posted
Hey everyone!! Hope your day is going well!!!
Guess what!? We don't have to move!! WHEW!!! At least this has made me want to clean out the junk in this place!!!
First I'm going to take things to consignment. I'll have to get some help for that. I already have a friend lined up to help me.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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kam
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Tutu....I would like to do the same thing....declutter that is.
one of these days.
Good you don't have to move...i know just thinking about moving is stressful.
Able to be on my feet an est of 5 min this am. Went out to the trail near the rodeo grounds.
It is not an easy trail to walk on.
Had my hair cut. It is wash and wear kind of hair do.
Ordered some samples of mascara, lipstick etc.....don't want to pay the price for a regular lipstick as I rarely have what it takes to put make up on....for the past 12 yrs now.
Good news is I was able to sign the rent papers and get them in the mail. I have more papers to sign from the on site manager when she is ready.
Rent went up $300 but that is OK. My income went up a bit too.
Also able to sign the papers for the student loan cancellation and get that in the mail to the PA.
Sure hope it goes thru this time. It has been over 12 yrs now of trying.
They are taking money out of my SS income for now. Ugh. So hoping that stops soon.
Able to talk with the dog catcher this am as I was on my way out to toilet Rosie....
..he had my name and apartment number on his complaint.
...someone upstairs called in a dog that starts barking at 5:30 am and continues all day long.
..Then talked to a neighbor...about the complaint...I wishe I hadn't...takes too much out of me.
..She said they have the wrong dog...it is the dog next to me and then went into too much detail for my brain ....I sue hope I remember to avoid her next time.
I should have know better this time.
On the way back, saw the dog catcher again...he said they did have the wrong dog...it was my neighbor.
But, all of this verbal conversation is too much for me...so sad. ...I am done in now...wondering how long it will take for me to recover.
But, the past two mornings I have been able to do more...I like it.
Of course, I hope that tomorrow morning is the same but not realistic.
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kam
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I was locked out of lymenet and my other web sites for a bit...it was one of those cases were all my memorized passwords went kapoot.
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kam
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Ah yes. The cable person showed up at my door this am too and I had a bit of a conversation with her
She had the wrong apartment too although it was my apartment number...but a different name and I didn't call it in.
Brain inflamation increased wtih all the tado about nothing
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posted
I wish they would leave you alone, kam!!! I can't believe your rent went up THAT MUCH! Ouch!! We hope ours will go down about $50. Everyone around us pays $50 less than we do in our complex. All the 4-plexes are the same, but different owners.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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kam
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Mgr finally said something about the car part I have out side my door.
And I was doing well enough to drive to the auto parts place next door to see if we could work something out to store it there.
It is the rack on the back of the old PF suv's that carries the spare tire. So, I dont' have a spare now.
They took it off to put the wheel chair lift on.
I drove to the auto parts place and then walked across the street to talk with them. Thankful the guy was in the office.
It is a husband and wife team I think. The wife has a can't do attitude the few times I have talked with her.
The guy has been a can do guy...the couple of times I have talked with him.
Just glad my healthw as finally do well enough to look into it.
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kam
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$50 makes a big difference. I hope your rent goes down too.
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lpkayak
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Tutu That is great news I'm so happy I'm exhausted I'm at the beach in camper and tomorrow is PT and workers comp stuff. I'm close to a breakdown over all this right now my pain in the leg is at a new level-so no physical exercise.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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kam
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Kayak..workmen's comp is very stressful and hard on the health.
Able to take Rosie out to toilet this am via the PC.
Filled sink with hot, sudsy water and dirty dishes but too weak and shaky so far to wash them.
I kept thinking there was something I was missing yesterday when I was doing better.
Woke up this am ..with an ah ha moment...it was follow thru on trying to find a LLMD that takes medicare and/or write the guy down the hill that might be able to help.
Hoping I have what it takes to do that today.
Used up a lot of good energy on bad mojo talking (listening) to neighbors...even if it was good mojo...it still isnt' worth it.
Noticed the neighbors beautiful Rose Tree had been destroyed. So sad.
It was two trees in one with two different color blooms. So cool.
Someone had broken it up in pieces and left it on his patio.
Praying the bad tenants move out and we go back to a friendly place to live again.
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kam
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Got most of the dishes washed. Very weak but the shaking of the hands stopped.
Drove out to the forest and set up cot. Ah...it felt so good to have the cot support my body.
Played around with the celll phone a bit and was doing well enough to take a few pics.
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kam
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Considered stopping and getting a lottery ticket but figured it would take too much out of me.
Not sure how all of that works either. What do I ask for?? How much are they?
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kam
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Able to make a smoothie for breakfast this am.
Sent a few emails out to contacts....RE: LLMD that takes medicare.
Brain did the inflamed brain stuff so need to veg now and pray it goes away.
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lpkayak
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I did really good in PT's even though I was a half hour late Dr records I Dr records I needed for later my friend is coming when a lawyer talk to m so she can remember what tim I so she can remember what I'm supposed to do sometimes they sent him on mission sometimes they sent him on missions at the last minute
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lpkayak
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lawyer blew me off. hearing in 10 days. judge will call and talk to me. maybe i will be able to respond...maybe not.
i'm chillin tonight. had to . crazy crazy day.
tomorrow have to deal with more problems with camper
oh...good news! doc wrote script for walker with seat...
been thinking about ak today. hope she's ok.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Very happy you got a script for the walker! Do you have to pay out of pocket for it?
My sweet brother bought mine for me for my birthday in January. Which reminds me, I need to send them a pic of me with it. (we had it shipped here)
I sure hope AKL is OK! Poor thing!!
I got quite a bit done today. My feet are better than they have been. Yesterday was pretty good. Today not quite as good, but still better than last week.
They came to appraise the building. The realtor says he has a buyer if the price is right. GOOD!!
I wrote up a letter for my Dr to sign so we can get a "hardship" extension on our lease.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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aklnwlf
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Hi gang and thanks for worrying about me.
I'm hanging in there but it's tough.
Monday and Tuesday did my 25 minutes on the stair climber, arm, ab and leg workout.
Not sure I can handle the job. They'll let me know. I have a certain amount of reversals I have to process a day and so far I'm not cutting the mustard.
At least the crying has stopped....
TuTu-So glad to hear you don't have to move. Thank you so much for starting this week's thread.
Kam-I'm getting my hair cut next week. My hair is pretty short and I've got to keep it cut at least every 4-5 weeks or it's looks craptastic. I take it as a good sign that you feel like getting glammed up. I try to look nice for myself too.
Kayak-Can I come over and chillax with you? I'm trying not to wig out myself. Hang in there!
Well, gang, off to bed. See you all soon!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6138 | From Columbus, GA | Registered: Jul 2004
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MannaMe
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Today was a better day than yesterday for hubby. Was able to go out twice to rest and soak up the sun.
Did a foot detox and had cranial therapy. The therapist said one side of his head was 'torqued' (sp?). After the treatment his head felt better! He looked like he felt better also.
Tomorrow is his LLMD appointment. He was feeling so bad earlier that he thought he may have to reschedule his appointment.
Skipped all the drops today to give him a chance to clean up the die-off and hopefully feel better. Still hasn't been able to go higher than 2 drops a day of cumanda. He's supposed to take 20 per day.
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kam
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I nver could take cumanda MannaMe.
ALW...sounds like you have let some things go emotionally with work and have figured out you will do what you can.
Hung that superwomen cape up.
I like the idea of joining kayak at the beach...i'm there in my mind
Yes I do think it is a good sign that I care what I look like now....wtg for the trail size mascara/lipstick to arrive in the mail.
Hoping I can start to put it on and it works out. Last time I put on mascara it was all over the place..on my face..and I did not notice until late in the afternoon.
Took the excedrin this am but still out of it. Going to drive Rosie out to the forest to see if that helps.
Not sure what I will do when I get there:
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kam
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So far today, took Rosie across the street to toilet in uprigh tpower chair...hate those cracks in the sidewalk..hard on the body and brain
And sent an email to a person re: what the next step is towards getting a new caregiver...it has been a week now and I have not heard from anyone.
Not sure if they will continue to have me on the same company as I gave them a bad review....might switch me over to the old company but that means back to an hour a week instead of having someone come twice a week for an hour.
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kam
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tutu...good to hear you are doing better this week....praying next week is even better.
and that you are in the process of getting a hardship...that just might help.
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kam
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Thx tutu..next time I am able I will ask for a quick pick
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kam
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kayak...good to hear you have a walker coming.
hoping all goes well with the judge.
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kam
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Drove thru the campgrounds that are close to home.
Almost all the sites were reserved. Drove thru 2 different loops.
No cell reception.
Sent email to only LLMD in state to make an appt for 3 months from now so I can save up the out of pocket money needed for the office visit.
Called number on flyer in lobby about help with medicare and choosing plans. I left a msg asking them to email me.
They instead called me right back. I did not answer...people just don't get it when you tell them talking on the phone or in general makes you worse so plz communicate via email.
Hoping to make copy of medicare card and get it in the mail to current primary care giver along with a list I started of symptoms.
Looks like I need to put a netflix movie in and just veg.
I am doing that thing where I choke on my own saliva when trying to swallow and brain is being more weird than usual.
Went to indian ruins planning on setting up cot and reclining while there but a car parked right where I was going to set up cot.
I dint' think until just now to move car and set up cot in another location.
I wasn't sure I was doing well enough to set the cot up this am....bouncing off the car when on feet....
I was heading out to one of the creek crossings but as I drove I realized I would need to go to the 3rd creek crossing so Rosie would be safe and away from the road.
I felt I didn't have what it took to drive there this am although it is only about 15 miles.
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lpkayak
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im not sure whats up with lawyer...mostly i think he's overworked...it is common knowledge nys workers comp is a mess.
i think the lawyer is forced by someone to do something on my case every 2 yrs or so...because in between when i ask for help they ignor me. then out of the blue-last month he contacted me...but he calls me and then doesnt remember anything...i try my best to sent what he wants but i feel he just makes me run in circles for no reason and it is really hard right now to run around when i cant walk or be away from a bathroom etc and i get the stuff but he says it wont help. he has talked to me less than an hr in the month and says we dont have to talk anymore...i think he knows i wont win anything so he is giving up
there are storms here now---even tornado warnings in mass
i probably should go
the stress is really getting to me-making my pain worse...and my thinking
terrible headaceh from mold and cough getting worse...i want so much to get in camper and go to good air cuz i cant keep house air right anymoer...cuz summers are harder than winters...
but...when i plugged in camper i found out they had missed one wire when they fixed all the others. and they cant get to it for a few weeks...
so i can go...but not when storms are around...but all things wont work.
im not good with this headache. hope everyone stays ok and things get better not worse...
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Kam.. hope the brain stuff will be "OK" the rest of the evening. Take care!
Sorry to hear that about the lawyer, kayak. That's really discouraging.
I hope you get the camper back earlier than they say and that your headache goes away soon! I guess the mold and the barometic pressure aren't a good mix!
My feet were better today.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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MannaMe
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Today hubby was able to get to his LLMD appointment. We took the wheelchair again. Less walking is better for him.
His bp was high at the doctor's office. Doc was really glad I brought along the bp record from home. That looked really good! Doc was pleased with it.
Was able to go out in the sun for awhile this afternoon.
Soaking his feet in a bucket of Epsom salt water this evening.
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aklnwlf
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Little sleep last night and an exhausting day at the job.
No exercise, tried to sleep longer instead.
MannaMe-Good to hear your hubs is doing what he can to get better. I miss my craniosacral work that I was having done.
TuTu-What's made your feet feel better. Inquiring minds would like to know.
Kam-I wish I didn't have to do so much. I don't have anyone to rely on for help. People look at me and just think I'm lazy or something when I don't have energy, even those closest to me. I might have to run away with Kayak when she gets her motorhome up and running.
Kayak-That motorhome ready yet? I need to run away one of these days. If it wasn't for my mother I'd be up in Alaska right now. OK, maybe not. I don't know if I can handle my tough lifestyle that I had up there. Compared to now, I'm a virtual marshmallow!
BTW, hanging in at the job through great adversity.
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6138 | From Columbus, GA | Registered: Jul 2004
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MannaMe
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Talking about running away - is that something we'd all like to do? My hubby says we'll go to Hawaii!!
A friend & I decided we should build a "House of Refuge" for those who are needing some place to run to get away from those who bug us.
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lpkayak
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i'm too stressed. cant sleep. im not hungry but want to eat. anything.
and mold sx are worse and worse. i have so many air machines going my elec bill is going to be thru the roof. but still sx.
one more day of storms before i can escape to the beach. tomorrows are whats left of the tornado storms...but i think it has calmed down a lot.
again-feel i shouldnt complain...so many go thru so much worse. i'm just so tired of thinking and figuring things out
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kam
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Took out trrash via power chair of course. DRove Rosie out to trrailhead.
I walked est 5 min in maybe longer, sat on log very short rest as sitting upright was not working, walked out.
Rosie was not ready to get in the car yet...there are construction workers in the area.
She found 3 piles of human poop. Yuck. I did the stressed out leave it drop it dance....
Poop included toilet paper. I have got to work on her drop it skills and leave it skills...
Not sure if I mentioned it, but neighbors dog has not been yapping the past 3 days now.
First two days felt really weird ...this has been going on for years.
Today, I saw the dog laying by the screen door as usual when we went to get in the car.
Looks like she finally put a bark collar on her dog...I didn't se it but I know most dogs learn quick.
Now, that I know all is well with my neighbor...I think this is very cool now.
Ah Quiet. Peace.
New caregiver coming thsi am..
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kam
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kayak...hugs
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kam
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ALW...I know you have needed help for a long time.
Especially now that you ar working full time.
I made enough money when I was working full time to hire help.
But, I lived in an area where help was ...well...I never did find someone worth paying for help.
Before that, I lived in a college town...help was wonderful...both yard work and housework and within my budget back then.
I have been going thru a lot of visions in my brain of my old stomping grounds at the beach.
I do want to go back and visit but I din't think I could handle living there now due to health.
There is a LLMD there now but it is out of pocket I think.
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kam
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Able to take sit down shower.
I would love for all of us to run away to SLO County. I would enjoy showing you all the wonderful places there:
excellent restaurants...it is a college town so many people stay and open businesses.
It is fun to visit the whole county..see the Walrus seals in Cambia, and all the intersting shops, Morro Bay, Montana de oro,
not sure if you can still drive on the beach or not in Oceano and Grover beach and camp
Sand dunes that are fun with ATV or sand buggy
Ok need to stop now..fading fast
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kam
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So far the new caregiver was OK. She washed the lid of the trash can when she put the new liner in....very rare that I have someone that notices it needs washing and takes care of it.
So that was cool.
She put new sheets on the bed and changed the pillow cases.
I have had caregivers who did not change the pillow cases even though I had laid out clean pillow cases for them.
Not sure what she did in the kitchen...she was in there for about 30 min. SAid something about she was able to wipe out most of the dishes but they still needed cleaning.
She also vacuumed. I think the bag needs changing...I could smell the dust in the air coming from the vacuum.
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kam
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NOte to self: don't have new caregiver do dishes.
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kam
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She also had to sit on the couch and rest for a bit because she has back problems??
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lpkayak
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hmmm...hope everyone is ok. the saga of helpers goes on...huh kam.
i had sort of a mini anxiety attack yesterday thinking of what would happen to me if something happened to my good friend who helps me so much.
i did have a great PT session today. that makes 2 in a row.. i think they are figuring out what is good for me and what sets me back.
after them...i am very tired and nap on and off the rest of the day...but the next day i usually have more energy and less pain.
the bad storms should be done tonight so even tho it will be raining i hope to spend all tomorrow at the beach. i am taking inc tax stuff to do and my kindle and food for all day. i hope i can spend a long time there breathing. i am so sick from the mold and the headache is driving me nuts.
daynise was dealing with mold and she just disabppeared. i hope she is ok. im afraid the remediators stirred up too much and made her sick.
time for another nap. only have PT once next week cuz holiday, knee doc appt and workers comp hearing
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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aklnwlf
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Thursday-A better day....got some sleep and did my usual workout routine to combat stress and get in shape for the trip.
And thank God my supervisor wasn't there today to put me down.
MannaMe-How about a house of refuge.....in Hawaii! Oh boy, count me in! It'll take me all of 30 minutes to pack and be on my way!
Kayak-We need to figure out some serious stress busters. Alas, I've been resorting to beer and chocolate after work.
Kam-Sounds like the new caregiver takes a little more pride in her work. Hope she works out. BTW, where is SLO county? Sounds ideal to me. Let's go!
OK gang, calling it a night. My nuked mac and cheese dinner is calling me.
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6138 | From Columbus, GA | Registered: Jul 2004
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lpkayak
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where's tute?
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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kam
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ALW...San Luis Obispo County on the coast of Central CA.
Glad your supervisor was not there.
Need to adjust to this new caregiver. She spent 30 min in the kitchen yesterday.
When I got up this am, there were no clean dishes and the kitchen floor still needs sweeping and mopping.
My hope is I will continue to improve and be able to eventually do these things myself.
I am able to do dishes now and then through out the week.
Able to do laundry now and then throughout the month.
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kam
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I was able to put the dishes in the DW...usually don't use dishwasher as it doesn't clean the dishes and leaves a milky film on things due to the hard water around here I guess.
It would be great if I could get back to putting dishes in DW then the counter would be clear more.
Going to try.
Took Rosie out for a quick toileting.
Took 2 excedrin. Head is feeling better, but still trying to shake the bad dream I had last night...twice.
Hoping to be able to do some laundry this am and get Rosie out to stretch her legs in the forest.
Out to the forest first. Oops. Getting dressed first.
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kam
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Able to drive Rosie out to the forest. Lots of heavy equipment in the area now and two homes going up.
I think I will need to take Rosie somewhere else where she can run and be safe and I can drive for a while.
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kam
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Able to go to feed store around the blk via power chair and get Rosie's dog food.
Also able to stop at body shop to see if they are going to be able to put the spare tire bracket in their bone yard.
They said yes. Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
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Note: spare tire bracket and tire had to come off when the lift was put on for my power chair.
The car body part has been outside my apartment....not good.
Manager has been very patient with me...in fact we are on the second manager since it has been laying out there.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
Very glad you were able to get that done so you could keep the landlord happy!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Somebody must be praying for me. My supervisor wasn't there today and I got off early! Yeah!
Did my usual 25 minutes on the stair climber, arm, ab and leg workout.
Rocky woke me up about 4:15 so I'm wiped out and ready for some serious couch time.
Spending the night at my Mom's tomorrow. Going there after I get my chores done.
Hey Kam, will have to google San Luis Obispo might have to add it to my trip list. God willing next summer maybe I can head out west. Would like to check out my desert NM property and head out to CA.
Hope everyone is well and will check in over the weekend!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6138 | From Columbus, GA | Registered: Jul 2004
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i had a nice day at the beach yesterday..it rained a lot but it was fine in the camper.
good air. my headache went away.
but my right leg got worse and worse all day even tho i hardly walked at all. i promised etta i would find the other kind of wheelchair-not the push kind-the one i push the wheels on-its hard on my hands but i can do it and now i am getting so i really cant walk at all and she needs a little chance to explore
this morning i cant even take one step-bathroom trips are a struggle again...i got the pre for the seated walker...and realized i ran out of coq10 and had cut my fish oil way down...
it keeps going back to its a mito problem...but no docs get this...
anyway-busy week coming up with knee doc appt and hearing. and yesterday was fun and relaxing
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Resting then hoping to get something to eat for breakfast.
I just finished trying to vacuum up the pollen on teh patio and sweeping up the autumn leaves.
Too exhausted to put vacuum back so it is still at the front door.
I also kind of washed the front door step which went from dark brown to metal color...looks so much cleaner and better...it could use someone who can get on her hands and knees and take a scrub brush to it but doing the best I can with what i have for now.
I also emptied the DW earlier and washed a few dishes. Kitchen still needs work.
DRove Rosie out to the forest and let her run while I tried to put on a leather bucket seat cover I got from ebay for $10...that was a store model.
I think I finally figured out how to help with the mud Rosie leaves me on my car seat...monsoon season coming soon.
I think if I just keep a towel in the car and I can wipe the leather seat off...we'll seee.
I got teh car seat cover because the seat was breaking apart and the insides were coming out where Rosie jumps up to get in the car.
I also tried to watch some of the speakers on the live streaming in DC...but brain can only take in a bit at a time.
MIxed feelings ....in tears but also good to hear from people who have gotten their lives back.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
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posted
Also cat therapy this am starting around 4 am or earlier with the cat wanting in and out.
Sure wish I could figure out a way she could go in and out without me.
I did see a gadget to put in my bedroom window but it was too costly.
I just let the cat in again...9:30 am...so hoping she will settle down now.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
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posted
kayak...glad you had the beach time. Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
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posted
ALW>..there might be a video on utube.
And if you are driving, you might find my neck of the woods on your way from NM to CA
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
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posted
Still working on removing the spare tire rack...I think I would like to get the spare off of it before the rack is stored in the bone yard.
SEveral people have tried and have yet to succeed.
I'm sure the auto body guy could do it so I guess I need to talk to him about it.
Not sure about putting the spare tire in the back of the car...eitehr.
The weight would be too much I think as the car has enough weight on the back when I put the power chair on the lift.
I don't know what kidn of shape teh spare is iether...I think it is at least 6 yrs old...it is covered with the pathfinder cover which I can't even get unzipped at this point.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
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posted
I also checked out the one building site while out in the forest developement.
Lots of deep ditches....I assume for water lines and electric??
They also added more bricks....I think the bricks are for teh base of the home...looks like they are high enough now
I can't imagine using those bricks for the house itself. Not the nice red bricks but those large gray blocks.
I couldn't even get close to the building pad dueto all the deep ditches...
it would be fun to make a large cardboard mole and put in one of them. Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
Nothing going on over here. I got out Thursday to buy some greeting cards. I keep missing birthdays because I'm out of cards!
So, we got that done and went to the grocery store too. Life is so exciting.
Glad you got to the beach, kayak. Kam.. hope things work out with the spare.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
its sunny. so much to do at the house but i'm going to the beach. havent seen the sun in 4 days. once i'm in the camper i dont have to take more than 3 steps to take care of every need...this leg just wont quit. see doc on tues
hope everyone is safe and has some good bbq!
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Got back from church early due to transportation issues. Long story. Anyway, we'll go to lunch around 11:30 or so.
My San Antonio Spurs won last night! Looks like they should make it to the finals!! WOOT!!! I'm so excited! They will have a formidable foe when they get there (likely the Miami Heat), but I will still love it! We have to win one more game against Memphis to get there.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I was in the car for 2 hrs this am. I had not planned on this of course.
I started heading out the 30 mph road thinking I would stop and set up my cot while Rosie had some off leash time.
it is still a learning curve for me where I can go where Rosie will feel safe and I have the place to myself.
1st stop was not do able...too many people there...
So I went further up the road, 2nd spot was not do able as it was too close to the road.
3rd spot was not do able as I can no longer drive in a way so I will be off the road and be able to sit or in this case lay on the cot by the creek.
(They paved paradise and put in a parking lot kind of thing....along with out houses)
Went to a spot I use to go to when health was doing better....
I am now 10 miles out of town and on a dirt road in the forest..
Lots and lots of campers....camping by the creek that had no water in it the past few times I visited the area.
The creek was flowing this time.
I am wondering what the campers are doing for water, washing dishes, toileting etc that are in tents.
Turned off the main dirt road thru the forest and onto another one I haven't been on in a long time.
Let Rosie out to run while I looked for a place to park the car...had to travel a ways before I saw a spot I could pull off the dirt road.
Not able to stay there though. I tried to dig a hole and cover up my toileting along with putting rocks on it.
Rosie would not leave it alone and I did not have what it took to keep correcting her so got in the car and headed out with Rosie running in front of the car.
Needed water. No water. I thought I had water in the car but couldn't find it. Found Rosie's watering bowl.
I also found the leg lift pad that I have been trying to find for some time now ....for my power chair.
Stopped at the ma and pa very small grocery store on the way back....able to get something to drink and take my excedrin.
Very stiff and sore when I tried to walk in the store and out.
The store owner helped me walk back to the car.
STill dehydrated as I lie here. I thought I had brought my drink with me to bed but had not.
WAiting to get strong enough to get back up and get my drink.
All in all...it was very good to be out...beautiful area.
I considered stopping at one of the creek crossings to let Rosie get a drink...but after seeing all the campers righ tnext to the creek..
I figured if that water wasn't good enough for me to take the excedrin with it wasn't good enough for Rosie to drink from.
I miss the smell of campfires in the early morning.
No campfires or even charcoal fires until the monsoons start up ...fire alert is high.
Pulled over and tried to look into the canyon whiel in my car...but not able to see anything from the car.
I was able to smell the water rolling over the boulders in the creek below.
There is a swimming hole in that area...but not sure how long it takes to get to it...longer than I can be on my feet I know.
To days plan is to do a better job of eating than I did yesterday....but not sue what there is to eat in the house that doesn't take prep time.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
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posted
Ah yes. I also cruised thru 3 loops of the campsite across from Home Depot in the Ponderosa Pines.
I saw lots of SUVs and Pickups....I was looking for ideas on how to go camping with a power chair.
I did see a few vans but they were in the tent area.
I am not sure if I had a side door ramp in a van if I could pull a light weight trailer or pop up.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
to watch later...regarding my old stomping grounds
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
I was wondering where you were! Kam, you need to be more careful!!! What if your car had broken down out there and no water!?
Be sure to drink LOTS of water today. I hope you can get up soon to get some.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Tutu...I wondered about the sanity of my wander lust also.
Once again, I thought I need to put my small ice chest in the car along with water and food just in case and make sure I have matches.
Although no fires in the forest this time of the year without a big fine....but it would get someone's notice possibly and get help if needed.
I am hoping I am doing well enough to get some lemons to make the lemon drink tomorrow.
That seems to help me more than just plain water.
I do have a sleeping bag in the car. I also need to get a flashlight or at least batteries.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
What you need is one of those big foghorns!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
yeah kam...i read all that while at the beach and did worry.
i actually got a bit of exercise. i parked at a new place that was flatter and etta kept wanting to go near the water and there was a rock there just the right size so at least 4 times in 8 hrs i walked over there and sat while she played and walked back.
i needed the cane but there were ppl around if i had fallen or anything.
and then in the camper i cleaned out more than half the cubbies and bagged a lot of stuff into baggies with labels and then labeled the doors too...still have a few more to do and cleaning...but i feel good i accomplished something
i want to go again tomorrow but i'm a little afraid i'll run into parades...today no one was around even tho it was pretty out. it was windy and did you hear we got snow. not where i live bu up where my other house is.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Went to take Rosie out for her morning toileting...usually just pee as I take her out later to stretch her legs and do her business in the forest.
Wasn't able to go out the outside door. Someone had left a lot of poop on the handicamp ramp.
I am hoping I can start saving enough money to move into a one bedroom house.
This use to be a friendly place but there have been things going on here that are just plain mean spirited.
The other day someone had taken out their anger on a neighbors beautiful potted tree rose taking the blooms off and smashing them and then breaking the trunk up in pieces.
It is rare to see flowers here and a treat.
Another day someone had left poop outside someone else's door in the hallway ...at first I thought a dog had an accident.
But, now I am wondering if it wasn't intentional.
Health is not doing well enough to pick up the poop this am.
We also have the knife guy who wants to stab sevice dogs and now the service dog has to wear a muzzle....they put the muzzle on the wrong mouth.
And the same guy who had a run in verbally twice with a friend who was visiting...she said she has never had anyone yell at her like that and call her names like that.
and she has worked at some of the low income schools as a teacher with students whose lives were really messed up.
I was able to put a few dishes in the sink to soak. HOping to wash them next while sitting in the power chair.
Shaky and weak this am. Just getting dressed was a challenge.
Looking forward to getting in the car and having the car move my body and going to the forest.
I know you have no choice. But, thanks for having a place i could come to to vent.
It helps.
I pretty much stay to myself here at the apartment now. I noticed others are too.
At times, people would gather at the benches outside the entry way under the shade trees and have short talks.
But, I haven't see that happening lately but I have been avoiding passing the entry way after the knife guy as he goes in and out that way.
I don't know if I told you but the dog catcher also came as someone gave them my name and my apartment number and said Rosie barks from 5;30 am non stop all day long.
The dog catcher kind of knew of Rosie and said this doesn't make sense so he wnet to talk to the manager.
The manager sent him to my neighbor whose dog is now not yapping. That turned out to be a very good thing.
But, whoever called it in was trying to make trouble for me.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
kayak...the first part I read of your post was so good to read.
Hoping to read the rest later.
I am still learning where I can go and find places to sit for a short time when I am able to be on my feet with Rosie.
So, I understand. height makes a difference too.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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