Topic: Support for those who have 'Musical Ear Syndrome'
Silverwolf
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Member # 9196
posted
Hi <<<<< Lyme family >>>>>,
I have been wandering about,on the net, researching.
Do any of you 'Hear music that isn't there' ?? Often this is due to Ototoxicity.
It does not mean we are losing it!!!!It may be caused by some medications[ can occur w/ a couple hundred prescriptions], heavy metal toxicity, a variety of chemicals.
And sometimes because of annoying noises our brain is trying to make sense of, For instance Fans,Air conditioners and furnaces starting up !!!
Most often folk experiencing this, have some hearing impairment, but not in all cases. With so many of us w/ a toxic overload of well...just about everything...
Just wanted y'all to know if it happens to you or a loved one...it is much more common than people may realize.
Many folk w/ Tinnitus have this occur. Often it is old favorite songs,Hymns, a radio one knows isn't turned on, playing music choirs, Symphonic music and so on.
While this is perhaps suited to Medical Board as well as here... I just wanted folks to know that tho' it can be annoying, it doesn't mean we've gone off the deep end so to speak!
I'm in the process of trying to find out what treatments can be done to ease it. Will see my PA next week and ask questions.
If it is happening to you or a loved one, try not to get overly concerned. Lyme affects us in so many ways.
Hope this is helpful to Lyme Family. I'm not real 'techno literate',so haven't tried to post links.
Info' can be googled on Musical Ear Syndrome, or 'hearing music that isn't there'/Phantom music and so on.
I'm trying to re-tune mine to songs I enjoy, and so that phrased will resolve...the repetition is bothersome.
Jus'Silverwolfi searching stuff.
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
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Jus' me somemore .Sending hugs to any and all,w/ hearing loss, ear symptoms,pain, fullness and so on.
<<<<< >>>>>!!!
I was truly relieved to find out about Musical Ear Syndrome,and I hope it will help othres to know about what it is!
jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
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Okay???
So maybe this is rare in Lyme Disease as a problem???
I had hoped it would be relevant and helpful to others.
For Me constant Music playing in my head w/o a break has been uncomfortable.
Jus'Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Marz
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I recently listened to a book on CD, Musicophilia: Tales of Music and the Brain, by a neurologist, Oliver Sacks, MD. Only a chapter or so was on this but the case histories of people with this were fascinating.
Is this new for you? Is it loud and constant? You said you're trying to retune. Can you do this?
Two nights in a row last week late at night, I heard birds singing/chirping in the distance. It was only in one ear and didn't last a long time.
I have hyperacusis and tinnitus and worry it might turn into hearing loss. If I had just a tiny bit of loss so I could tolerate noise it would be helpful though.
Hope this resolves for you Silverwolfi. Let us know what your PA says.
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Keebler
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- The "musical ear" thing in relation to the vibration of fan, motor, etc. can be part tinnitus, part hyperacusis and part seizure, in my experience and study.
Heater fans, even from others' apt. are very harsh. Motors of vehicles . . .
I'm up so late at night because a neighbor likes to run his bathroom exhaust fan for about 2 hours around midnight. Even - actually, especially, with earplugs, that really stimulates my inner ear function and triggers vertigo and nausea.
So, against wisdom, I have date with my computer in my hall closet - to get away from the fan noise.
But, that is near my fridge and the fridge fan causes "musical ear" and churning stomach.
I do try to "sing songs in my head" (can't listen to much music due to sudden shifts and percussion - hyperacusis is pretty rough) . . . but if I can sort of tune into the key of the fan and breathe and hum and move with it, rather than tighten up, that helps. Native American style chants help.
FANS from several blocks away can also trigger the ear stuff. Especially the fans on ventilation systems for buildings . . . and Air Conditioner units even in private homes.
Late at night, I like to have my windows open and just hear quiet - I probably like being up late as that's the quiet time around here -- but the fans from the tennis center a couple blocks way is very irritating.
My body and brain just craves some REAL quiet but it is just so hard to find.
- segue jump - back to:
The seizure part has to do with the elevated GABA clobbering the NMDA excitatory receptors. Magnesium and Fish oil are the best helpers to lower the NMDA stuff.
Avoiding all food additives, too. Even "natural flavors" can trigger "musical ear" - really. They are so very close to MSG which is neuro-exictatory.
And, of course, we have damage to the ears from sounds, chemicals, etc.
The kinds of noises that we've allowed into our lives is criminal, IMO. Most hairdryers and vacuums should not be allowed on the market. How many of us knew to wear ear plugs when around those? Or blenders, etc.
Hearing protection is vital.
EAR PODS, too, can cause "musical ear" and so much more trouble.
More here about what might be happening and some things that help: ------------
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS & SCD - Superior canal dehiscence -
[ 04-27-2012, 04:47 AM: Message edited by: Keebler ]
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Keebler
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- Also consider: Parasites.
Toxicity is on of the main causes of tinnitus, hyperacusis and "musical ear"
That can come from lyme, other stealth infections and parasites, too.
Lovely issues. Just lovely. But even the animals in nature know this (and self-treat with specific plants) and our society has just chosen to ignore it. -
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Silverwolf
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Hi there <<<<< Marz, Keebler and anyone else who May be reading this too! >>>>>,
I only recently even found out this problem had a name. The first time it happened was about 5 yrs. ago, I was in treatment, Rocephin IM and Mepron etc. [before we lost the insurance completely].
Have had tinnitus since 1994, after a 'flu bug' that wouldn't go away. But the MES started when a friend in distress rang the door bell at 2:45 A.M. [just part of our job then].
It was a chime sort of thing, and after they left I got up and checked a couple times because I kept hearing the doorbell chime repetitively.
Once the doorbell had stuck on in a snowstorm, so I tho't something was wrong, even tho' it was nicer weather. TxC' kept telling me the doorbell was not ringing, then the music started.
That was half a decade back,but since then this starts in again, just occasionally. This time it has become constant, it happened subtly and I realized after some stressful events that it isn't going away right now.
It is building,and songs that don't belong together are repeating w/o a resolution. Sometimes just one,but often parts of two or three songs together.
The songs are played on a pump organ that wants to be a bagpipe as to the sound of it.
Marz, I am not sure If I can 're-tune' but I am hoping, I know my hearing is damaged. I am suspicious of a new medicine that I had to start,we'll see when I talk w/ the PA too.
Keebler, I was wondering if this was a seizure like disorder, I've had problems before, and TxCoord can see some of the effects happening again,tho' I haven't had a total freeze up lately.
I may need to up the dosage of my fish oils and so on, I wish there was a LLMD, or LLND here. We haven't found any that really could help,especially here in SE Idaho. Doing what we can on our own.
Have to change BP meds most likely now as I cannot get the ones I have been using,unless there is a different program I am unaware of. Maybe different meds will ease this issue tho'.
I'll be having to check each supplement to be sure it isn't going to cross react...but on the plus side if I cannot stop the MES ,maybe it could be re-tuned??!
Will let y'all know if I find out anything at appt. next week.
Sorry that y'all are going thru these issues as well,and thanks again for the input!!!
Jus' Silverwolfi here.
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
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Hey there <<<<< Keebler >>>>>,
TxCoord had a tho't, tho' you may have already tried this :
As to the situation w/ the neighbors bathroom fan running, after midnigh,t for a couple of hours. Could ADA or another group be asked to help with a sound proofing wall boarding being added?!
Perhaps others are having trouble too, in the mobile home /trailer park where we live,it is really frustrating when cars go by w/ super loud music, especially booming base. And then the motorcyclists get to roaring around.
Sometimes it is well past noise curfew... but we don't have a simple effective way to deaden the sound.
Perhaps there is a way where you live?
Anyway, I do hope that you can get some resolution,it isn't fun to be kept awake when our bodies need rest and calming quiet so desperately.
Jus'Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Keebler
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- Soundproofing? It is nearly impossible in an existing building unless tens of thousands of dollars are available and the walls and floors are gutted. Even the ceiling would need it.
As with air, if there is even a little break in the "seal" sound-proofing does not hold.
VIBRATION-proofing is really what is more important and that is very difficult unless built in at the time of construction.
Special exhaust fans for surrounding apts would be needed and few on the market are really quiet enough, anyway. Even so, in an apt. bldg., not possible.
Really, the exhaust fans are the least of the noise problems in apartments but it's just that I have to not turn on my computer as that makes sleep all the more elusive. It's a very bad habit late at night.
I've given lots of thoughts to a soundproof pod, even talked to some experts but it's just not been possible. Other than money, ventilation is tricky at best.
Still, for the most part, my apt. is better at this time than ever before. I do dream of a little tent far off in a clearing in the woods, though.
At times, I can tolerate a bit of soft music and that is nice. It's just that I've never really found any music that works at night. It's all too stimulating.
Still, I just am thankful to have a roof over my head. Many in the world do not. -
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Silverwolf
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Hi <<<<< Keebler >>>>>,
So often this comes down to not having accesible monies and goods to help. we sure do get that.
And the vibration proofing is important ,I agree!!!
I even wondered about some sort of foam to help seal and stop noise,tho' I don't think that could stop vibrations either.
And even w/ 'healthier foam insulations and noise boarding, MCS folk would be in difficult straits, I'd think.
We've watched the 'Holmes on Homes' show a number of times ,and they are using some sound proofing, fixing homes with foam and sound board.
But money for this, and products that are safe w/o off gassing??? I am not sure how that could come about.
It is good to have a roof over our heads, some of my relatives ,in a different state, may be losing their home, they are scrambling to save it, or find other housing. It would displace at least two families if they lose the home.
As have TxCoord and I ,they've had health issues and job loss,and now a recent family death. More and more we are seeing folk that 'fall thru the cracks'. it is happening everywhere it seems.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Keebler
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- Yeah, I like to watch "This Old House" and am awe when they spray that foam into the walls.
Truly, that is said to be very good soundproofing but would need to be done with ceiling and floors, too.
But - many spray foams are very toxic and will off-gas for many years (if not forever), especially in warm and hot weather.
Also to consider: anti-mold agents and flame retardant ingredients.
Even the non-toxic kind of weather-proofing foam spray can cause problems for anyone with MCS (Multiple chemical sensitivities). Though, I've very glad to see them have some products that are at least much better.
Regarding sound, that's a very different kind of foam (closed cell), though, than going to a fabric or home store and buying foam bedding pieces (open cell).
THAT kind of foam will NOT stop sound. And it can mold like crazy. Some has antifungal and fire retardants embedded.
Years ago, I had a "pillow speaker" a round disc I (or then-husband) could put under pillow and still hear the TV while the other was sleeping.
That demonstrated to me that sound travels very well through foam. If you have any doubt, take a foam pillow and put it up to a stereo speaker. You'll still hear everything.
The foam earplugs can help to some degree SOMETIMES. I've not found them to help at all with bass beats and driving rhythm. In fact, then ear plugs make things worse, IME.
I had a nice phone conversation with the guy who designed a dome home intended for storm areas.
One of his first was a dome home on the beach in Pensacola. It's a spray foam / concrete deal and that would be soundproof (depending upon window seals, etc.) but, really, I want to be able to open my windows anytime it's over 60 degrees.
I really don't want to live in a sealed coffin, whatever the size. I just wish 1) my ears and brain were not so tender and 2) there just was not so much noise assault everywhere.
Noise assault is not really considered a problem by many but there are some researchers seeing how much effect it has.
I recall an article at BBC.com about how many people have been killed by noise in the UK. Yes, killed. Not directly, but indirectly. The author highlighted the elevated cortisol and the cascade of ill effects, etc.
They also noted that it really is loud out there and that humans were not intended to be in such a noise soup - adding that noise contributes to making many illnesses worse. -
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Keebler
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World Health Organisation, University College London
NOISE KILLS THOUSANDS EVERY YEAR
Excerpts:
Thousands of people around the world are being driven to an early grave by excessive noise, it was claimed today.
Early findings from the World Health Organisation show that chronic exposure to noise in busy cities can make people ill and can even kill. Traffic noise alone may account for 3% of deaths from heart attacks and strokes in Europe.
Given that seven million people around the world die each year from heart disease, the global death toll from traffic noise could be around 210,000.
More than 600,000 potential years of healthy life were lost in Europe each year due to noise-related death and disability, New Scientist magazine reported. . . .
. . . Chronic night-time exposure to noise levels of 50 decibels or above was enough to cause cardiovascular problems. . . .
- Full article at link above.
--------------------------
Along these lines, I would venture a guess that many hospital deaths are due to (or triggered by) the noise, lights and general chaos.
Hospitals need not be that way but I hold no hope it changing to a calm atmosphere that would be conducive for patients, visitors and staff.
The "ego" of the hospital, and many places of business, seems to be addicted to the high drama setting. -
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Keebler
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- And that is why adrenal support is so very important to help balance cortisol that can jump from sound irritation.
Be sure you've got adrenal support as that "musical ear syndrome" can spike cortisol.
Holy Basil (Tulsi) is just one.
Find good ways to nurture yourself. Always. -
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Silverwolf
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Hi <<<<< Keebler >>>>>,
Trying to remember where we saw a report on Noise pollution not to long ago... it is more of a problem than is realized.
The sound blocking foam I was wondering about,is probably the closed cell?! It was used in radio stations some years back.
A dark charcoal gray with little peaks in it. But I wonder about the off gassing.
LOL I had a picture of a person with a foam pillow coned around the head w/ an opening for the face...
uh regular foam doesn't work...TxC' Hubby used to snore. Nice foam pillows didn't cushion my ears enough.
As for the Tulsi, I am pretty sure the local Krogers-Fred Meyer carries it in their vitamin section...have to check that out.
I know what you mean about not wanting to feel like one must sleep in a coffin...
Er...I had fun over Halloween being 'ElizaBella SwannFeather the Vam-pirate-princess' [even tho' I was recovering from a concussion,and couldn't go anywhere]
,But having to live in a darkened noise muffled cavern like place wouldn't be much fun, and not getting enough sensory input,may be almost as bad as getting too much.
I've gotta take off for a bit...BBL
Jus'Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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MADDOG
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I allmost allways have songs going through my head.
It gets real bad when in a relaps.
That Patti Duke theme song just drives me crazy.
Then the Jesus take the wheel song.it drove me outa my mind.Any one that would let go of the wheel in a skid is a MORRON!!!!
I could hear it playing over and over.
Do not even start the its the song that never ends,it goes on and on my friends,some people started singing it just to ect ect ect ect ect!!
HELP!!!!!
MADDOG
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Silverwolf
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Hey <<<<< MADDOG >>>>>,
So sorry you are having this happening too.
When it started the first time,after the door bell ringing I had parts of a Hymn: 'the Doxology', w/ 'Going Home at the Break of Day',and I was Born under a Wandering Star, from Paint Your Wagon.
Now it is mostly Hymns, but some odd phrases of other songs, played w/ that odd Pump Organ music...
I am trying to see if it at least can be re-tuned somehow,so it is not so loud in my head. Makes hearing,thinking and everything really difficult.
Will talk w/ my PA next week and see what they know of this. And I am hoping that listening to different types of music might ease it...but don't know for sure.
<<<<< Marz, Keebler and MADDOG >>>>> Y'all will be in my prayers,as I look for answers to stop, or at least ease this.
I'll post updates as I find out more.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Keebler
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- Consider "MASKING" as used for tinnitus treatment. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Silverwolf
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Hey there <<<<< Keebler >>>>>,
Watched a 'Pink Noise Mask vidoe of Niagra falls...interesting...eased some of the buzzing, tho' the 'Reedy pipe organ' I hear still plays on,on low.
Will have to check into this some more! Hope you are doing better today! Thank You for the Input!
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Keebler
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- You can buy a PINK NOISE CD through the Hyperacusis Network site. Then you don't have to have your TV on for the audio from a video.
I can't "do" the pink noise (or white noise) at all, it's very irritating and actually lowers the seizure threshold for me. But what irritates some ears is literally music - or just background - to others.
Most who use the pink noise CD find it to be soothing. If so, great. If not, just turn it down to a level you can tolerate. If that does not work, then it's just not for you.
The best ambient music may be Brian Eno's MUSIC FOR AIRPORTS. -
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Silverwolf
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Hey there <<<<< Keebler >>>>>,
Don't know what we'll be doing about this yet as I am just finding out, will be talking w/ the PA[non LL] tomorrow afternoon about the MES,amongst other subjects.
I am so very grateful tho' for the info' and input ,that you, and each replier, took the time to give!!! It helps us have an idea of somewhere to start,to find a way to treat the various problems!!
TxC' and I are continuing to pray for those with MES symptoms, as well as the LymeNet Family.This disease and Co-infections causes so very many difficulties for all of us.
Will update as soon as we can after tomorrows appt.
Jus'Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
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Hi <<<<< LymeFamily w/ MES Tinnitus and such >>>>>,
Updating here: had Appt. w/non LL PA on the 1st of May, they are changing some meds around to see if it will ease the Musical Ear Syndrome problem,
...not much difference so far,but we are trying some masking w. various music we have around home.
I am having some sinus issues too,and that has not helped I am sure. We are trying a different allergy med for that.
I hope each of you,is doing better,and not having any worsening symptoms ...this certainly is a Multi-complex illness that's for true.
Will check back later.
Jus'Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
Burrascano's lecture he gave in..March 2011? I think? mentions this. It sounded like it's pretty common with lyme. He mentioned that often the sounds people hear are early childhood memories.
I tend to hear either what sounds like a distant radio, or the vacuum (<--that one is an early childhood memory. my parents had to run the vacuum to get me to go to sleep). My hearing has gotten noticeably worse in the last few months, and this is when the "musical ears" started as well. I tend to get it at night. I've found that complete silence helps to not trigger it, but when it does show up, running the air purifier to cover it up helps quite a bit.
If you have an iphone, there is an app for "white noise" that has a bunch of sounds that are developed particularly to cover up other sounds. I wonder if that may help you? it's free to download, and is called "white noise."
-------------------- No action, no change. Limited action, limited change. Lots of action - Change occurs. - Catherine Pulsifer
When you jump for joy, beware that no one moves the ground from beneath your feet. - Stanislaw Lec Posts: 28 | From Earth | Registered: Apr 2012
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Silverwolf
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Hi there <<<<< wintertree >>>>>,
Thanks for the reply and info',sorry you are going thru this as well.
We only have the simple Tracphone pay as you go,so no Apps that we know of,that's why I've been using our CD/DVD player.
It's interesting that Dr.B's lecture mentioned this, and that it is usually related to early childhood memories.
My maternal Grandma used to play organ just for fun. She loved to play certain hymns when I was little. She played a lot of them.
And I've always loved Christmas carols,I hear a couple of then frequently.Grandmas organ didn't sound as reedy as what I hear,but it may explain some of the MES I am hearing.
Difficult to get complete silence in this area, even w/ a noise curfew. Motorcycles,loud music, the fan on our heater as it kicks on...all of this can happen anytime.
Our older computer which I type on, buzzes as well. And come summer, the AC bumps and whirs , so I'll have to try different things to mask the musical-noise.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
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Hi <<<<< Lyme-Family and those with Tinnitus, Hyperacusis and MES >>>>>,
How are y'all doing? TxCoord and I have been experimenting w/ different music to see what may help still.
I'm not sure the meds changes have helped my ears, but am giving it more time. I hope things are well as can be expected for those of you struggling w/ these hearing problems.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Keebler
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- Music: Brian Eno's "Music for Airports" or similar AMBIENT music.
Why ambient? You'd want music with
* no repeating "tune"
* no lyrics
(Even lullabies' tunes and lyric repeats can be too haunting, musically speaking)
* no driving beat or bass rhythm -- the music should seem to float and drift with a consistent rhythm but one that is nearly indistinguishable -- one that you would not be tapping your foot to the time.
* minimum of instruments & simplicity of the musical line and notes from a relatively narrow range (especially not too high in pitch)
* 6/8 timing seems more soothing that 4/4 - just my observation.
Also no percussion, generally. For some, the deep gentle drumming of Native American musicians can be soothing (or not). I find low pitch native flutes very nice - but the the high pitched ones are irritating to my ear nerves.
Mozart or Haydn (son or Papa) are also particularly good for the centering brainwaves but I find them too stimulating to the brain for evening.
"Mozart for Massage" compilation CD is nice.
But the CD "Mozart at Midnight" seems for a midnight gathering, not sleep for my brain.
Book & CDs: The Mozart Effect (Don Campbell)
--------------
Consider MYELIN SHEATH & MITOCHONDRIA SUPPORT, starting with the two doctors below. Neither are LL doctors, still their work is essential for those with lyme:
Hello Music Lover. We find the best vibrations in the world and we put into our stream. We hope that by listening to this music, you will be able to successfully meditate, heal, work or simply rest after a stressful day. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hey <<<<< Keebler >>>>>,
Thanks for the links!!!
I'll check them out,and see if we can find the radio stations too!!!
Altho' I love Celtic music, occasionally they hit a high note that doesn't work for me...too high sets things off,it can sound piercing.
So I can see the sense in ambient music!! Some of the music we've been listening to is so beautiful,but it does repeat,or have a really obvious beat and so on.
Will be checking the Myelin Sheath and Mitochondria support links out as well. Perhaps some of these issues are worsening.
If I can find something helpful but inexpensive as to supplements...that'd be really great!!!
BB in a bit...exploring links
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi there <<<<< Keebler >>>>>,
The Kink link and the Nirvana link wont load on our over stressed aged [a decade plus] computer.
Will have TxCoord see if they'll load on the laptop...w/ brain burps I am having difficulty learning new stuff right now...
Hope each of y'all w/ ear/MES and hearing/balance issues are doing better today.
Jus' Silverwolfi BBL
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
I haven't been on this site much for the last few years, but when I saw this thread, I had to chime in.
Back around 2006, during a horrendous herx after restarting IV abx, I had auditory hallucinations during which I would suddenly hear sounds like someone banging on a piano--very discordant, jarring sounds. This was followed by music played by a strings orchestra--badly, and out of tune. And I heard a different song in each ear!
These sounds were very real sounding, but somehow I knew it was inside my head, and there were no audible sounds from without that could account for what I was hearing. It would happen in the middle of the night, when the whole house was quiet. I lived in a house in a quiet neighborhood, no radio, no stereos playing, no air conditioners making noise, NOTHING outward to account for what I was hearing.
I've always wondered if there were others out there who had similar experiences to mine. When it happened to me, I called my LLMD, and he advised me to back off my abx infusions for a few days till the herx eased up. Thankfully, the hallucinations went away after that.
Posts: 962 | From Charleston | Registered: Jan 2002
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hello <<<<< Maryland Mom >>>>>,
We have been trying to figure out if it was a medication/supplement or what might be triggering the problem. The last bout I had was '06-07 during Rocephin IM treatment .
It had faded after that and no serious problems with the -MES- until April of this year. Sorry that it happened to you as well ,not a fun thing to have phantom music playing. Glad yours quit!!!
Thanks for the reply, evidently this may be more common than we tho't.
Jus'Silverwolfi here.
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
I used to get this really bad. Also voiced in head
Scary stuff that did go away with treatment
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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