posted
I'm looking for anyone in the Philadelphia area who works in the medical profession and is willing to go on record against the orthodox falsehoods of current Lyme standards and education.
Please PM me if you have ideas or know of progressive doctors/researchers.
Posts: 922 | From Philadelphia | Registered: Sep 2012
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
The problem you will have is that the lyme legislative initiatives have not passed, despite years of trying. So, they will be endangered by doing this, progressive or not. Nice idea but would you want to endanger the few docs in that state?
Posts: 2888 | From USA | Registered: Mar 2004
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posted
And how do you suggest we get legislation passed without awareness?
Not trying to endanger a doc, just looking for someone who is doing good work and wants their voice heard.
We need people in the area to stand up and talk about it.
It is not wise to continue operating "under the radar" bc I'm sure the FDA knows who all these docs are already.
Given that we know the hardships of getting a diagnosis, it's very important to take a stand to educate the public. One well placed article could probably help hundreds of people, if not more in their mysterious health struggle.
Think about how many years of suffering could be alleviated or curbed!
Posts: 922 | From Philadelphia | Registered: Sep 2012
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poppy
Frequent Contributor (1K+ posts)
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posted
Why don't you contact the SE PA lyme group? They may have ideas on how to raise awareness, safely for our docs.
Posts: 2888 | From USA | Registered: Mar 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- poppy's idea can be a life-saver for you.
Indeed, the lyme awareness organizations that are established and have a full range of professional advisors would have the advantage of historical perspective and also knowledge of best way to proceed while protecting the LL doctors and patients.
They would also know how to seek out, encourage and nurture new relationships with doctors who are not yet LL (or at least not yet openly so). They may already be working with some, in some manner.
You could ask them how you might help with awareness, etc. but you won't have to "reinvent the wheel" or tread unchartered waters alone.
Teaming together with such a good group also helps the messages come from the top in a carefully timed manner with "one voice" so to speak. That makes for a stronger impression in the media.
LDASEPA Lyme Disease Association of Southeastern Pennsylvania -
[ 07-18-2013, 06:30 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Beyond your local, regional & state groups, you can check out activities of & insight from these national Lyme education & awareness organizations:
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
You might consider what most often happens with the bigger media outlets. They lay into us and make everything worse, like that first in the series at the Boston Globe, the New Yorker, and most recently the lousy Slate piece.
Be careful what you wish for. The big guys are brainwashed and will very seldom do a good job with this story. Smaller papers like Poughkeepsie do the best, but are read by fewer people.
Posts: 2888 | From USA | Registered: Mar 2004
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