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» LymeNet Flash » Questions and Discussion » General Support » Valley View: Lyme is most misunderstood disease since AIDS

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Author Topic: Valley View: Lyme is most misunderstood disease since AIDS
KarlaL
LymeNet Contributor
Member # 29631

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In a letter to the Poughkeepsie Journal, Holly Ahern, Lyme Disease advocate and an associate professor of microbiology at the State University of New York Adirondack does an excellent job weighing in on Lyme Disease and why Governor Cuomo should sign the NYS Patient Rights/Doctor Protection bill.

Help spread the word; like, comment, and share this with your facebook friends!

New Yorkers Email Governor Cuomo Today:
"Sign the Lyme bill into Law with NO Amendments!"

Go to: http://www.Cuomo123.com

Please put 1 to 2 sentences in "opening comments" box

This is a NEW campaign with a NEW message. Please use our link to message Governor Cuomo even if you have done so before!

Go to: http://www.nyclymesupport.org/cuomo.htm
For flyer, sample email to friends & family, bill info, and FAQ.

Go to: https://www.facebook.com/NYVoicesOfLyme
To follow us on our New York Voices of Lyme facebook page. Let us know how you are doing encouraging others to send emails - thanks for all your help!

ABOUT THE BILL:
Bill S7854/A7558B is crucial to the welfare of NY Lyme patients. There are diverse opinions in the medical community about how to treat many diseases – especially Lyme disease, where there are 2 medically accepted standards of care. This bill protects all NY patients’ rights to choose peer-reviewed evidence-based treatments by protecting doctors, who treated chronic Lyme disease with long-term antibiotics from unfounded harassment. Bill S7854 prohibits the investigation of any claim of medical professional misconduct based solely on treatment “that is not universally accepted by the medical profession.”

KarlaL


Valley View: Lyme is most misunderstood disease since AIDS

Holly Ahern,
Poughkeepsie Journal

For the complete essay, go to:
http://www.poughkeepsiejournal.com/story/opinion/columnists/2014/11/08/columns-ahern-lyme-legislation/18729327/

With the possible exception of HIV/AIDS, no infectious disease in recent history has been as misunderstood, maligned or politicized as Lyme disease.

After more than two decades of controversy and government neglect, Lyme disease has become too large an issue to ignore any longer. A year ago, the Centers for Disease Control and Prevention reported that only 1 in 10 cases of Lyme disease were properly reported to public health agencies and increased the likely incidence to more than 300,000 new cases of Lyme disease in the U.S. per year. As a highly endemic state, a significant proportion of those cases are in New York. . .

For the complete essay, go to:
http://www.poughkeepsiejournal.com/story/opinion/columnists/2014/11/08/columns-ahern-lyme-legislation/18729327/

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KarlaL

Posts: 694 | From New Lebanon, NY | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
Lymedin2010
Frequent Contributor (1K+ posts)
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I sent mine [Smile]
Posts: 2087 | From NY | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
KarlaL
LymeNet Contributor
Member # 29631

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Begin forwarded message:

From: Jessica Bernstein <[email protected]>
Date: November 10, 2014 4:07:48 PM EST
To: Jessica Bernstein <[email protected]>
Subject: Urgent: Poughkeepsie Journal Op-Ed

As some of you know, microbiology professor Holly Ahern recently wrote a fantastic op-ed for the Poughkeepsie Journal discussing why Cuomo should sign the Lyme bill in New York. So far it has 1,700 Facebook likes and the Poughkeepsie has moved it front and center on their home page and they already have a reporter working on an article about the NYS bill. We need to heavily do our own press with this op-ed by liking and sharing it on Facebook and showing the P.J. that there's a huge readership for these kinds of articles. My Truthout Lyme articles usually get between 8,000 and 11,000 Facebook likes so we should be able to get the #s up on this outstanding op-ed.

We should also flood it with comments. It really makes a HUGE difference when editors see a big response and it helps those of us writing articles because then when we submit to mainstream publications we can point to how there's a large readership for these types of articles which makes a difference to them in terms of advertising.

Here's the link: http://www.poughkeepsiejournal.com/story/opinion/columnists/2014/11/08/columns-ahern-lyme-legislation/18729327/

Jessica Bernstein, Psy.D.

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KarlaL

Posts: 694 | From New Lebanon, NY | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
KarlaL
LymeNet Contributor
Member # 29631

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Please share this editorial and include the following message with your link!

Please, join our new campaign to tell Governor Cuomo to “Sign the Lyme disease Patient Rights/Doctor Protection bill with NO Amendments.” http://www.Cuomo123.com/

Let's get 10,000 emails to Cuomo in 10 Days! For more campaign info including a flyer, sample email to friends & family, bill info, FAQ, and NY Voices of Lyme facebook link: http://www.nyclymesupport.org/cuomo.htm

Lymedisease.org shared a link.

Following on the heels of Holly Ahern's call for NY Governor Cuomo to sign the Patients' Rights/Doctor Protection Bill, the Poughkeepsie Journal's Editorial Board solidly seconds the motion!

You, too, can ask Governor Cuomo to sign the bill by going to http://www.cuomo123.comto have your voice heard.

Battling Lyme starts with Cuomo's signature

Poughkeepsie Journal Editorial Board
4:29 p.m. EST November 12, 2014

For the complete editorial, go to: http://www.poughkeepsiejournal.com/story/opinion/editorials/2014/11/06/battling-lyme-starts-cuomos-signature/18614811/

Now that a hectic election season is over, lawmakers have a chance to settle many lingering issues for the betterment of people – including helping those fighting diseases and other health risks.

Here is an excellent place to start: Gov. Andrew Cuomo should make good on his promise to call up and sign a bill aimed at protecting doctors who provide long-term treatment for Lyme disease.

Specifically, this much-needed measure would enable physicians to prescribe long-term antibiotic therapy to a patient with symptoms of chronic Lyme disease without fear of retribution from government regulators.

Just days before Election Day, the governor told the Poughkeepsie Journal, "I want to sign the Lyme bill." He revealed there were some "technical issues" that likely would have be resolved during the implementation of the law, but clearly indicated these matters wouldn't prohibit him from signing the measure into law. . . .

For the complete editorial, go to: http://www.poughkeepsiejournal.com/story/opinion/editorials/2014/11/06/battling-lyme-starts-cuomos-signature/18614811/

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KarlaL

Posts: 694 | From New Lebanon, NY | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-
Karla,

Thanks so much for the detailed links set and action plan here.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
KarlaL
LymeNet Contributor
Member # 29631

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Holly's essay now has almost 4600 shares on facebook!

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KarlaL

Posts: 694 | From New Lebanon, NY | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
KarlaL
LymeNet Contributor
Member # 29631

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UP!

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KarlaL

Posts: 694 | From New Lebanon, NY | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
   

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