LymeNet Flash: Lyme Policy Wonk: IDSA Guidelines Revision Process: Cause for alarm?

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » General Support » Lyme Policy Wonk: IDSA Guidelines Revision Process: Cause for alarm?

UBBFriend: Email this page to someone!

Author

Topic: Lyme Policy Wonk: IDSA Guidelines Revision Process: Cause for alarm?

KarlaL
LymeNet Contributor
Member # 29631

posted

IDSA Guidelines Revision Process: Cause for alarm?
18th March 2015 –

See more at: http://lymedisease.org/news/lyme_disease_views/idsa-guidelines-revision-process-cause-for-alarm.html#sthash.y4BGLHkg.dpuf

The Infectious Diseases Society of America recently announced that it will finally be updating its Lyme disease guidelines. They have opened a 30-day window for the public to comment on their guideline development process. I’ve only had a few days to review their proposal, but I am deeply concerned by what I see. . . .

See more at: http://lymedisease.org/news/lyme_disease_views/idsa-guidelines-revision-process-cause-for-alarm.html#sthash.y4BGLHkg.dpuf

The LYME POLICY WONK blog is written by Lorraine Johnson, JD, MBA, who is the Chief Executive Officer of LymeDisease.org.

--------------------
KarlaL

Posts: 694 | From New Lebanon, NY | Registered: Dec 2010 | IP: Logged |

Robin123
Moderator
Member # 9197

posted

If they chose a person who's not a Lyme patient to be a "patient representative," then I think their whole process is going to be a sham again, no matter what we say.

Posts: 13116 | From San Francisco | Registered: May 2006 | IP: Logged |

Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091

posted

Everything about how they are doing this is yet again another sham.

To chose a patient, who knows absolutely nothing about Lyme is so blatant, it's unbelievable!! Not that the rest of it isn't just as blatant.

There is a time period for public comment throught April 9, if I remember the date right (it's listed above).

Posts: 3771 | From around | Registered: Mar 2008 | IP: Logged |

droid1226
Frequent Contributor (1K+ posts)
Member # 34930

posted

Doesn't mean we don't try. I posted to a few hundred people on twitter. I hope someone gets her name. Not to harass. To file a complaint about an imaginary person won't get too much traction.

--------------------
http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

Posts: 1181 | From ohio | Registered: Nov 2011 | IP: Logged |

poppy
Frequent Contributor (1K+ posts)
Member # 5355

posted

The name is known, and it is the fault of the IDSA crooks, not the patient they chose.

Posts: 2888 | From USA | Registered: Mar 2004 | IP: Logged |

droid1226
Frequent Contributor (1K+ posts)
Member # 34930

posted

Ok, what's the name? Of course it's the IDSA's fault. That doesn't mean we let this person believe lyme is cured after 3 weeks of antibiotics. Right? Not if she has some influence.

--------------------
http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

Posts: 1181 | From ohio | Registered: Nov 2011 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/