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» LymeNet Flash » Questions and Discussion » General Support » Another Lyme suicide

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Author Topic: Another Lyme suicide
BoxerMom
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I hate being the one to post this. Please keep this young woman's spirit in your hearts and prayers.

From FaceBook (not my post, from a friend with Lyme):

My heart is very sad to learn that someone in the Lyme Community took her own life. Heather Askeland was bedridden and has been incredibly sick with no medical, financial or family support. She has been reaching out for help for a very long time, but ran out of options. Something's gotta change when it comes to chronic illnesses and the healthcare system. It shouldn't have come to this! I hope you are finally resting in peace, sweet Heather!

I'm hopeful that this post will spread a little bit of awareness. These suicide acts CAN be prevented with acts of love, kindness and support. Be there for people, believe them, take time to understand and listen and most of all love them regardless of the challenges they face. They need you!

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 - Must...find...BRAIN!!!

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BoxerMom
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I do not know if she posted to Lymenet. I know she read here as some threads are linked on her FB page.

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 - Must...find...BRAIN!!!

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dbpei
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So very sad. I pray that she is in a better place now and also for her family and loved ones. It is so tragic that this had to happen.
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TNT
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I'm pretty sure I saw her post as a new member sometime in the past several months, but so far I cannot find it.

When she posted, I remember doing an internet search with the info she posted, and, if I remember right, it was the same person that I'm seeing now.

Maybe someone else will have better success at finding it.

This is too sad... [shake]

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sixgoofykids
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So sad. She was Heiwalove on Lymenet.

--------------------
sixgoofykids.blogspot.com

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TNT
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Yes, I just found the thread that she started asking for help.

http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/33838#000006

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2roads
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I feel so terrible. I think she pmd me for help, and I commented but asked her to post for more suggestions. I think was the member iasked u about Tutu

I should have taken her in. I was absorbed in my own problems, and lack of resources. Was caught between concern for her honesty, and the potential for having her come to Indiana with failed promises due to our limitations.

I would have done so in a heart beat if I knew she was at the end of such a short rope. For whatever reason she chose to pm me, and I failed her.

God please forgive me.

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dbpei
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2roads, don't be too hard on yourself. I think we are all heart broken and guilt ridden for not being able to do more to help this poor girl.

It is just so disgraceful that this disease is going unrecognized and improperly treated in the mainstream medical communities. The CDC and IDSA members who insist that chronic lyme does not exist and the current guidelines need not be changed are the ones who should be ashamed.

This girl's family did not even believe that she was sick because of the politics of this disease. Just awful stuff.

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BoxerMom
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I second what dbpei said.

The failure isn't yours. It belongs to the medical system, especially the influential and heartless doctors who continue to defend guidelines that are proven incorrect time and time again.

Our doctors are threatened and persecuted. Lyme is a dangerous illness for doctors to treat. That's why she could not get help.

The issue with her family is beyond the pale. They basically let her die.

Lyme patients don't have the resources to house other Lyme patients. If we did, we would all do it. We are barely getting by ourselves and all our energy goes into ourselves and our families.

I think the best way to manage our feelings is to share this tragic story. It would be a good way to honor Heather's struggle.

Be kind to yourself, 2roads. The whole Lyme situation is just plain cruel. You are as much a victim of the system as Heather was. We all have to put on our own oxygen masks first.

--------------------
 - Must...find...BRAIN!!!

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hiker53
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2roads, She pm'd me also and I turned her down, too. As bad as I feel, we mustn't blame ourselves. I could not have handled someone with the mental issues that she had (due to Lyme I am sure).

I can only pray that others will find the help that they need.

Hiker53

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Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

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Catgirl
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I am heartbroken to hear this. She pm'd me too, and I also told her I was sorry, but couldn't help. Poor girl. This is just so sad.

We need places for people to go for help. There are places for the obese, anorexics, alcoholics, etc, but lyme patients are left to suffer and die off. It's just not right.

May you RIP Heather.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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LymeMECFSMCS
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Heather did post on Lymenet, but not for some time as far as I know (though maybe she rejoined?): I don't feel qualified to make a judgment call about whether she'd want her old Lymenet name made public.

She was a great talent in so many ways, a truly kind and generous human being, and one of the earliest people I connected with and made a genuine connection to around my Lyme and coinfections diagnosis. She was hugely supportive to me and so many others, and she fought so hard to save her own life as circumstances and these terrible infections took everything from her.

Heather really turned over just about every stone imaginable, and so many people did help her but could only offer so much, because most of them were also sick. She needed more medical care, more practical support, more of so much that she simply could not get in this world.

She supported me around my family doing similar life-endangering abandonment to me that I won't go into -- and for that connection, I will be forever grateful to her beautiful spirit.

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LymeMECFSMCS
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One of her friends posted this earlier tonight on Facebook:

http://whatislyme.com/heather-askeland/

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Robin123
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That's so sad -

I know there's two sites for funding for kids, but I don't think there's any sites for funding for destitute adults.

The Lymelight site for kids holds annual fun events that raise the money, like artists donate their art for a fun sale, and this upcoming weekend, dozens of bicyclists are doing a Ryde for Lyme event, with people pledging x amount of money per mile.

Then I think the site makes 10K grants to kids to help get them well.

There is a lot of money in this world and some of it could be directed to a fund for those like Heather who have nowhere else to turn.

In my area, there are millions of dollars, probably even billions, for venture capital and I don't know how to reach them - I don't run in their circles. It frustrates me.

Well. I just googled her name - poet, artist, musician, with aspirations to be a healer -

She put out help requests on indiegogo and a caring site and a youtube video, which you can watch if you feel like it - someone there even offered to help -

Shouldn't there be a site where people can put out their requests and others can connect with them to try to help in various ways?

[ 07-30-2014, 02:48 AM: Message edited by: Robin123 ]

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LisaK
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terrible. so sad. I feel her pain. it's a lonely place.

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

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Robin123
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Thinking about this some more - is there any site now where adults can go to put out their pleas for some assistance or is it all piecemeal?

Someone actually responded on Heather's youtube site that she WAS willing to take her in and help.

What I'm envisioning is a site where people can make their entries about what they need, or links to their plea like if it's on youtube, and others can check the site to see if they can match any of the requested needs.

The site could also list the other sites where people go and plead their case. It could list resources, any financial aid, etc.

We could come up with a catchy name, or just functional name. First names I've thought of are LymeMatch (altho it's not a dating site!), LymeMercy, LymeMiracles, LymeRESCUE (Recovering Every Spirochetally Challenged Undersupported Emergency. - ok, I'm trying - just to get the ball rolling...)

Goal is to stop suicide and ease distress of sick adults with nowhere to turn.

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Rumigirl
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OMG, reading this, I realize it was probably she that PM'd me, too. But I have absolutely no room or resources to take anyone in. Nor do I know anyone who can (she asked if I knew anyone else who could).

None of us are to blame. But how terrible that our country is so bad about taking care of others in a way that may have been so a long time ago, when people lived in small communities. Who knows, it may not have been so great then either.

It's truly tragic that so many have to suffer so much simply so a few can enrich themselves beyond measure, esp after they come out with a new vaccine, a test kit, etc. Disgusting.

It's much to late now for her, but I just remembered that someone started a place in the midwest for people. Not sure if it really came to fruition though---or lasted. Surely I would have heard more if it had.

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Razzle
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This is such a tragedy. She PM'd me too, but I could not offer any help. So sad. [Frown]

Robin,

I really like your idea about a website people can post needs and others can fulfill those needs. I wonder if there would be a way to crowd fund a nonprofit startup around this idea?

I don't know anything about crowd funding except that it happens and some really cool stuff can occur...

Wish I was healthier...I could do more...

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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Rumigirl
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How horrible that her family deserted her, because they didn't believe she was sick----on top of everything else.

Yes, Robin, there certainly is a need for people to crowd-source, or whatever, to get help. It looks like from the thread that Lymetoo posted, she had collected $$, but clearly not enough to help her to

live and get treatment. Plus, if you are all alone and desperately sick . . . it's very, very tough. Thank God that I have my husband. I don't know what I'd do otherwise. I certainly don't have anyone else I could get help from really (financially, living-wise, etc.).

Even so, it is just the two of us, and it's very, very tough. But all of us go through this. And the families where everyone is sick, including the kids----terrrible.

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Robin123
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I think the last straw for her was her mom dying. Then she had no more support. That would be hard for anyone to go through, even if they're not sick.

I chatted with her too - most of us are not in the position to help - but some people are, and that's the whole point of creating a site where people can go and make these matches.

As I said, this idea is inspired by the FACT I saw someone say she was willing and able to help her. Too late now. But why can't we come up with the ideas and the set-up going forward from now? Those with the means to help will come forward as they do.

So I would appreciate it if we could keep discussing it - name, format, computer skills to set it up.

Razzle, how does crowd funding work?

And why I say adults is that there are two sites that I know of for children and young people under age 26, at least for the Lymelight Foundation, bur I don't know of any sites for struggling adults.

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beaches
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Terrible news. I am glad in a way that I never had contact with her. If I did, the guilt would tear me apart.

But really, who among us could have taken her in? Surely, I couldn't have. And I know the majority here couldn't have either.

So where to go from here? Surely we need resources for our own.

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Razzle
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http://en.wikipedia.org/wiki/Crowdfunding gives a good overview. Basically, you choose a portal (such as gofundme.com) and post your cause and details. Anyone can go to the site and contribute $$ to your specific cause via the funding portal.

We may need to establish a 501(c)3 organization to which the donations would go in order to not have to pay taxes on the donated amounts.

I don't know all the details about how all of this works...

I also think it might be more beneficial to work with an existing Lyme advocacy organization (such as lymedisease.com) instead of forming our own separate nonprofit organization.

A committee of individuals would need to be dedicated to overseeing the matching between donors and donees to ensure compliance with terms of service and other relevant laws -- this would need to be similar to the group of excellent Moderators here on Lymenet.

My computer skillset is rusty and outdated and I'm not reliable...Lyme has taken away a lot of my ability to be consistent with any task.

But I also would like to see something like this take off and become a good source of help for those in need...and there are a LOT of people with Lyme who are in need.

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-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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Silverwolf
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Oh no!!!

This is so sad, Prayer going up for all who knew her.

Lord, we give Heather up to you, and our hearts are heavy to see her gone. Please touch each life who tried to help her,and each life she touched, with your love and mercy.
In Jesus Name Amen.

Silverwolfi and TxCoord sending condolences.

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

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Robin123
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Razzle, I don't think this can go through an existing Lyme organization since they have their own reasons for raising funds, like for research and getting doctors educated. This serves a different purpose.

I agree with you that this would require a dedicated bunch of folks to handle. I feel I have enough on my plate at this point, but I could participate in the ideas for it and also in putting out the call for interested people to work on it.

Heather had some friends and they might want to do something - we'll see. Also, the Lyme world is big now and there might be people who want to contribute their time to setting up a connection site.

Question about the extent of supervisory involvement. Could it also be a site where the donee and donor make the connection themselves, such that supervision isn't involved? Then that would mean no tax write-off essentially? Obviously am at the beginning of a conversation like this...

Donors should probably not list themselves at all, otherwise they'll get flooded with requests. I think they should remain anonymous and free to make the helping connections they feel ready to make.

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Razzle
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In theory, yes, donor and donee could make their own connections.

In reality, there are those who would do unethical or illegal things with this (spammers, etc.), and so to prevent that, I think it would be good to have some sort of method to screen out the bad stuff.

And yes, I agree, donors should be able to remain anonymous.

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-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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Judie
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So sad...I wanted to to read more about what happened so I did a search.

It looks like she had a donation site and you can still donate to it (it raised over $10,000), but what happens to that money???

http://www.youcaring.com/medical-fundraiser/help-heal-heather-s-intestines-/145980

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Robin123
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She had another one too, I think at indiegogo? 3K raised.

Interesting question.

So how would a facilitation group do the screening? Remember, it's going to involve a lot of strangers on both ends. I still think it would be easier to let both parties do the arrangements, but I can be talked out of this if it is explained how the job could be done - ie how decent screening would happen.

Also, there may be some urgency to the requests, if someone is really sick and needs help immediately. You don't want to tie up offers in drawn-out bureaucracy either.

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Razzle
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Yes, I agree too much bureaucracy would be bad.

I was thinking more along the lines of what this forum at LymeNet has - people can post live in realtime, and the Moderators check posts for evidence of trolls, spam, & other TOS violations, etc.

And users of the forum would need to create an account to write a post (new post or to reply to an existing post), but anyone could read posts.

That way, there is no barrier to legitimate posts, while at the same time there is some ability to maintain a safe environment.

I'm open to other suggestions or ideas, too...

I just am trying to find a way to protect us from those who may wish to take advantage of those of us who may be more vulnerable.

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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Robin123
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It's tricky, because even here, it can be difficult to tell who's a troll.

Anyone here have any knowledge of how sites are set up to bring people together - ie those with a need and those offering some assistance?

Also, the site cannot be held legally liable, or no one would be willing to do this.

[ 08-02-2014, 07:45 PM: Message edited by: Robin123 ]

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Keebler
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-
If there are local lyme support groups, they can help with some of these questions - even if a person has been home-bound and unable to go to meetings, maybe someone from the local groups could make some connections in person.

They many also know local resources.

The United Way in most communities has a referral service of sorts, connection people with various kinds of agencies.
-

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lymie_in_md
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The assistance Heather most needed was grief counseling and family support. Her mother passed away February this year. She was singularly the most important person in her life and her anchor. It was her mother's death which started Heather's relapse. Heather was a beautiful spirit who deserved so much more in life. Rest in peace Heather, I will deeply miss you.

I decided to post the following article on grief. It might help us help others like Heather who already are burdoned with lyme.

Your Health and Grief
By Tom Gray

quote:
The loss of a loved one is a life-shattering experience. But unbeknownst to many, it affects us physically as well as emotionally. The grief a person experiences is felt on an emotional level.

The resulting stress of these emotions can create havoc within our bodies. If we had a physical illness before our loved one died, our grief can exacerbate the existing illness. It can also open the way for physical illness if we have been previously healthy.

Grief makes us susceptible to diseases such as the common cold sore throats and other infections. Other diseases shown to be connected to the stress of grief are ulcerative colitis, rheumatoid arthritis asthma heart disease and cancer.

The connection between the mind and body is not always recognized, but there is real scientific evidence that what we think and feel has a direct effect on our biological systems.

This is an especially important issue for bereaved parents because the loss of a child is the ultimate in stress and a stress that lasts so very long.

How we Physically React to Stress
Bodies of all human beings (and animals alike) react to stress in basically the same manner. In 1944 Hans Selye a neurophysiologist formulated the three phases of stress reactions but it is only recently that scientists can identify with considerable accuracy what actually takes place.

According to Selye the reaction to stress happens in three phases but for our purpose we will only discuss phase one.

The first phase or the “alarm reaction” occurs immediately on contact with the stressor (grief at the death of our child). At the death the brain “translates” the stress of grief into a chemical reaction in the body.

The pituitary gland located at the base of the brain is stimulated to produce a hormone called adrenocorticotrophin hormone (ACTH). This reaction is a “protective” one and in essence makes the body ready to do battle.

The ACTH (from the pituitary gland) then travels to the adrenal gland, a gland at the top of the kidneys, which causes a chemical reaction which ultimately produces cortisone. As the cortisone level increases it causes the production of ACTH to level off.

What happens in the case of grief where the stress continues for many months? The cycle does not operate as it should. Because the stress is continuing, the production of ACTH is continuing thus causing the adrenal gland to produce more and more cortisone.

The result is an abnormally high level of cortisone circulating in the blood sometimes exceeding ten to twenty times the normal levels.

A high level of cortisone is one of the things that causes our immune system (the system that normally fights off disease-carrying bacteria, fungi and viruses) to falter.

The high level of cortisone affects yet another gland, the thymus, which manufactures the white cells of our blood. With the thymus not functioning properly It cannot produce white cells that are effective.

Those white cells normally locate and phagocytize (eat up) the invading germs. viral particles or even pre-cancerous cells.

Thus with the white cells unable to function properly the individual is 100% more susceptible to the most common germs.

Taking Preventative Measures to Ward Off Health Concerns
Of course this is an over simplified description of the chemistry of stress but knowing that there is a legitimate reason for susceptibility to illness during grief encourages us to take preventive measures.

Knowledge that changes in eating habits; problems with sleeping: restlessness; lack of physical energy; and various other manifestations, are a normal part of the grieving process will lessen the stress to some extent.

Another way to lessen the stress and probably the most helpful is to acknowledge and appropriately express the emotions that we feel during grief.

These measures can considerably decrease the potential for illness to develop because it displaces and releases the tension brought on by the stress of grief. And certainly good nutrition exercise and proper rest are essential preventive measures.

Another point to consider too is that the stress of grief is rarely the only stress we are experiencing at the time of a loved one’s death.

Problems in our marriage or with our surviving loved ones are only two examples of the other stresses that may be added to the stress of grief. Put a number of stresses together and our bodies will surely suffer.

We must be very aware that our loved one’s death and the resultant grief is a legitimate reason for physical illness. We must do whatever we can to lessen our susceptibility.

Heading directly into our grief and allowing ourselves to face our painful emotions is the most helpful thing we can do.

Talking about our child and the circumstances of the death crying when we need to and talking with someone who will listen non-judgmentally to our anger and guilt is the only way to successfully resolve our grief—and ultimately resolve the stress that is caused by the grief.

The majority of bereaved people experience some kind of physical illness in the first four to six months after the death of their loved one. For most the illness can be directly tied into the extreme stress of their loved one’s death.

I know it is hard to be concerned about yourself physically when you hurt so badly emotionally. But remember, you will not always be in this emotional pain.

Remember too if you have damaged your body in the early months of grief you run the risk of never completely recovering from the physical illness — and recovery for bereaved people means recovery in body as well as mind.



[ 08-02-2014, 07:50 PM: Message edited by: Robin123 ]

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Bob

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Razzle
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Yeah, I know it can be difficult to spot trolls, etc., but without any sort of oversight, I'm concerned that what would otherwise be a great resource could be ruined by those with unscrupulous intentions. I've seen it happen on other unmoderated forums.

There are many areas with no or very limited local Lyme support group activity. It would be difficult to rely on support group help in these areas. Not saying we shouldn't, just pointing out that it may be difficult in some places.

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-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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randibear
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I dont remember her or getting any pms from her. I could have sent her something maybe buhner or supplements but there. Is no remedy for a broken heart.

I'm so sorry for her.

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do not look back when the only course is forward

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Lymetoo
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That is very sad and very sobering to hear. I know at one time she had raised over $25,000. I think the problem was her broken heart, not the lack of money.

How very tragic that this illness takes such a mental toll on patients. It is so isolating and cruel.

May the angels carry her to her eternal home.

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--Lymetutu--
Opinions, not medical advice!

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Robin123
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True, she was grieving the loss of her mother, and thank you, lymie_in_md for posting about grief's physical effects.

But she was also homeless at that point, depending on a few friends to pay for her hotel care, and it's my guess she gave up after she lost the housing.

Someone posted on her youtube page that she would have been willing to take her in and help. That's a very kind offer, and Heather never saw it.

So how do people screen strangers? How can we make it possible to set up a site where those in need posting about their needs get a match with those coming to the site to offer some assistance? Are there precedent sites for doing such a thing?

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sometimesdilly
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Heather too???? My heart is breaking. She was my friend here and offline and a wonderful, kind, intelligent, warm, beautiful person. What an incredible loss.
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sometimesdilly
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I can't address the guilt anyone else feels about Heather.

What I do know about is the guilt that results from being so lost in Lyme oblivion that nothing seems very real and nobody but those in literal physical touch are real anymore, and so there are no phone calls, no emails, no postings...no contact.

Frozen.Trapped. Those uncontacted who are healthy at some point think...rude, oblivious, unconcerned, uncaring, indifferent; not friend. Bonds broken.

And those uncontacted who are equally lost? Like Heather? What word is there for not being able to exist in reality when someone else's life was at stake?

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Robin123
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I know, Dilly - it hurts. She was a very talented young woman with a lot to offer. And frankly, everyone deserves to have their life.

She did have friends who were putting her up at a hotel. But they did not have sufficient funds to keep doing something like that.

I think we could cast a wider net, to help people. There are well people out there, wealthy people out there who would have the means to help someone who's really sick, as she was. Like create a site where people can meet up. And I believe it may have been a Lyme patient who offered to take her in, in the end, which she didn't see.

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sixgoofykids
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I have been avoiding posting on this thread because Heather was a good friend and part of a Lyme friend group that I "talked" to regularly on Facebook. She was one of very few "Lyme friends" who was friends with me on my non-Lyme FB page.

She had offers to take her in. She pushed all of her friends away. I don't want any of you to feel guilty for turning down her request for a place to stay. I saw her turn down multiple offers because they didn't fit her narrow criteria. I'm not sure any of us could have handled the emotional issues she was having.

I know more about this situation than I'm posting here (and I'm not sharing in PM's either), but in the interest of everyone involved and their privacy, I'm keeping this short.

The only reasons I'm posting at all is because those close to her are hurt that people think no one was helping, and I don't want any of you to feel guilty. I don't know what we could have done. It's very sad.

--------------------
sixgoofykids.blogspot.com

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randibear
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thank you six. there is always more to the story than first appears.

we have enuff guilt without the ole "shoulda, woulda, coulda".

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do not look back when the only course is forward

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Robin123
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Thank you, Six, for sharing this, because I've been feeling upset about there having been no one to help her through.

We all have to be somewhat flexible to get through. Like earlier this year, I had to relocate for a couple months during renovation where I live, and a Lyme friend invited me in who lives up a huge hill and upstairs, all of which was not on my doable list!

So, she drove me to the top every evening, and we made a half-stair which halved the height of the step so I could do it. And I got stronger too from doing it.

This was a situation of do it or else, so that's why I feel it's fair to be posting about it in a discussion of where do you go when you have to do something.

[ 08-05-2014, 12:22 AM: Message edited by: Robin123 ]

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poppy
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Let's keep in mind that lyme and the coinfections can mess with brains and cause less than positive actions, especially producing depression.

In her case, she had been given some support and money, but still was in a bad situation with housing and treatment and no family support, so plenty of reasons to be depressed, and then add in the effects on the brain of disease, and it apparently was too much.

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payne
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tears .. Lord, you knew her and yet,
she is gone
hold her near Lord..
Give her the Power to HEAL
From the heavens.
Our Angel Heather,
Amen

--------------------
TULAREMIA/rabbit fever ?

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Lymetoo
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Great tribute to Heather:

http://lymetolimeade.blogspot.com/2014/08/on-suicide-in-lyme-community-in-memory_7.html?m=1

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--Lymetutu--
Opinions, not medical advice!

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sixgoofykids
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quote:
Originally posted by poppy:
Let's keep in mind that lyme and the coinfections can mess with brains and cause less than positive actions, especially producing depression.

In her case, she had been given some support and money, but still was in a bad situation with housing and treatment and no family support, so plenty of reasons to be depressed, and then add in the effects on the brain of disease, and it apparently was too much.

Absolutely.

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sixgoofykids.blogspot.com

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lymie_in_md
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thanks lymetoo for posting Heather's tribute. It was wonderfully written.

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Bob

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seibertneurolyme
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I too have been avoiding this post. Suicide is a somewhat sensitive topic for me as well.

Those who have followed my posts for years may remember that my hubby had several suicide attempts over the years.

I was his full time caregiver for the 12 years he was disabled with tickborne diseases and we were best friends. He entered the hospital for the final time on our 20th wedding anniversary.

Despite how well I thought I knew him and the amount of time we spent together I was surprised by every suicide attempt. Fortunately for him he woke me up every time and told me what he had done so he could get medical care.

It is impossible to truly know what is in another person's thoughts and mind.

I am so sorry Heather thought there was no other way out.

Does anyone have any of her poetry they would like to share? Maybe publishing a book of poetry by her and other tickborne disease patients would be a way to generate some money to set up some sort of patient assistance foundation?

The name Lyme Rescue appeals to me as appropriate for such an organization.

Bea Seibert

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Rumigirl
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Oh, Bea, I didn't know that! I had followed your posts for years, but I guess that his attempts were before I wss on Lymenet---or I simply missed it (not likely),

What a horrible thing for you to go through! As if the whole illness weren't hard enough. It is remarkable as it is that you have dealt with it all as well as you have, and that you still come back here.

Yes, it is true that no one else, no matter how well they know their loved one, can possibly be inside of the head, heart, and feelings of the person who is so hopeless that they are considering suicide.

Many, many of us here, I'm sure, have thought about it, and maybe wanted to end it, because the suffering is often so unbearable and endless. I sure have.

But when you think about the people who would be left behind, and how bad it is for them, and also how bad it is spiritually, well, I just couldn't do it. Plus, that isn't what I, or most of us, want anyway.

Considering what Steve went through, which was so extreme, it isn't surprising. But that wouldn't have made it any easier for you. I am so sorry that you and he both had to go through it with so little help often. It is a tragedy how little help many of have had when we have needed itso desperately.

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LisaK
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quote:
Originally posted by sometimesdilly:

What I do know about is the guilt that results from being so lost in Lyme oblivion that nothing seems very real and nobody but those in literal physical touch are real anymore, and so there are no phone calls, no emails, no postings...no contact.

Frozen.Trapped. Those uncontacted who are healthy at some point think...rude, oblivious, unconcerned, uncaring, indifferent; not friend. Bonds broken.

And those uncontacted who are equally lost? Like Heather? What word is there for not being able to exist in reality when someone else's life was at stake?

wow, you said this like i have been trying to think it an get it out and couldn't , thanks!


that is how I feel, what I am dealing with. the reality of not connecting with non sick people and them thnking what they might be thinking.

are they mad at me? pissed off? IDk.

no one reaches out to me, so what am I to think? I am disposable [confused] .

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Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

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Rivendell
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I'm so sorry. It is so sad.

Why do people turn their heads and look away. Even walk away.

If people only knew the suffering this illness causes.

And to think that greed is the reason that this disease is not understood by doctors and the public, and it is the reason that people are having to suffer to this extent.

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Herbal Treatments for Lyme and Co-Infections:
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http://www.tiredoflyme.com/the-cowden-protocol-for-lyme-disease.html http://www.sinomedresearch.org http://www.lymenet.org/SupportGroups/

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poppy
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I know what you mean Lisa. Just one kind word would make my day. Why is that too much to ask?
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