Topic: prayers for inflamed brain thing again to go away
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Day 2 of the inflamed brain thing.
prayers it goes away soon. plz
Thanks
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
6:00 am . Still hasn't let up yet.
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
-able to get roxie out for her sunrise toileting
the cold air felt good on the brain but it made my body worse. felt like tossing my cookies.
rough ride in power chair too.
laying stil now and will eg as soon as i finish with this.
hoping it helps.
depression i ssetting in.
but don't have what it take to throw in the towel.
typing this with eyes closed.
i have got my depends on but so far I have been able to make it to the bathroom in time.
lots of trips to the bathroom...which makes things worse as any movemnt is not good.
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
Kam...I am praying for you sweet Kam. I will be checking in today on you here to see how you are.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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posted
Hang in there. We will all be praying for you. The board is very slow today since most can't get on Lymenet right now.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
I'm sorry Kam. Prayers for relief. Lymetoo is right. I tried getting on around 5 am the first time.
I tried multiple times since then and just now got on.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I cna't believe it is only 10:20 am. ugh. Just put another ice pack on the brain.
thanks for the prayers. Sure hope this breaks soon.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
{{{hugs and healing thoughts}}}
Posts: 867 | From PA | Registered: Jan 2006
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Praying for you KAM!
Lots and lots of prayers!
I am sorry it is such a bad one today.
Hang in there.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Hang in there kam. Prayers it will pass and relief will come soon!
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Kam, Happy Thanksgiving!!!
Hope your discomfort is short lived!!
Did you get snow that big storm that blew thru??
Still have snow on ground?
Do you have electric heat or gas heat?
Bounce a PM to me as soon as you feel better.
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
Praying for you still...Kam, you are such a blessing to Lymenet...an inspiration to those who have a tough go of it and a big inspiration to me that you keep on keeping on. I have learned lessons from you.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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MannaMe
Frequent Contributor (1K+ posts)
Member # 33330
posted
Praying for you Kam!
Posts: 2255 | From USA | Registered: Aug 2011
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payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
KAM, wish I could do more then pray for you.
Yet, The Lord is my all..
we all here are in agreeance, we all here pray
the same for kam, relief and peace.
we all pray.. you Lord are our all
OUR EVERYTHING, life as we knew it was boring and dull and full of dispare and troubles..
we all here lean towards the Heavens..
Towards Your will and way... away from the flesh and onto The Spirit..
we all gather our best in prayer for kam.
God- As, it will be in your time, Your WILL.. your WAY... YOUR WORD.
Touch her and let her flesh be free of these binding chains of LYME.
Bring The Blood of OUR SAVIOR "JESUS CHRIST" UPON her, within her, around her... every strife, every step, every breath,
Be of YOUR DEVINE HEALING. . . Post Angels in her, above her, below her, around her, in the people she see's and those whom she is to see. refresh all things and make new again. kam quote= ""typing this with eyes closed"". as Kam may not see this...
Inflamation be GONE, WE DEMAND IT by OUR LORDS POWER AND MIGHT..
**PLEASE SOME ONE SHARE
a song out to our GOD !!
that kam can hear......... with HIM. we sing out in VICTORY !
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
not able to read what you all wrote right now. Hoping I am doing well enough tor ead later.
two more hours and then I take my sleeping pill and hopefully get some relief from this.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
Praying still...
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
Kam... so I guess you can't sleep when you get this stuff? How awful!
Still praying for you.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Tutu...thankfully, I was able to get some sleep last night, a few hours of sleep the night before and a few hours of sleep the night before that.
But, yes, when it does get really bad I am not able to sleep.
Took sleeping pills at 7 pm last night and fell asleep at ?
Woke at 11ish but was able to go back to sleep at ?
Woke again a few times in the middle of the night able to getup and toilet and drink some more lemond rink...dehydrated.
typing with eyes closed.
And confused at what I just wrote. I know I woke again at 4 am.
I need to lay low.
I can feel the pressure bldg again
Thanks for being there.
Praying it goes away today.
I ran out of l serine supplement. I wonder if that was helping as I went a while without the inflamation.
My friend also go groceries for me while she was here.
I'd like to be able to eat them before they go bad.
But,
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Whewph.
Cold in here htis am. Typing with eyes closed.
Hoping to get up an dfind peltor ear **** prtoection and turn on heater. Sound of fan for heater in apartment is too much so need peltor ear muffs to ehlp.
Stil in the fear factor mode and trying to fight thoughts of how to end this.
I know once I get thru this I will be back to fighting the good fight.
It has not gotten as bad as it can get. Praying it doesn't.
I have got to get some alka selzer gold and try it. Checking acct only has about $3.00 in it until the 3rd. So hoping I remember to get the alka seltzer gold when I do have the funds.
Still not able tor ead what you all wrote. I'll read it when i am doing better.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
I'm so sorry kam you're going through this. Hoping that today is better than what you've been going through. Good thoughts.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Able to get some yogurt and pick ou tthe moldy berries.
Hoping to eat next.
STill very dehydrated. Hoping to get more liquid in my next too.
And get Rosie out to toilet.
I am scared so tping this out to stay connected.
Times like this, I don't thnk it is good to be on my own.
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
We are reading what you write Kam...the Lord is with you. Praying for endurance for you.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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payne
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Member # 26248
posted
fight the Good Fight.. u go girl !
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Kam-It's me you and Razzle under the shade tree today. We're just laying there, stretched out. Comfortable and pain free. Rosie is wagging and her tongue's hanging out.full doggie smile.
There's a nice breeze blowing over us and the sun is filtered through the leaves.
The only sounds are singing birds and wind rustling the leaves.
Hang in there Kam.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I don't want to jinx it but I think it has finally broken.
I am just very weak now which wish is normal after wards.
I'll be back to read what you all posted.
I am looking for away to get rid of this symptom. It is the worse.
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momindeep
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posted
Thankful you are doing better!
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
thanks for helping me get thru another one. Still very, very weak
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Loosing track of days. I did get in the car and drove the back road for 3 miles to the palce I drive and Rosie runs off leash.
Health still very, very weak and flu like symptoms not good.
Hoping by laying here and doing nothing things will be more tolerable.
Still focusing on being dead would be better than living like this but know things can change and I will have what it takes to fight the good fight as soon as health picks up a bit.
it always amazes me that it doesn't ake much now tfor me to be OK.
I don't have to be able to do much at all. Just a little bit in the am.
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payne
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Member # 26248
posted
you can't encourage others to push on if your dead... As in Our Savior Jesus lives.. you are a testment to others that have the towel in there hands and ready to throw it in.. No, throw out the doubting thomas and lift your arms, as The Lord has a need for you to support and accomplish.. as, we know when our lives end here in the flesh the work we have in good service to the Lord continues... as we have stood the test of the flesh and are in God's trust. find your strength and grow, slow is fine, paticents is required..even in good health. Kam Glow on ! and on
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
really ou tof it yestrday until after 4 or 6...brain was a different kind of weird.
Hoping today is better.
I was in and out of consciousness yesterday but no relief even when I was out of it....
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
still not ablew to read wht people wrote. hoping vision cleans up so i can.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
Still praying Kam.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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posted
My goodness, Kam! I'm new, but I get the brain swelling thing too. The difference is that I have Percocet for those times. Will your doctor not prescribe you a narcotic, or does it not help? I take a sleeping pill too and just close my eyes, put earplugs in, close the blinds, and pull the blankets over my head until it's over. You're a trooper! Just wish your doctor could/would understand and help you more.
-------------------- Ellen _ _ ___________ _ _ lyme disease dysautonomia Chiari malformation anxiety Posts: 72 | From Birmingham, AL | Registered: Dec 2013
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I had forgotten to ask my primary doc for the percocet.
I will ask again when able to call or write.
I use to take imitrex as I had migraines for years.
But, when this hit, the imitrex did not work.
I have not tried percocet.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
I'm praying you'll be given an Rx for Percocet AND that it helps you like it does me. I still feel the pressure in my head when on it, but at least not the pain! I keep a few tablets in my purse in case the swelling strikes when I'm not home. The pain killer has kept me from jumping off a bridge.
-------------------- Ellen _ _ ___________ _ _ lyme disease dysautonomia Chiari malformation anxiety Posts: 72 | From Birmingham, AL | Registered: Dec 2013
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payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
stay on bridges that are not over 4 feet and that might still break a leg ("
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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