"It's tempting to combine the 2012 "ever diagnosed" number with the 2011 "chronic Lyme" number to yield a treatment failure rate, however, since the CDC didn't report on the same questions year-over-year, we cannot reliably combine the 2011 and 2012 data.
These figures do suggest treatment FAILURE IS VERY COMMON, so let's look at the rate of chronicity illustrated by a different set of HealthStyles questions, then compare that to research from Johns Hopkins University."
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Keebler
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- I'm confused as it to why the excerpted quote stops with Johns Hopkins. She goes on with much more thought at the blog.
What are you saying about that article - as it's just the blog quote but assume by the ? in the subject matter that you want to know if it's true, this bit about treatment failure. It is true.
Below are the two best on the matter, Johnson and Weintraub. Hope this helps you find what you are looking for.
If you are looking just to Johns Hopkins for some reason or what to explore this more on your own or if you wanted a take on just that quote:
We are not going to learn much truth from Johns Hopkins - or the CDC. So many cases are just simply not even identified or reported. The diagnostics by the IDSA fail to identify many cases.
When treatment fails, the patients are most often told, it's not real or other things. So many don't even know their treatment failed but are still ill and not knowing just why when they've been turned away. Lost to the system.
The lyme support groups might be the best place to start looking at treatment failures. The lyme advocacy groups, too.
And, here, for no one would be here without either treatment denial to begin with or too little treatment, treatments that failed due to shortcomings galore by those connected with the IDSA.
These lyme advocacy groups and support groups are here out of a need, this very need: the IDSA standards for diagnosis & treatment fails many. Thousands, and likely even tens of thousands.
But you won't find that in records of the very IDSA-cohort organizations that deny persistent lyme even exists. They don't even understand the basics of lyme, much less the complexities and involvement of other TBD.
Quite frankly, though, others have done the work you seem to seek - and will save you lots of time. Look to Lorraine Johnson's blog AND other writings (you may have to search for the composite) over the years at
And Pamela Weintraub's works, too. After reading ALL each has written on this topic, a much fuller perspective can shine some light and answer many questions.
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