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This topic has been moved to Seeking a Doctor.     next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » treatment by a Cambridge Doctor

   
Author Topic: treatment by a Cambridge Doctor
friendoflyme1025
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Have anyone treated with or a friend or colleague treated with a Cambridge, Ma doc associated with the Cambridge health Alliance and Asst Prof at Harvard Med School [confused]

[ 05-28-2013, 06:34 PM: Message edited by: friendoflyme1025 ]

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Keebler
Honored Contributor (25K+ posts)
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Even if he's not a LLMD, it may be best not to post any doctor's name. You could just say an ID doctor at clinic in Cambridge who is also a professor at Harvard, etc.

To edit / delete, just click onto the tiny paper & pencil icon.

First, ask at YOUR local, regional and state Lyme Support Groups - and the same for the location of the doctor. Make contact with all levels.

I searched his name and see that he is an internal medicine and an infectious disease doctor.

Typically, such ID (infectious disease) doctors are affiliated with the IDSA and are not at all well educated about lyme. In order to undertand that comment, see detail below.

Still, I always hate to say "always" or "every ID doctor" - but it is about 99% of the time that an ID doctor will be totally dismissive.

This is much more likely at ANY university medical center, or if they teach at one (even if in private practice, too). They are nearly always in the dark about lyme and often cause great harm to those with lyme.

Much may depend on when you may have contracted lyme, too.

Is this a brand new case? Still, many patients have had terrible results trying to find any ID doctor who is well enough educated, courageous enough to step out of the IDSA guidelines for adequate treatment.
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[ 05-28-2013, 06:03 PM: Message edited by: Keebler ]

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Keebler
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http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=015508;p=0

Diagnosing Lyme Disease (&/or whatever else is going on)

Other tick-borne infections and other chronic stealth infections - as well as certain conditions that can hold us back - are discussed here.


http://www.anapsid.org/lyme/lymeseroneg.html

Reasons for False Negative (Seronegative) Test Results in Lyme Disease


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=120369;p=0

Topic: replication within cystic forms of lyme - connection to chronic lyme


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=013239;p=0

What is a LLMD? LL ND? What is ILADS?

WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation.
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Keebler
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I'm assuming you live in New York? Or is it the Boston area?

For the doctor in question, contact the Boston area lyme support groups (do a web search beyond this)

http://www.lymenet.org/SupportGroups/UnitedStates/Massachusetts/TBD.shtml

Lyme & Tick-Borne Disease Information & Support Greater Boston Area


For closer to where you live:


http://www.nyclymesupport.org/

New York City - Lyme Support Group

(or find the one for your location - just be sure they are "ILADS minded"

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

New York - Lyme Support Groups
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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Some of these organizations also have physican locator links.

Here are some top lyme advocacy organizations, all are ILADS "minded" as that is so important for any lyme organization.


Treat The Bite - http://www.TreatTheBite.com

ILADS - www.ilads.org

Lyme Disease ASSOCIATION - http://www.lymediseaseassociation.org

Tick-Borne Disease Alliance - http://tbdalliance.org

Lyme Research Alliance - http://www.lymeresearchalliance.org/

Lyme Disease.org - http://www.lymedisease.org

The state discussion groups through this last link:

http://www.lymedisease.org/resources/support.html
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friendoflyme1025
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I tried to edit, but the system wouldn't allow me. While I have been signed on since Jan 2012, this was my 1st posted question. I do not have LD, am not in Mass, but was asking for another reason . . . and it's not that I was checking for a friend either. I've seen your name numerous times in the 1.5 years I've checked for various reason. I am familiar, all too familiar with the IDSA guidelines and the authors, the actions against LLMD, the lawsuites and also familiar with ILADS and those LLMD that treat in my area.
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friendoflyme1025
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I understand now how to edit . . . edited the post. Thanks for your assistance, was a little nervous in posting for the 1st time. In NY. Obviously from my Lymenet.org name I have a friend that has CLD and why I've become very familiar with the "rules and regs", symptoms, what a person with CLD has to go through, etc. Although I don't have LD, my doc is a LLMD.
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Lymetoo
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I seriously doubt anyone from Harvard knows how to treat lyme.. nor would they want to. Too chicken.

I'll move this to Seeking a Doctor so others will see it and offer info.

--------------------
--Lymetutu--
Opinions, not medical advice!

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