I told my best friend the other day that my life is very "Days Of Our Lives" right now. I am not a girl that really wants or needs jewelry either. My ex who took me to the ER did buy me a crock pot this week though...made me happier than almost anything . Thanks for the well wishes. Jess.
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Just pulled some of the links I posted above and added many new ones, too. So here's a nice reference link for everyone to post in their handy computer file:
REFERENCE LINKS -
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Rumigirl
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Member # 15091
posted
chastain, I'm so glad that you pulled through this one ok!
ARe you on Florinef? It doesn't sound like you are, but it sure sounds like you should be. It is given to those of us with low BP, and low sodium, Neurally Mediated Hypotension, and POTS. It makes you retain sodium. I couldn't be upright without it. It is also given with a beta blocker, if you have POTS.
For Pete's sake get your LLMD to rx it for you! Usually, you start at .1 mg in the am, and can take another 1/2 to 1 whole pill in the afternoon, if needed. A beta blocker, such as atenolol is added with POTS.
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posted
Rumi-thanks a lot.. I am going to the cardiologist next week for some testing and then they will most likely start me on the Florinef...I would do anything to avoid another episode like I experienced last week.
I have also been continuing to experience lots of symptoms related to my low blood pressure like lightheadedness, rapid heart beat and feeling faint suddenly. Ugh...I am hoping something will work for it soon. Thanks again, Jess.
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dbpei
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posted
Chastain, drinking a pot of licorice tea every day has raised and stabilized my BP. I had also been having a lot of spells where my heart would race and I felt like I was going to faint - especially when changing positions in yoga. This has gotten better - not totally gone, but definitely better with the tea.
Ask your MD if this would be okay for you. Good luck!
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AuntyLynn
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posted
What? NO ONE even mentioned GREEN COCONUT WATER??
This is far more readily available - at your local grocery store - and is so close to the the electrolytes in human blood that surgeons in the WWII Pacific Theatre used it for transfusions when their whole blood supplies ran out!
I would recommend Zico brand over Vita Coco (As vita has some 'natural flavors' that some have complained about on these boards.) I also prefer the non-flavored varieties.
A friend of mine was so ill with Swine Flu a couple of years ago (confirmed by lab) that he couldn't even keep water down - but a glass of Zico by the bed, sipped through the night, brought his appetite on by morning.
Natural electrolyte mixes are fine - but if you want something "all natural," readily available, and very portable, I suggest the coconut water.
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dbpei
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Good to know, aunty lynn. Thanks!
Posts: 2386 | From New England | Registered: Aug 2011
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posted
And if you're in a bind and only Gatorade is available.. buy the "G2" .. It has less sugar. It may have artificial stuff in it. I'm not sure.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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sammy
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posted
Gatorade G2 only has 5g of sugar for one serving. It is sweetened with splenda. The original has 14g of sugar.
Their website says that they have a G2 "natural" made with sea salt and real fruit flavors. I've not seen it at my grocery store yet.
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Rumigirl
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posted
Good, I'm glad that you will see a cardiologist to get this straightened out. You surely need the meds for it, as it sounds like you do have POTS.
In case he does a tilt-table test on you (not sure if it would be in the first visit or not), you probably should have someone come with
you, in case you are not in good shape afterwards. ASk the sec'y n the phone if he does this in the first visit, or if it would be scheduled for another time.
Enough already with the horrible symptoms!
Another thing: if you have a tendency towards migraines, as I do, florinef can exacerbate that if you go much above .1 mg. However, when you take a beta blocker, as you will likely be
given for POTS, that negates that problem in my experience (and I'm extremely sensitive to anything that can cause migraines/headaches).
For the life of me, I can't understand how you are able to work with all you have to deal with--except that I guess you have no choice. Have you applied for disability? Not that it pays a lot, but still . . .
Posts: 3771 | From around | Registered: Mar 2008
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posted
Rumi-thanks so much for the support and the tips. I could stop working if I wanted to but I do not want to. I love my work as an editor so much. It is my comfort and escape and without my work, I would fall into a major depression. Thanks again so much, Jess.
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AuntyLynn
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posted
Beaches = hard-core romantic!
"Matchmaker, matchmaker make me a match!"
LOL! Posts: 1432 | From New Jersey | Registered: Jan 2012
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beaches
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posted
Chastain, Rumigirl makes a good point about the tilt-table test. If they are going to do that, make sure you have a ride home. My daughter had this test, vomited during it, and was good for nothing afterwards.
Rumigirl, I did not know about the migraine issue as it relates to the florinef, nor would I have ever thought that a beta-blocker would be helpful for POTS b/c my understanding was that class of drugs is only used to lower BP, which POTS patients don't need. This is good information for me to know.
Aunty Lynn, my name ain't beaches for nothing! And women of a certain age like me (and you?) just sense things. Let's leave it at that, for now Posts: 1885 | From here | Registered: Jul 2012
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Rumigirl
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posted
The reason that a beta blocker is often rx'd with Florinef, if you have POTS, is to prevent the tachycardia. I know it seems counter-intuitive, but it works! Read Wild Condor's article, called, Backwards Blood Pressure, in the sticky at the top of Medical Q's.
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beaches
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Yes, it does seem counter-intuitive. Thanks very much for this info.
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nonna05
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posted
Love and attention ,with Gatorade and salt//
Is that the answer?
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
Nonna, love and attention never hurts for sure.
The salt thing is regarding low blood sodium levels, which can lead to coma if not corrected in a timely manner.
Usually when people have low blood sodium levels, they are rushed to the ER due to their symptoms, which can include coma.
As for the gatorade, check out what Keebler posted above as good alternatives.
Is this THE answer? Hardly. It's just yet another thing that people might have to deal with.
I know you are going through a lot. I wish you the best.
Posts: 1885 | From here | Registered: Jul 2012
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posted
Hi everyone-I have had a tilt table test before, and that is how I got my diagnosis of POTS. My best friend is taking me to the dr and driving me home in case the test is repeated next week.
Also beaches-you crack me up lol...Put a love spell for me on the man I am truly in love with and I will be in yr debt forever . Thanks everyone again for the info-esp you rumi. Jess.
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lyme in Putnam
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Member # 11561
posted
Hi. I've had hyponatremia since 2004. Under control with fluid restriction, 6000 mg salt, lasix and florinef. I hope your salt stays ok. Any questions about it, shoot. Feel good.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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