Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
Guys, Dr. H has a new book out on Amazon pre-order.
Imagine what it COULD do for us if it were a best seller.
If it gets hyped up, then more people who could care less would read the book and this can bring the attention we need to the light.
The World Wide Lyme protest was sooooo disappointing to me. I went to it & I saw no one form the dozens of people that I know that got bit & who have/had Lyme. We need to start doing something collectively.
The book title is:
'Why Can't I Get Better?: Solving the Mystery of Lyme and Chronic
Posts: 2087 | From NY | Registered: Oct 2011
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
There have been a LOT of lyme books published and none of the them have hit the best seller list yet but with 300,000 people infected a year, maybe that will happen one of these years.
I was disappointed in the world wide lyme protest too. Someone organized something here which was very exciting to me because I didn't even know anything was going on and I hoped to get in touch with other people who were also sick. I have no contact with anyone else with lyme except on the internet so it gets lonely.
Unfortunately the organizer had gotten infected elsewhere and did not know Lyme was even here. I am not sure why she even bothered to organize her booth at the farmers market. She actually seemed bothered when I told people coming to her booth that I was infected here.
One other person showed up sharing her illness that obviously had undiagnosed lyme . I tried to tell her how she could get confirmation it was lyme, such as a CD57 test, and how to get treatment, but I was not getting a good reception from the organizer that seemed to feel I was stealing her show.
The organizer was newly diagnosed and did not know about the co-infections but she didn't want to know either. She was complaining about not getting better on IV ABX, while eating sweet pastries. It was very frustrating.
I suggested the organizer get emails so we could form a support group. I told them I have an extensive library of lyme books and have treated 5 years achieving remission from everything but protomyxzoa. I left my email but was never contacted.
So all I can say is, closed minds do not exist only outside the lyme community. I was very let down. There was so much that could have been done. So many people don't know it is even here and there are so many people sick.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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