Topic: i am so incredibly . ANGRY at the MAINSTREAM MEDICAL professionals! !!
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
And its not even about lyme except their screw-up has made my physical life so much harder...and this is on top of what lyme has done to me
last night I couldn't sleep again because of knee pain
both knees had been replaced 8 years ago and one knee was re-done or revised totally a year ago because it failed. No one could say why it failed
In this time i have had over ten P T s...at least three in the house after surgery to make sure i was doing things right
last night I found on the internet buried way way back the facts that
1 after knee replacement you must sit in a chair that's at least 20 to 22 inches high or you will cause the knee replacement to fail
2 you are not supposed to lift anything over 20 pounds
so all of you have heard me complain and listen to all my activities moving in the floor boxes, living in my recliner that happens to be 16 inches high
No PT ever told me that about the sitting or about the lifting
at least three were in this house after the last surgery and saw how i lived in the recliner. i need it to sleep because of reflux.
but i thought it being low was a good thing because it would make my quads stronger and that is important for artificial knees. i knew it hurt and my knees crunched and made noises every time i got up but i told myself i was doing exercise.
now i learn i was abusing them especially the new one. you cant get a second revision...there isnt enough bone left.
and so I think of me carrying the floor boxes in and moving totes again and again...
and getting up and down out of that chair-my knee getting worse and worse...i told the doc three times and he said the xrays are fine...must be scar tissue or soft tissue-nothing i can do about it
I can fix the situation I'm going to fix it in 2 days
I have the stuff to lift the chair up right out in the garage
i just cleaned it off and im waiting for it to dry then it will need two coats of mold free paint cuz its been outside. but i can do that from my wheelchair...i think the weather will be ok this week
but how could they do this to me ???
how much have I suffered???
how much have I not gotten done!!!
i could have been doing stairs like i am supposed to be doing.. and kayaking and riding like last time...oh i am just so mad. disgusted, the incompetence and saying "not my problem" "my ass is covered"...grrrr!!!!! i am just so pissed.
maybe i should have just put this in the rant thread...but i really want the world to know how incompetent the medical situation has become...and its not just lyme or ebola or all the other stuff we have to diagnose and treat ourselves. we cant trust .. we really cant
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
ive been told to stop whining, stop crying, grow up, you name it.
I've been thrown out of dr's offices and even yelled and cursed at.
nobody deserves what we have to put up with. and then when they screw up, they blame us.
incredible...
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
hi randi...i know. gotta rant and let it go. today i was thinking i really really wanted to get drunk over this. then i realized what i felt like after half a beer. forget it
i miss you over on exercise...last i knew you were walking again. for exercise. long walks. how are you doing?
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
ok. I'm still walking. some mornings I practically gripe the entire time. others I take it easy.
I jus have to keep moving.
at least my feet are no longer icebergs and I can make it without feeling like I have to call 911!!
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
Kayak.. Can you "fix" the other part? I can't believe they never told you not to lift things. OUCH.
There IS HOPE. Hang onto it!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
I dont know what you mean fix the other part
My neighbors came over and helped me get the daybed up five inchrs
And my desk chair i had high
And i put the shower chair higher and put it in kitchen
New wc is very low and not adjustable and cusions give me back spasms So i have a few places to sit and when i get platforms painted i will have two recliners
My knees hurt so much less after one day of not sitting in low chair
Hard to believe
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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2 you are not supposed to lift anything over 20 pounds
--
I think with lots of rest this winter, you might be able to recover some of that soft tissue damage??
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Doing what i was doing makes the knees loosen. There is no way to fix tht. When they re too loose its called "failing" and when it happens once they do a revision and you get a new knee
But each time you do it you use up good bone. And after it is done twice they dont do it again
So if it keeps getting worse i wont be able to walk and will be in wc
Worse case is when bone dies atound fake knee and you have to amputate leg. Im not there yet and who knows if i get introuble after awhile maybe there will be new way to fix it
I hurt in my hands and arm this morning but not the knee
Im getting rid og anger with work
But i do have to stoo lifting...20 lbs is not very heavy
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lpkayak
Honored Contributor (10K+ posts)
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posted
Have to stop lifting. I guess future will tell how much damage i have done
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Keep up the hope .. and try to find out exactly how much 20 lbs is.... Like 4 bags of sugar.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
I know...it is so light. When i carried the boes of flooring i struggled..they wete 40 lbs
Many years ago it was 100 lb sacks of horse feed...then they ch as nged it to 50 lbs...oh and haybales too
Time will tell how much damage i did
Tonight my hands hurt the worst from painting and mowinh
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
ugh, I am sorry this happened! yes, for the most part we need to find things out on our own.
when I had emergency surgery a while back for reconstructive ankle, foot and leg bones, there was so much drs didn't tell me and PT told me but only after I asked questions!
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
I'm so sorry LP.
Must be so painful and frustrating just dealing with a joint replacement.
But to be not given important info to maximize the healing of the knee...it is unforgivable you weren't given that info.
I am so sorry LP Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
quote:Originally posted by lpkayak:
When they re too loose its called "failing" and when it happens once they do a revision and you get a new knee
Worse case is when bone dies atound fake knee...
. There is a way to help the bone heal tight around the knee prosthesis. It's PEMF...pulsed electromagnetic therapy.
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Ty. I started to read but too much for now
I know you have talked to me about a pulcer before
I have rife now...will that work
This is not just a knee that is not healing right. It is a knee that i have abused for a year cuz no one told me not to lift over 20 lbs Or sit in a chair under 20-22 inches
The damage is related to angles of hip and knee being over stressed
This happened to my revision-a surgery that has a much poorer prognosis than tkr
After my double tkr i was riding horses and kayaking 3 months later
They lasted 7 years...i was counting on 15. I got the problwm chair about 4 yrs after suegery
I also dismounted occasionally without special mounting block and thisresulted in a small jump down which hurts tkn
Im mad about not being told this chair will hurt the revision as well as tkr that wasnt revised yet
Im not sure how to program rife ... i will look into it and i have raised chair so i have stopped abusing the knee
Ty
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
That's interesting. I had never heard that. Go for it!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
On the toilet being low, you can get a commode that fits over the toilet that you can adjust for height. I had to get one when I had surgery this summer and couldn't sit on the regular low toilet seat. They are about $65 give or take a few dollars.
I am sorry that no one told you this! This is why I do endless research about everything. My surgeon (for hamstring tendon ruptures) has been really great and knowledgeable, including specifics of Physical Therapy. But I had to go through a bunch of good for nothings before I got to him. Sigh.
Keep going with what you can do.
Posts: 3771 | From around | Registered: Mar 2008
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Cant fix "STUPID"
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
quote:Originally posted by lpkayak:
Ty. I started to read but too much for now
I know you have talked to me about a pulcer before
I have rife now...will that work
. I just included those studies to back up what I said. Look at the conclusions.
PEMF improves the circulation, so the cells work better and heal MUCH more quickly than usual.
Rife vibrates to interfere with a particular cell's inherent vibration, thus killing it.
There are videos on YouTube showing the SOTA Magnetic Pulser in operation. The stronger PEMF units are MUCH more expensive.
I really think this is what you need. I know, I'm being pushy. There are a number of reviews at Amazon, but I think the price from the vendors who sell it there are a little more expensive than buying it from the SOTA company.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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