posted
This is an idea that is being bandied round by some - since Lyme is named for Lyme, CT, what if we got it elsewhere, and so to name it for the place we got it, or some plural expression of it, or some unknown term if we don't know.
Like, I have Big Sur disease, since that's where I got it. (In-The-Grass-On-My-Foot would be a variety of it.)
Some are calling it In-My-Backyard disease; some, Sidewalk Veg disease; some, That Tree disease; one woman is calling hers In The House disease, since she got it from a tick off the dog.
Some, Foothills disease; some, Sandy Beach disease, if they think they were bitten by sand fleas; some, Many Places disease; some, In-The-Air disease, if they think an airborne bug bit them: some, Unknown-Whereabouts disease, etc etc.
Sometimes this would be confusing, admittedly, like if someone got Lyme in Hadlyme, then to answer where did you get yours, to answer Hadlyme might be confusing, so just explain the rule to someone.
Posts: 13117 | From San Francisco | Registered: May 2006
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posted
Hmmm, how about lawnchair disease. The tick had been crawling about the lawnchair and decided my left thigh looked delish. Or, leftthigh disease...
Posts: 482 | From Oregon | Registered: Feb 2011
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droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
I think think the name lyme needs to be changed for there to be any progress made. People get confused when they hear lyme because they don't understand the difference between acute and chronic.
They are two completely different animals and should be named that way.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- How about always using the real scientific name, Borrelia b. -
- or even neuroborreliosis for chronic manifestation as, when chronic, it's always affected the nervous system, even if also joints, various organs, etc.
As many LLMDs are now doing, too, add "complex" or something similar to it as it's nearly never just Borrelia.
"Complex" can cover various things as it's also never the same for everyone with Borrelia.
The term "multiple stealth infections" can also have its place.
Still, that does not hit home always the "systems failures" that can go along with Borrelia complex, the kind of things that might be categorized as conditions that accompany all this, such as liver stress, adrenal dysfunction, immune system boomerang, etc.
"Kaput" works to describe the effects on my body, though, it can trivialize if the wrong people hear that. What's a scientific, medical term for "totally kaput"? -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Ha - you all are giving fodder to the awareness we all have about just How Many Ways this illness presents.
Woods disease, Somerville disease, Texas disease (I bet a bunch of state diseases will join you on that one)
Lawnchair disease, LeftThigh disease...
So, Droid, you have one of two Completely Different Animals disease, and I bet yours is the Chronic Form...
Keebler, I think Totally Kaput disease is understandable, but I did look up a Latin translation, and the closest I found is Universitasly Capitis disease. You could try that out on someone.
We could make this even pithier if we add Chronic to our descriptive phrase, as in I have Chronic In-The-Grass-On-My-Foot disease...
Posts: 13117 | From San Francisco | Registered: May 2006
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
'Here kitty, kitty, kitty...$100,000 cat and mouse game'
Feeding and trying to tame feral cats, led to chronic Lyme and Bartonella, and passed congenital to a sweet baby girl.
(Sorry cat lovers)
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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posted
Hopefully one day a name will be widespread that encompasses the whole disease complex and not just the Borrelia...I'm wondering if the MSIDS will ever latch on in the community.
Whatever the name ends up being, I just hope people have an easier time of knowing whether it's plural or not haha!
-------------------- You name it, I've got it. Full-time medical anomaly. Posts: 432 | From Southeast | Registered: Aug 2011
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payne
Frequent Contributor (1K+ posts)
Member # 26248
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
Horowitz has it right with MSIDS. Lyme can be dormant but cause a million other problems so it's not lyme that needs addressed specifically in all cases.
Plus MSIDS would give an out to all the old Dr's who wrote the original guidelines. They wouldn't have to admit fault for causing such damage. And more importantly change the views of the insurance companies since lyme carries such a bad rep.
posted
I actually wrote this as an April Fool's joke, but now I see it's being taken seriously!
So...Surprise, I often say that - ie, spirochetal bacterial infection - which prefers lipids - ie fat, so gets into the brain within 12-24 hours and starts to inflame the nerves, including the spinal cord, THEN can corkscrew through tissues anywhere and cause inflammation.
Yeah, Life+Lyme, if people ever call it a Disease Complex, I can just see some saying Disease Complexes...
I like that, Payne! RIP Disease! How about Really Insipid Pestulant Disease?
Thanks for responses, everyone - shows thoughtfulness on the part of all here -
Hats off to "Here Kitty, Kitty, Kitty $100,000 Cat And Mouse Game Disease"! Imagine being on a health show and when asked what you have, saying that! I can't even say it with a straight face!
Reminds me of my folks calling our cat the $10,000 cat (things were cheaper in those days), 'cause when they sold the house, the cat had scratched up the grasscloth walls and so the house sold for $10,000 less.
Posts: 13117 | From San Francisco | Registered: May 2006
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