kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
She has been in the fight for ten years now. She is now 25, attends college full time, in her junior year; carrying a full load. She told her doctor she has energy she hasn't had since she was ten.
Those of you who have been around a long time, know the journey we've been through. Just wanted to give some hope.
She is not cured. She manages her life. Vegan, one hour of exercise every morning, Ivermectin for two years has really taken her pretty far. Sometimes adding Bactrim and Doxycycline. She did three months of Candigone and AZO Yeast to fight that beast.
She has been on many antibiotic combos, so it's been a long haul.
Posts: 2903 | From AZ | Registered: Feb 2006
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Kelmo!
I'm so glad to hear that your daughter is doing well. I remember several years ago when we were in the Lyme chatroom, and discovered that our kids had been born within a few hours of each other.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Excellant! My kids seemed to survive it too its impportant for those with sick young ones to know there can be a happy ending
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
I thank you very much for posting. YOU are amazing.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
So happy for you!!!
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
This post really warmed my heart.
I am so happy for your daughter and you. I imagine you've been through hell and back more than once.
Thank you so much for telling your story. It gives hope to so many of us still "stuck" in this battle.
Posts: 1885 | From here | Registered: Jul 2012
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
She has not held a job, and she still lives at home. I don't want to give the false impression that she is cured. She is ten times better than she was ten years ago, is all I'm sayin' But, isn't going forward a good thing to hear?
Posts: 2903 | From AZ | Registered: Feb 2006
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
OMG yes absolutely! Going FORWARD is such a wonderful thing! I didn't get the impression that your daughter was cured...just doing better than she had been and moving on with her life.
I do get what you are saying. My DD is going forward too, and is better than she has been but she still has a long way to go. Like your daughter, she too has been on a multitude of abx combos over the years, not to mention tons of natural stuff. And it continues on...
I would be thrilled to pieces if she could carry a full college course load. Fingers crossed that will happen next fall. That to me would be the icing on the cake and feeling like we finally reached the top of the mountain.
Posts: 1885 | From here | Registered: Jul 2012
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
Oh and PS, I have friends whose healthy kids are still living at home well into their late 20s and early 30s!
Posts: 1885 | From here | Registered: Jul 2012
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posted
So good to hear that! Good luck to her.
Posts: 431 | From New England | Registered: Dec 2011
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Hi Kelmo,,,been wondering how things are for you,,,now we know,,,thanks for the update
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Don! How are you!?!
Posts: 2903 | From AZ | Registered: Feb 2006
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Doing pretty good for no better than I am.
Getting up at 3:30 am to go to work sucks tho.
I have a second gig and wont get off till 10:30 tonight
But there is a few hours of nap time between I hope
But that turn around from tonight till tomorrow morning work time makes a short night tho.
Mostly work for the insurance I buy these days,,,in case I break my leg again,,,a 50K disaster.
My dad died in August so had to move home to keep mom out of the nursing home. She would NOT like it there.
Every day she lives at home is a GOOD day according to her.
Cant walk, cant see, barely able to stand, mostly in an electric wheel chair and spent yesterday baking up a storm.
Just needs some help with some things, seeing and lifting. And hoping she doesn't fall.
Takes her hours what she used to do in minutes. She has osteoporosis so bad she is half as tall as once was. Bent over to the waist.
Life is good here, good food, warm, and plenty to do. Projects out the ying-yang.
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
ying yang...if you had said wazoo, I woulda thought you were from Oklahoma.
My dad just took a dive on Alzheimers and will need 24 hour care. I have been his primary care for four years, on top of the ten years for my daughter.
I crashed and burned in June, and my sister came in from out of state to give me three weeks.
After his hospital stay, SHE decided he should go back home. She pretty much told me I did nothing. Now, she is discovering she can't do it and is telling me I have to step to the plate. HUH?
She has wrecked my life. I love my dad, but I'm going to have to go live with him and my husband and daughter will be on their own, starting December 1st. My sister said she would cover a month here and there, but offered to pay me $1,000 to take her months.
She and her husband are both retired. I'm going to probably be joining my dad when he finally goes. My husband had a massive heart attack and lost his job of 38 years. He is working a temp job, our medical insurance went up to $1500/mo. I work three hours a day.
Life stinks. But, I'm glad you are able to do what you do. I am so glad I met you here, in this place.
Posts: 2903 | From AZ | Registered: Feb 2006
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
Chiming in here Kelmo and hoping you don't mind...
Is there any other option for taking care of your father like a nursing home or in-home hospice?
It seems to me that it is an unreasonable expectation for you to move in with him given your own situation with your daughter and husband.
As the wife and mother, you belong with your own family IMO especially given your own family's circumstances.
Your sister obviously is not supportive or understanding of your situation and is perhaps toxic?
It might be prudent for you to just cease all contact with her at this point and focus on getting your dad situated in a facility close to your home, or in your home with assistance from hospice.
I hope I am not overstepping with this post. I wish you all the best in this situation. I am sure it is extremely difficult for you.
Posts: 1885 | From here | Registered: Jul 2012
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Kelmo,
Any chance of your dad just moving in with you,,,even if it is crowded,,,or a bigger place so you can be all together.
How about a big house for you, husband and daughter and a in law apartment for him?
If he isnt well enough for his own would he qualify for public assisted living close to you?
How far away from you now does he live? Commute distance or farther?
Any home health care help him out?
Sorry to hear your having all these problems. Anything we can do to help you out with life.?
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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