Topic: has anyone had the false information in their med records corrected? and how did you
Caryn
Frequent Contributor (1K+ posts)
Member # 366
posted
how did you do it. deathly ill with lyme disease, and having drs tell me i did not have it , and having gone to the neurologist that the dr who dx me with lyme ;
the neuro did not do much of an exam and put false things in my records. we will just call this man redfacerageman. weather or not that is his real name.
i was so confused as to why no one would give me med care; you would not leave an animal in that condition, but ok to think it is funny for a human being to be that sick and close to death?
when i got my records from rage man , i was very upset at what he wrote. i was already upset enough at how mean he was to me and that he did not care to give me medical care.
mean! i went to his office to tell him that i did not appreciate the lies he put in my records and wanted them corrected. he took me into a little office and yelled at me red faced angry to the point i feared he might physically try to hurt me.
i tried to stand my ground and told rage man i wanted my records corrected because what he put in my records was getting in the way of me getting care. i told him i had very young children and they needed their mother. so not only did rage man tell me no way in hell was he going to change my records, he threaten to call security and have me physically removed from his office.
and then he wrote further records citing me as a "bad mother" and a crazy woman who disrupted his practice. actually i was getting along quite well with the other patients in his waiting room, many who seemed less than happy with this doctor.
his receptionist kept giving me dirty looks, and finally got up to interupt (sp? - i can't spell), rage man who was in with a patient, and this is scary, the patient started screaming these blood curdling screams,
but me, just requesting to the receptionist that there were false things in my medical records and i wanted rage man to correct them.
and so, i was waiting patiently in the waiting room and chatting with the other patients. i guess receptionist lady did like this and so why she went to retrieve dr rage man. we were all nicely chatting, no disruptive behavior.
but rage man chose to totally abandon this patient that sounded like he needed serious attention, but rage man was less than thrilled they i was talking to the other patients
about how sick i was with lyme disease and how i was not able to get medical care and this neuro was one of the mean drs who denied me treatment , but not only that, put lies in my records.
now this was when i only had the LUAT pos for lyme. did not realize we had unwittingly taken vacation photos of me on nantucket island with the text book bulls eye lyme rash ( got infected on two trips there. my husband liked to take photos. ),
and pos PCRs of my urine while i was on antibiotics, my blood , my spinal fluid, abnormal brain spect scan from columbia presbyterian,
and although i was told i was negative by western blot, when it was done by a lab that reported all bands, i was CDC pos on Igm.
and although at my sickest, i had a negative PCR of my blood for babesia despite two of my infections were from our trips to nantucket island, and i had all the symptoms,
and even finding the photos proving i got two infections on nantucket where babesia has been known to be prevelent since 1969,
without a positive test for babesia, i could not get treatment. yrs later i got a robustly pos Igg and Igm western blot for babesia.
but when i was seeing these abusive jerks whose mommy's and daddy's bought them medical degrees, since is was negative for lyme by there tests, well some decided "nothing" was wrong with me without even doing a real exam.
i am traumatized. and it tears me apart that the criminal behavior and writing false stuff, well i do not know how to get my medical records changed.
and the rage man neurologist attack left me afraid to confront drs and tell them i want my records changed.
also, how much can they charge? i live in pennsylvania. [The eye clinic] said i did not have double vision and not only were they abusive to me,
they were verbally abusive to my then 3 yr old son. wills eye hospital dr did the tests seriously and determined i did have double vision.
well, i thought i had lost their records, but turns out i still have them. when i called to ask for copies of my records, they told me it would cost $30 a page. can they charge that much?
i know i might not have put the spaces between paragraphs in the right place, but i originally wrote this in just one block of sentences, and realized it might be difficult to read.
** removed name of eye clinic and replaced it with what's in brackets since it's negative comments regarding a doctor's office **
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
this makes me so mad. i go thru it all the time. they are allowed to lie and lie by omission and it is coundted as truth. it has upset me for so long but i have not figured out how to fix it.
maybe a medical or legal pwerson will know how to fix it
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Caryn
Frequent Contributor (1K+ posts)
Member # 366
posted
in my case, i had some complicating circumstances. my daughter contracted lyme from me from my breast milk. and our son, congenitaly
( i'm tired, please excuse the misspells, i am too tired to keep doing searches to correct spelling. ) our daughter was just a baby when i got my first killer infection.
i call it the "killer infection", because i believe i had been infected before, but by eating healthy and getting supplements from the health food store,
i was able to be well enough that i would have been OK for the rest of my life if i did not get reinfected.
because of my daughter's undx lyme, we put her in a private school that had small classes. athletic, smarter than smart,
and popular with her classmates, she still needed to be in a small classroom to thrive. wow1 just ask her montessori teacher.
wanted to ring my throat when i had just had my secound child, i was very sick and worn down, and my baby was born with lyme but lynnie d. told me she sees lots of babies like my baby. not normal if it was her baby.
montessori school teacher did't know what the previous preschool did to her and accused me of being an overly indulgent parent. but by our last yr there, my kitten was one of her all time favorite students,
and i was among her favorite moms. but then her husband got a job transfer and she had to leave the school and moved away.
the third yr our daughter was at the school, when i told her what the first preschool did, she was shocked at what the first preschool did to my daughter. wish she would have listened the first year. and i wish she did not leave the school.
fate being so strange, my daughter's classmates' mom is a well known pediatric infectious disease specialist, a hard core IDSA "co called doctor", whom practices at a south jersey hospital and now the bronx.
and i recommend no one take their children to see her. at least for suspected lyme/co-infection. nothing nice to say about her.
a mom who has posted here, Nicole's mom, brought her daughter Nicole to see this woman's colleague. ( they share a practice and belief system) ( well, belief system if you are not an immediate famliy member)
any way, even though Nicole knew she had lyme, the witchdoctor told her she did not have lyme, she had "fibromyalgia" . i can't believe they are now diagnosing children with this 'incurable' "syndrome".
upenn newtown dr told me fibromyalgia is what i had, not lyme. before even doing any lab tests. and i had the butterfly rash across my face typical of lupus and when i got my records, i did have an abnormal ANA, (speckled ANA is not "fibromyalgia".
and also two yrs before, at ob/gyn practice i went to, that newtown upenn dork man's wife later worked,
they checked off: heart - abnormal. but never let me in of the secret. and at later visits "played jokes" on me.
what is their problem? i am sorry they are ugly people. but they don't need to be both ugly outside and ugly inside. ugly inside - dangerous!
things would get much worse. cowardly upenn man said he was an expert on lyme. no, just a skank. and a really pitiful man.
sported short sleeve white button down shirts with a rediculous (i know, spellig?) anyway, likes to wear dorky bow ties on a daily basis. and he was just the weirdest man.
why would someone of his creepiness think that i would just go to him and make up symptoms because i wanted his attention? he is the weirdo type that i try to avoid.
it would be funny to see upenn jerk boy tell my husband nothing is wrong with me, i just wanted to get weirdo upenn petie's attention,
as well as the langhorne eye drs and leeping loo loos partner, the stocky limp haired air head now employed in colorado.
really? is that what they teach you in medical school? or just something your slow arrogant brain dreamed up?
they are either stupid and incompetent , or they knew she had lyme and are criminal. maybe both. either way, they should not be practicing medicine.
there is lots more i can tell you as i knew 'brunehilda' - maybe her real name, probably not.
skankrat rhymes with... but it suits her. as does her real name- i knew brunehilda personally. no offence to those actually named brunehilda.
her offspring was in the 'Odyssey of the Mind' after school program that my daughter was also in. so she and her cohorts were the 'fellow moms' i was confiding in.
it was the twilight zone. these people are MEAN. and they have money and power. and all the area doctors know each other.
thinking these were just nice 'felllow moms', i was confiding in them so they knew what drs i was going to see beforehand.
they knew i had talked to Carol Saline at philadelphia magazine and Carol was is spring 2000 going to do an expose on the lyme controversy and very much wanted to include me as what i went thru was horrendous. and what a lot of you went thru too.
and maybe if the original lyme disease article was done, some of you wouldn't have had to go through this.
Carol was close friends with the mom of a friend of ours that i suspected and later my husband agreed, he had lyme disease. he tied weights on himself and jumped into the delaware river. it was april and the water is cold.
we miss him. and i can't help but think that he would still be with us if that article had been done.
his sister had tried to get him help. but she did not know antidepressants and psychological council do not cure lyme. upenn likes to peddle antidepressants, but not big on diagnosing and curing.
she did not know that lyme/co-infections might be the culprit, and i guess we won't ever know for sure, but i am very good at recognizing this. and he was not diagnosed. but she tried.
ironically, she has connections to the media. she had aspired to be an actress, but then ended up as a producer? ( i think )with the Today Show.
but this is a whole circle of friends and friends' family that we do not see anymore because none of us want to get together because one of us is missing.
why don't we all get together and put up a website or even an amateur documentary or you tube thing?
although i used to be a very private person, i am basically all but dead anyway and so i am very comfortable about saying what happened to me and making my photos and med records and story public.
i am very protective of my children, and they are doing OK, so, other than revealing that they both were exposed thru breast milk, and one of my children was born with it, that is all.
i just know that what i have is unusual. upenn dr faking the LUAT and telling me it was negative. illegal. shortly after, a dr did the LUAT for real and numbers pos. sky high. and so far little man has gotten away with.
in the background of a dr phil youtube about lyme, is the article put out by i think the doylestown intellgencer "drs split on lyme diseae" don't have it in front of me, so i might not be exact.
but anyway, it is biased and makes the lyme literate dr look like a quack and the infectious disease specialist saying "allen steere is mister lyme disease" and these infectious disease spicalists the authority.
and this dr whose name begins with a W one this dr phil youtube thing saying that to date: no chronic lyme patient can prove either with pictures on themselves and/or positive lyme tests that they still have lyme.
that is what i remember reading. and guess what? i can. and guess what? they have known about me fo
this toad-faced joker who masquerades as an infectious disease specialist claims in the article he never saw a patient with babeisa; "we just don't have it here". well, people travel! are they stupid?!
and we do have it here, it is just i contracted it from our trips to nantucket island where it is rampant. but it is also known to be in new jersey, a hop skip across the delaware. and it knows it is not supposed to cross state lines?
anyway, just one week after seeing him, i had a pos PCR of my spinal fluid. unfortunately , the dr who ordered the spinal tap was not treating, not even symptom meds, just using me as a research project.
but he had a kind manner, so different from the angry and abusive and sometimes highly inappropriate behavior of some supposed drs.
and at least he told me i did have lyme, but was leading me to believe i now had 'post lyme syndrome." and this neuro is supposed to be a llmd, but he does take insurance.
i guess i was suffering from stockholm syndrome. he was being nice, even if he was leaving me in off the charts pain and treating the nerve pain with neurontin that just did not work.
and, well, lots of not so good things to say about these drs who even when there was no question of what i had, would not help.
but they did take money from my insurence company for their very little time spent with me. for a 6 minute appt., i am sure charged more.
and the pediatric neuro at his practice. "proving" my daughter did not have lyme with a false neg Elisa,
though i was never shown the results. just told she was negative. but if he used quest labs, that is not surprising.
but i actually do have a positive PCR from quest labs while i was on antibiotics. and the dr at the time, well don't trust a 700 pound doctor.
later, dr J had her blood tested by SUNY stony brook, and her elisa was positive. and there was no doubt in my mind that our son was born with this.
but right in front of me, this mercedes benz driving dr with a gruff accent and aggressive manner, with a lovely picture of his precious family on his walls tells me in front of my husband
"don't project your fears onto your children". more to tell about mini-appendage-mercedes man. but too tired right now.
and worse, after the office visit we came together, my husband is listening to this guy and discounting me.
mercedes-little-man ( i guess the mercedes benz makes him feel big despite a small body part ) is telling me that a certain doctor sends her patients to him for a second opinion.
no. don't think so. it was drs like him that drove this doctor from being able to practice medicine. and i knew by then, the doctor was not practicing.
psychopath's can be very convincing. and dangerous. and they should not be allowed to practice medicine! but they think they look like hot s--t driving a mercedes. while making their money harming other people's children.
this creep is lying thru his teeth. guess money is more important than the health and well being of a child. but my husband told me i was being too confrontational
( my husband was and is working rediculous (sp?) hours because i can't work and was denied disability because of what drs did or didn't write in my records. and he now knows he has it too
(pos PCR ordered by an infectious disease specialist - now deceased - but did not get treatment.) and we did not have a computer at the time.
and we do have some difficult people around us that i thought knew and loved me,or at least my husband and children, but lyme: SHUT UP ABOUT LYME! even when i was gravely ill.
and it seems to be a guy thing; they just don't want to deal with lyme disease. if it was "real" like cancer, would be different.
so he insisted on going to one or two more office visits without me so he could have a "rational conversation" from mercedes benz-tiny-appendage man.
and well fast new york talker that tiny appendage man was, almost convinced my husband that maybe i really did not have lyme and most definately our children do not.
well,i now have several pos PCR's. also, abnormal brain spect scan from columbia presbyterian hospital, nyc, showing lyme encephalopathy.
and came across those photos. of me with text book rash. i had the recurring rash on my foot at time of visit.
he does not say that in my records, instead says "no doctor has seen the rash and we have no photos of it". - um, well, we do. and others.
and goes on to say the LUAT was done by a - can't remember exact words and do not have my records in front of me, but a non approved FDA lab.
he attacks the dr who dx me as a "self described lyme expert". and one of the 'lovely moms' cackles at me after i was finally diagnosed after
several years of her passive-aggressive meaness " oh that dr tells everyone everything they have is lyme. and they all cackle.
except this young mom from ireland who truely was concerned about me. her mother was having problems, and no one could figure it out,
but it was then determined to be a zinc deficiency. sweet. but i had more going on than that.
when i told them i had blue cross. blue shield personal choice, and none of the drs would help me, i was just getting abuse from them and i was in off the charts pain and too sick to go on,
but they just would not help me, ms passive-agressive takes this as an opertunity (sp?) to tell me "i have blue cross blue shield platinum"
goody goody for you. she lead the Odyssey of the Mind group. they cheat. it is so important that their kids win
( i only had my daughter in this program, not for the competitiveness, but because she was highly intelligent and also, i was too sick to be there for my kids and i knew she needed more in the way of mental challenge).
but these people are ruthless. their kids must win!!! so the parents cheat. why they often win.
but, not realizing i was confiding in the 'enemy', i told the moms in the quaker friends school 'odyssey of the mind group what i was going thru,
how sick i was, how i could not get med care, and it was weird how in different, or even worse, mocked me and were so mean. and they cheat.
and they also aside by making my daughter the "evil queen of vegetables" for their candy wonderland skit in first grade. they excluded from giving her a part after that. all the other girls were given parts.
i wondered why Carol had not called me back as she was very enthusiastic about doing this article.
they when may 2000 article came out, - i know we are not supposed to use the names of our drs here, but is it ok to say the names of the drs doing harm?
ok, we will just call the ped. infectious disease specialist brunehilda, whether or not that is her real name
and the awkward and weird and super abusive and happy to make me cry, upenn neuro-opt; leaping loo loo.
well, instead of the expose about lyme, it was the 'best' pediatric specialist. brunehilda and her collegue were named 'best pediatric infectious disease specialists' and leaping loo loo was 'best pediatric neuro-optomalogist. (sp?)
and he has a book that is highly regarded that is training the next crop of neuro-opt. and worse yet, he apparently has decided to take a great interest in lyme disease. this man should go to prison for what he did to me!
Caryn
Frequent Contributor (1K+ posts)
Member # 366
posted
ok, it is super late and i really need to try to sleep. i did a lot of typing, and my computer decided to freeze and i was sleep deprived to begin with. and had written so much,
but then i would remember something and try to add it somewhere, but then things got mixed up. so if my above post does not make sense, that is why.
too tired to proofread and well, maybe too tired to have tried to write a post to begin with. but this is important that i have these med records that they clearly put lies
and when i tried to get a dr to take back the lies he put in my records, not to mention that i was gravely ill and had young children that needed me, he was meaner than ever.
i just can't get over this, and these drs that knowingly did us harm, well, they should have to be exposed for the skanks that they are. good nite everyone.
1) Call the hospital and tell them you want to file a formal complaint. Be polite, respectful and as brief as possible if you want them to take you seriously.
2) Tell your primary care giver there is an error in your file and ask him/her to fix it. Again, be polite, respectful and brief.
As difficult as it is, sometimes the only answer is to walk away if you don't get results your looking for. You can't push a river.
Sometimes the only answer is to walk away from the those that don't/can't help and go where you can get help. Leave the bitterness behind FOR THE SAKE OF YOUR OWN HEALTH.
-------------------- I'm not there yet but I'm closer than I was yesterday.---- Lyme Band 31,41,58. Being treated for Lyme and Bartonella. Posts: 149 | From Maine | Registered: Oct 2010
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posted
RE Above: You can call the hospital even though you were not admitted. Call the hospital the doctor is affiliated with. They don't want negative reports on their doctors.
They will copy him on the report. He will most likely have a chance to respond to them regarding the report.
You can also ask that a copy of the complaint be filed in your permanent records both with the hospital and with your primary doctor.
-------------------- I'm not there yet but I'm closer than I was yesterday.---- Lyme Band 31,41,58. Being treated for Lyme and Bartonella. Posts: 149 | From Maine | Registered: Oct 2010
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
I'm so sorry Caryn. It is terrible that "health care professionals" can lack all of those qualities and abuse sick people.
I was screamed out of two doctors offices early on in my illness and realized later that they were afraid of me, because of what might happen to them if they admitted I had lyme and treated me.
One was a doctor who had treated others in the past but was too frightened to now.
This comes from the persecution of lyme doctors, which is one of the intended effects of that vicious campaign. Take out one doctor and frighten a thousand.
And as for the patients who were abusive, even those associated with a religious school.....there are some really mean people in this world. When you find a kind honest person, treasure them as they are rare.
Maybe there should be pysch people who just treat those of us abused by the medical profession. There will certainly be enough.
[ 07-11-2013, 08:06 PM: Message edited by: Robin123 ]
Posts: 2888 | From USA | Registered: Mar 2004
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poppy
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posted
Maybe this will help you with correcting your file, if it is currently affecting your care:
I have not bothered to confront those past doctors in my case because I never have their records sent to any other doctor, and it does not affect me if they just sit in those files unseen. That was before electronic records.
I have finally learned who I can say lyme to and who I cannot. Actually my primary care doc for a while who had a friend with a lymed child dumped me because I mentioned lyme again,
even though not asking for any care for that. This shocked me, and it was recent. I had thought it was safe to let him know I had lyme.
[ 07-11-2013, 08:07 PM: Message edited by: Robin123 ]
Posts: 2888 | From USA | Registered: Mar 2004
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How do you not mention Lyme when they ask you why you're on 3 antibiotics? You can't NOT tell doctors what meds you're taking.
Posts: 181 | From Midwest girl gone home | Registered: Oct 2011
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@sideways.I was wondering that myself. Yet if they don't know the antibiotics it could interfere with something else they give you or vise/versa.
-------------------- I'm not there yet but I'm closer than I was yesterday.---- Lyme Band 31,41,58. Being treated for Lyme and Bartonella. Posts: 149 | From Maine | Registered: Oct 2010
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
What grate helpful information
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
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- I tried to correct some errors and misconceptions in my file years ago.
The PATIENT ADVOCATE at the medical center where the doctors / my file were set up an appointment for me to go into a small room and look at my chart.
I was not allowed to mark on it but could ADD a NOTE PAGE with what I felt were corrections.
NOTHING would be done in the chart, however. I was told there is never, ever, a correction to be made in the chart, only an added comment note.
I was severely dismayed by some of the comments that were not just factual errors but also the comments that were judgemental in nature, and led to misconceptions about me, as a person. My integrity was destroyed.
I made what notes I could but decided then and there, never to set foot in a hospital again, I don't care what happens to me, no more doctors who don't understand a complex case. I can do without mistreatment, thank you very much.
Now, I did find a GP later who - I think - is not judgemental (even if not LL and rather dismisses the mere idea of an infection being chronic, he treats me with respect, at least).
So, there are some doctors out there who do know that what's in a patient's chart is not always the full truth. We just move ahead.
Note, though, that at each place you've been, there will be a chart for you. And, with the computer age, notes can follow you anywhere, even before you get there. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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- Some explanations here about how most regular doctors (and even "regular" specialists) think of those they declare only in need of a psychiatrist instead of comprehensive medical assessment & care.
Many with lyme have likely been declared a "difficult patient"
posted
Hi everyone - these are amazing and grievous stories, and we want everyone who wants to, to be able to read them,
but a lot of people on Lymenet cannot read big blocks of text, so if you could please break your writing up into two and three lines so it's easier for everyone to read - I have already done so for this thread - thank you for your attention to this matter -
A lot of this sounds like fodder for the Alligator Pit thread we have - we have that thread for the feeding of the alligator...
.................................................
I think it's important to determine who we can talk to about Lyme and who we can't. It's very much best to be able to go see Lyme-literate doctors, period.
Just know we are in the middle of a medical war, and we have to be strategic about what we do and don't do -
And when you get really tired of it all and don't feel like dealing with it anymore, to remember that Caryn's friend chose to end his life perhaps due to undiagnosed Lyme, so that's why we keep at it, to help folks as much as we can -
.................................................
Re the question asked here at the top, yes, I did go back to places where they had records on me, and I submitted my own corrective letter about that I'd come in with a Lyme diagnosis.
Posts: 13117 | From San Francisco | Registered: May 2006
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I know this can't help with the past -- but going forward it is a good idea to get copies of any medical records including tests and office notes from every doc you see -- including ER's and hospitals.
I think every state has a limit on the fees a doc can charge for making copies, but if it has been several years then they can charge extra "research" fees because those records are stored off site.
The HIPPA rules do allow you to make corrections to your chart, but sometimes it is not worth the time and trouble.
When hubby got sick we ended up doing a lot of traveling and going from doc to doc. So what I got in the habit of doing was to copy the records I wanted to give to any new doctor and not have the doctor send his chart to anyone. We even did this with specialists like neurologists.
It depends on if you have insurance sometimes, but we were able to schedule our own appointments and a few times when a doc would not make an appointment unless they got a referral from another doc we just looked for another doc unless we trusted the doc wanting to make the referral.
There have been very few lawsuits where patients won because lyme was misdiagnosed. Because the tests are so bad it makes it easier for the docs to win. There have been cases where patients won suits regarding rocky mountain spotted fever or ehrlichia/anaplasma but in most of those cases the patients died so it was easier to win the case.
I am not even sure yet if I have found a lawyer who will take my case and my husband died from ARDS (lung failure) caused from babesia.
Caryn -- So sorry for all you have been thru. At this point in time the most important thing is to get treatment for you, your children and your husband. And you need to stay strong as a family to get thru this.
The reality is that it really doesn't matter a lot of times what your medical chart says when it comes to getting treatment. If you have insurance then the insurance is the one making the rules and even if you can find a doc to treat you that doesn't mean the insurance has to cover that treatment.
You need to learn how to file insurance appeals if a treatment is denied. I have read that abut 50 percent of the time when a patient files an appeal the denial is reversed.
Good luck and stay strong. You now have a diagnosis so at least you have a chance to get better because you know what your problem is.
Best wishes,
Bea Seibert
Caryn -- You really have a gift for writing. I couldn't help laughing at your descriptions of some of the docs you have seen. And believe me I can relate -- I remember one ER doc who had me step out of the room and told me my husband needed to see a psychiatrist because he was not vomiting correctly!!!!!
After they did a stomach x-ray they found out he had a paralytic ileus and had to pump his stomach. Hubby's nurse in the hospital had been in the same hospital herself the week before for the same problem so in the end it was the doc who ended up looking stupid.
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Caryn
Frequent Contributor (1K+ posts)
Member # 366
posted
sorry Robin, i thought i went back and put in spaces, i do know better , i'll remember next time!
thanks everyone! i was napping earlier, and now have to go meet up with my husband, but i will come back and read more.
Poppy, i am sorry you got screamed at too. that can have some really damaging effect on lyme patients who may be seriously deppressed to begin with and having there life come crashing down around them.
i am guessing you might be from the philadelphia pa area also. it seems to be a common demeanor of lots of drs around here.
what happened to me, is that my daughter went to school with a camden, nj best of philly pediatric infectious disease dr and her buddy and not even realizing she was a dr, these were the mom's of my daughter's classmates and the only adults i was seeing on a regular basis, and i was so out of it, i did not know two of them were drs.
one mom i saw sometimes was the wife of a an area dr.i was too out of it to realize. and a lot of these area drs know each other.
so they knew what drs i was going to see next, and talking to them before i even saw them.
the upenn internist in newtown pa already knew about me before i saw him. now i believe this is illegal for drs i know personally and drs i saw professionally, but lots of times this is what happened.
and also, many area drs send there children to that school, and 'best of phillly' pediatric infectious disease specialist was talking to them about me behind my back.
she is ok with doing destructive and unethical things.
and some of the drs asked i bring my records with me to my appt. so naively i did. and wanted to know what tests i had done and by who.
and because i had been sick for yrs before i got any kind of diagnosis, they wanted to know what past drs diagnosed me with.
it was a nightmare!
Posts: 1093 | Registered: Nov 2000
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posted
I have never done this -- but I have heard of patients who use whiteout to "erase" the names of doctors on copies of lab reports that they bring to other docs as part of their medical history.
It is up to you what you share with docs even if they request copies. But I can understand not wanting to have tests repeated as that costs money. But even if a doc orders a test it is your right to refuse to have that test performed.
I personally think electronic medical records can do more harm than good for patients with chronic illnesses.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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quote:Originally posted by seibertneurolyme: I personally think electronic medical records can do more harm than good for patients with chronic illnesses.
I SO AGREE!!
Doctors who are not lyme literate can do so much damage in their comments!
-------------------- I'm not there yet but I'm closer than I was yesterday.---- Lyme Band 31,41,58. Being treated for Lyme and Bartonella. Posts: 149 | From Maine | Registered: Oct 2010
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posted
There are places on line where patients can report on doctors as well. Below are just some of them. If need be, a doctor can be reminded of this.
-------------------- I'm not there yet but I'm closer than I was yesterday.---- Lyme Band 31,41,58. Being treated for Lyme and Bartonella. Posts: 149 | From Maine | Registered: Oct 2010
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, i'll remember next time! 
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